Bartha Knoppers

Q: What Schools Are Affiliated With Bartha Knoppers

Bartha Knoppers is affiliated with the following schools: McGill University, Université de Montréal, University of Alberta, McMaster University, University of Cambridge

Bartha Knoppers's AcademicInfluence.com Rankings

Bartha Knoppers

Philosophy

#3215

World Rank

#5251

Historical Rank

Bioethics

#36

World Rank

#36

Historical Rank

Ethics

#170

World Rank

#205

Historical Rank

Logic

#3224

World Rank

#4350

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philosophy Degrees

Bartha Knoppers

Biology

#4522

World Rank

#6732

Historical Rank

Genetics

#506

World Rank

#581

Historical Rank

biology Degrees

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Philosophy
Biology

Bartha Knoppers's Degrees

PhD Law Université de Montréal

Why Is Bartha Knoppers Influential?

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According to Wikipedia, Bartha Maria Knoppers, OC OQ is a Canadian law Professor and an expert on the ethical aspects of genetics, genomics and biotechnology. Born in Hilversum, Netherlands, she received a Bachelor of Arts from McMaster University , a Master of Arts degree in comparative literature from the University of Alberta , Bachelor of Common Law and Civil Law degrees from McGill University, where she was selected as an Executive Editor for the McGill Law Journal, a Diploma of Legal Studies from University of Cambridge , and a Doctorate of Laws from the University of Paris 1 Pantheon-Sorbonne . In addition, she became a member of the Quebec Bar .

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Bartha Knoppers's Published Works

Number of citations in a given year to any of this author's works

Total number of citations to an author for the works they published in a given year. This highlights publication of the most important work(s) by the author

Published Works

A global reference for human genetic variation (2015) (11857)
An integrated map of genetic variation from 1,092 human genomes (2012) (7565)
A second generation human haplotype map of over 3.1 million SNPs (2007) (4567)
International network of cancer genome projects (2010) (1839)
Whole genome sequencing resource identifies 18 new candidate genes for autism spectrum disorder (2017) (575)
Managing incidental findings and research results in genomic research involving biobanks and archived data sets (2012) (419)
Patterns of somatic structural variation in human cancer genomes (2020) (377)
An international effort towards developing standards for best practices in analysis, interpretation and reporting of clinical genome sequencing results in the CLARITY Challenge (2014) (306)
Whole-genome sequencing in health care (2013) (295)
Trends in ethical and legal frameworks for the use of human biobanks (2007) (277)
Recommendations for returning genomic incidental findings? We need to talk! (2013) (275)
International Cooperation to Enable the Diagnosis of All Rare Genetic Diseases (2017) (275)
Human genetic research: emerging trends in ethics (2006) (271)
Research Ethics Recommendations for Whole-Genome Research: Consensus Statement (2008) (254)
The emergence of an ethical duty to disclose genetic research results: international perspectives (2006) (235)
FORGE Canada Consortium: outcomes of a 2-year national rare-disease gene-discovery project. (2014) (234)
Whole-genome sequencing in health care. Recommendations of the European Society of Human Genetics. (2013) (210)
Comprehensive molecular characterization of mitochondrial genomes in human cancers (2017) (197)
Framework for responsible sharing of genomic and health-related data (2014) (191)
Prepublication data sharing (2009) (190)
A federated ecosystem for sharing genomic, clinical data (2016) (177)
DataSHIELD: taking the analysis to the data, not the data to the analysis (2014) (170)
The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists (2015) (166)
Quality, quantity and harmony: the DataSHaPER approach to integrating data across bioclinical studies (2010) (154)
Cohort profile of the CARTaGENE study: Quebec's population-based biobank for public health and personalized genomics. (2013) (154)
DataSHIELD: resolving a conflict in contemporary bioscience—performing a pooled analysis of individual-level data without sharing the data (2010) (148)
Toward a roadmap in global biobanking for health (2012) (146)
Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. (2016) (143)
Canadian Health Measures Survey: ethical, legal and social issues. (2007) (142)
BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2 (2018) (131)
Return of genetic testing results in the era of whole-genome sequencing (2015) (130)
CRISPR germline engineering—the community speaks (2015) (124)
Maelstrom Research guidelines for rigorous retrospective data harmonization (2016) (114)
Responsible use of polygenic risk scores in the clinic: potential benefits, risks and gaps (2021) (114)
International Charter of principles for sharing bio-specimens and data (2014) (113)
Towards a data sharing Code of Conduct for international genomic research (2011) (109)
Data sharing, year 1--access to data from industry-sponsored clinical trials. (2014) (104)
Epigenome-based cancer risk prediction: rationale, opportunities and challenges (2018) (104)
Biobanking: International Norms (2005) (104)
Recent Advances in Medically Assisted Conception: Legal, Ethical and Social Issues (1991) (102)
Data Sharing in the Post-Genomic World: The Experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO) (2012) (94)
Data analysis: Create a cloud commons (2015) (94)
A human rights approach to an international code of conduct for genomic and clinical data sharing (2014) (92)
Extending the reach of public health genomics: What should be the agenda for public health in an era of genome-based and “personalized” medicine? (2010) (90)
Is rigorous retrospective harmonization possible? Application of the DataSHaPER approach across 53 large studies. (2011) (88)
Population genetic testing for cancer susceptibility: founder mutations to genomes (2016) (85)
Evaluation of BRCA1 and BRCA2 mutation prevalence, risk prediction models and a multistep testing approach in French-Canadian families with high risk of breast and ovarian cancer (2006) (84)
A review of the key issues associated with the commercialization of biobanks (2014) (84)
Children and Population Biobanks (2009) (82)
Attitudes of parents toward the return of targeted and incidental genomic research findings in children (2014) (82)
Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes (2015) (80)
Mind the gap: policy approaches to embryonic stem cell and cloning research in 50 countries. (2006) (80)
Serious genetic disorders: can or should they be defined? (2002) (80)
Population studies: return of research results and incidental findings Policy Statement (2012) (78)
Ethics and Big Data in health (2017) (76)
Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases (2013) (76)
Facilitating a culture of responsible and effective sharing of cancer genome data (2016) (75)
Genomic cloud computing: legal and ethical points to consider (2014) (75)
Genomic cloud computing: legal and ethical points to consider (2014) (75)
Whole-Genome Sequencing in Newborn Screening Programs (2014) (74)
Saving Babies?: The Consequences of Newborn Genetic Screening (2012) (74)
Population Genomics: The Public Population Project in Genomics (P3G): a proof of concept? (2008) (73)
Preconception care and genetic risk: ethical issues (2011) (72)
Strategies for consulting with the community: The cases of four large-scale genetic databases (2004) (72)
Genomic newborn screening: public health policy considerations and recommendations (2017) (72)
Consent Codes: Upholding Standard Data Use Conditions (2016) (71)
Data Safe Havens in health research and healthcare (2015) (68)
Preimplantation genetic diagnosis: an overview of socio-ethical and legal considerations. (2006) (68)
The Babel of genetic data terminology (2005) (67)
The Human Genome Project: under an international ethical microscope. (1994) (67)
Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information (2009) (66)
Genetic information and the family: are we our brother's keeper? (2002) (64)
The Challenge of Informed Consent and Return of Results in Translational Genomics: Empirical Analysis and Recommendations (2014) (64)
Return of individual genomic research results: are laws and policies keeping step? (2019) (63)
GA4GH: International policies and standards for data sharing across genomic research and healthcare (2021) (62)
Nutrient budgets and trophic state in a hypersaline coastal lagoon (2003) (60)
Comparative Approaches to Genetic Discrimination: Chasing Shadows? (2017) (60)
Data sharing in large research consortia: experiences and recommendations from ENGAGE (2013) (58)
The Canadian Partnership for Tomorrow Project: building a pan-Canadian research platform for disease prevention (2010) (58)
Ethics, big data and computing in epidemiology and public health. (2017) (58)
Sampling populations of humans across the world: ELSI issues. (2012) (57)
Research and stored tissues. Persons as sources, samples as persons? (1995) (56)
Status, sale and patenting of human genetic material: an international survey (1999) (55)
The Human Cell Atlas White Paper (2018) (55)
The Canadian Partnership for Tomorrow Project: a pan-Canadian platform for research on chronic disease prevention (2018) (53)
International normative perspectives on the return of individual research results and incidental findings in genomic biobanks (2012) (53)
Populations and genetics : legal and socio-ethical perspectives (2003) (51)
Data Sharing - Is the Juice Worth the Squeeze? (2016) (51)
Autologous bilayered self-assembled skin substitutes (SASSs) as permanent grafts: a case series of 14 severely burned patients indicating clinical effectiveness. (2018) (51)
Points to consider for laboratories reporting results from diagnostic genomic sequencing (2017) (50)
Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting (2013) (48)
Reconsidering reproductive benefit through newborn screening: a systematic review of guidelines on preconception, prenatal and newborn screening (2010) (47)
The emergence of an ethical duty to disclose genetic research results: international perspectives (2006) (47)
Are Data Sharing and Privacy Protection Mutually Exclusive? (2016) (47)
Children and incompetent adults in genetic research: consent and safeguards (2002) (47)
Ethics review for international data-intensive research (2016) (45)
Human genomic databases: a global public good? (2003) (45)
Control of DNA samples and information. (1998) (45)
Building a data sharing model for global genomic research (2014) (44)
Regulatory approaches to reproductive genetic testing. (2004) (44)
Governing stem cell banks and registries: emerging issues. (2009) (44)
International ethics harmonization and the global alliance for genomics and health (2014) (44)
Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform (2013) (43)
Bioethics for clinicians: 14. Ethics and genetics in medicine. (1998) (43)
Genome-wide sequencing in acutely ill infants: genomic medicine’s critical application? (2018) (43)
Beyond the permissibility of embryonic and stem cell research: substantive requirements and procedural safeguards. (2006) (43)
Rare loss-of-function variants in type I IFN immunity genes are not associated with severe COVID-19. (2021) (43)
Population Genetics and Benefit Sharing (2001) (42)
Retrospective access to data: the ENGAGE consent experience (2010) (42)
An implementation framework for the feedback of individual research results and incidental findings in research (2014) (41)
Responsible sharing of biomedical data and biospecimens via the “Automatable Discovery and Access Matrix” (ADA-M) (2018) (41)
Sex differences in oncogenic mutational processes (2019) (41)
From the principles of genomic data sharing to the practices of data access committees (2015) (41)
Stem cell banking: between traceability and identifiability (2010) (40)
Commercialization of Genetic Research and Public Policy (1999) (39)
Personalized Risk Assessment for Prevention and Early Detection of Breast Cancer: Integration and Implementation (PERSPECTIVE I&I) (2021) (38)
Personalized medicine and access to health care: potential for inequitable access? (2012) (38)
Consent recommendations for research and international data sharing involving persons with dementia (2018) (37)
Life insurance: genomic stratification and risk classification (2013) (37)
Sharing health-related data: a privacy test? (2016) (37)
Sharing Clinical and Genomic Data on Cancer - The Need for Global Solutions. (2017) (37)
Identifiability and privacy in pluripotent stem cell research. (2014) (36)
Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform (2013) (36)
Storing Newborn Blood Spots: Modern Controversies (2004) (35)
Consent revisited: points to consider. (2005) (35)
Consent to ‘personal’ genomics and privacy (2010) (35)
Registered access: a ‘Triple-A' approach (2016) (34)
Recommendations on breast cancer screening and prevention in the context of implementing risk stratification: impending changes to current policies. (2016) (34)
Framing Genomics, Public Health Research and Policy: Points to Consider (2010) (33)
Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings (2014) (33)
Disclosure and management of research findings in stem cell research and banking: policy statement. (2012) (33)
Genomics: data sharing needs an international code of conduct (2020) (32)
Creating a data resource: what will it take to build a medical information commons? (2017) (32)
An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health. (2016) (32)
The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues (2016) (31)
Towards an ethics safe harbor for global biomedical research (2014) (31)
Pharmacogenomic data sample collection and storage: ethical issues and policy approaches. (2006) (31)
Power to the people: a wiki-governance model for biobanks (2012) (31)
ELSI 2.0 for Genomics and Society (2012) (31)
A P3G Generic Access Agreement for Population Genomic Studies (2013) (30)
Genomics and policymaking: from static models to complex systems? (2009) (30)
Emerging issues in paediatric health research consent forms in Canada: working towards best practices (2013) (30)
Beyond the rhetoric: population genetics and benefit-sharing. (2003) (30)
Of genomics and public health: Building public “goods”? (2005) (30)
Physicians, genetics and life insurance (2004) (30)
Association of age-dependent height and bone mineral density decline with increased arterial stiffness and rate of fractures in hypertensive individuals (2015) (30)
Reporting results from whole-genome and whole-exome sequencing in clinical practice: a proposal for Canada? (2013) (29)
Rationale, design, and methods for Canadian alliance for healthy hearts and minds cohort study (CAHHM) – a Pan Canadian cohort study (2016) (29)
Beyond public health genomics: proposals from an international working group (2014) (28)
The ethical framing of personalized medicine (2014) (27)
From Banking to International Governance: Fostering Innovation in Stem Cell Research (2011) (27)
Should physicians warn patients' relatives of genetic risks? (2008) (27)
Legal and Ethical Approaches to Stem Cell and Cloning Research: A Comparative Analysis of Policies in Latin America, Asia, and Africa (2004) (26)
BioIndustry Ethics (2005) (26)
Toward better governance of human genomic data (2021) (26)
Comparative Approaches to Biobanks and Privacy (2016) (26)
Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider (2012) (26)
Key Implications of Data Sharing in Pediatric Genomics (2017) (25)
Current trends in biobanking for rare diseases: a review (2014) (25)
DNA sampling and informed consent. (1989) (25)
Our social genome? (2007) (25)
Public variant databases: liability? (2016) (25)
Registered access: authorizing data access (2018) (25)
Accessing Health and Health-Related Data in Canada: The Expert Panel on Timely Access to Health and Social Data for Health Research and Health System Innovation (2015) (25)
Statement of principles on the return of research results and incidental findings in paediatric research: a multi-site consultative process. (2015) (25)
Return of Results: Towards a Lexicon? (2011) (25)
Genomic Databases and International Collaboration (2007) (24)
Steering vaccinomics innovations with anticipatory governance and participatory foresight. (2011) (24)
Duty to recontact: a legal harbinger? (2001) (24)
Genetic information and life insurance: a ‘real’ risk? (2003) (24)
An ethics safe harbor for international genomics research? (2013) (23)
Policies and strategies to facilitate secondary use of research data in the health sciences (2017) (23)
The best interests of the child and the return of results in genetic research: international comparative perspectives (2014) (23)
Biobanks and Longitudinal Studies: Where Are the Children? (2008) (23)
Blurring lines (2010) (23)
Biobanks: simplifying consent. (2004) (23)
Return of “Accurate” and “Actionable” Results: Yes! (2009) (23)
Partnering in Oncogenetic Research – The INHERIT BRCAs Experience: Opportunities and Challenges (2005) (22)
Paediatric biobanks: What makes them so unique? (2012) (22)
Genomic databases access agreements: legal validity and possible sanctions (2011) (22)
Retrospective evaluation of whole exome and genome mutation calls in 746 cancer samples (2020) (22)
Consent and population genomics: the creation of generic tools. (2009) (22)
The Genomic Commons. (2018) (22)
Health professionals’ perspectives on breast cancer risk stratification: understanding evaluation of risk versus screening for disease (2019) (22)
The expansion of newborn screening: is reproductive benefit an appropriate pursuit? (2009) (22)
Use of umbilical cord blood for stem cell research. (2010) (21)
Public–Private Partnerships in Cloud-Computing Services in the Context of Genomic Research (2017) (21)
International initiatives. (2002) (21)
How to fix the GDPR's frustration of global biomedical research (2020) (21)
Neuroethics, New Ethics? (2005) (21)
Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees? (2017) (20)
Human gene editing: revisiting Canadian policy (2017) (20)
Intellectual property rights in publicly funded biobanks: much ado about nothing? (2011) (20)
Anonymity 2.0: direct-to-consumer genetic testing and donor conception. (2014) (20)
Monetary payments for the procurement of oocytes for stem cell research: In search of ethical and political consistency. (2007) (20)
Stored tissue samples: through the confidentiality maze (2005) (20)
Overcoming barriers to facilitate the regulation of multi-centre regenerative medicine clinical trials (2018) (20)
From the Right to Know to the Right Not to Know (2014) (20)
Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts (2016) (19)
The use of fresh embryos in stem cell research: ethical and policy issues. (2008) (19)
The Human Genome Organisation: towards next-generation ethics (2013) (19)
Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority. (2016) (19)
Research ethics and stem cells (2015) (19)
The discombobulation of de-identification (2016) (18)
HUGO Urges Genetic Benefit-Sharing (2001) (18)
Bridging consent: from toll bridges to lift bridges? (2011) (18)
Stem cell research ethics: consensus statement on emerging issues. (2007) (18)
Genomic medicine: considerations for health professionals and the public (2009) (18)
Rare diseases and now rare data? (2013) (18)
BEST PRACTICES FOR HEALTH RESEARCH INVOLVING CHILDREN AND ADOLESCENTS (2011) (18)
Human DNA : law and policy : international and comparative perspectives (1997) (18)
Erratum: Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine (American Journal of Human Genetics (2016) 98(6) (1067–1076) (S0002929716301069) (10.1016/j.ajhg.2016.04.011)) (2016) (17)
Paediatric research and the communication of not-so incidental findings. (2012) (17)
Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons (2019) (17)
Recruiting Terminally Ill Patients into Non-Therapeutic Oncology Studies: views of Health Professionals (2012) (17)
Ethical issues in international collaborative research on the human genome: The HGP and the HGDP (1996) (17)
HUGO Ethics Committee Statement on DNA sampling: control and access. (1998) (17)
Clinical trial data sharing: here’s the challenge (2019) (17)
Locus‐specific databases: from ethical principles to practice (2005) (17)
Ethical Issues in Secondary Uses of Human Biological Materials from Mass Disasters (2006) (17)
Women’s Views on Multifactorial Breast Cancer Risk Assessment and Risk-Stratified Screening: A Population-Based Survey from Four Provinces in Canada (2021) (17)
Erratum: Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine (American Journal of Human Genetics (2016) 98(6) (1067–1076) (S0002929716301069) (10.1016/j.ajhg.2016.04.011)) (2016) (17)
Development of a Consent Resource for Genomic Data Sharing in the Clinical Setting (2018) (17)
Sustained interaction: the new normal for stem cell repositories? (2011) (17)
Return of individual research results from genomic research: A systematic review of stakeholder perspectives (2021) (16)
Genetic diagnosis of embryos: Clear explanation, not rhetoric, is needed (2009) (16)
Criminal Prohibition of Wrongful Re‑identification: Legal Solution or Minefield for Big Data? (2017) (16)
To disclose, or not to disclose? Context matters (2014) (16)
Ethical issues in international collaborative research on the human genome: the HGP and the HGDP. (1996) (16)
Navigating the perfect [data] storm (2012) (16)
Questioning the limits of genomic privacy. (2012) (16)
Legal aspects of genetics, work and insurance in North America and Europe. (1996) (16)
Publishing SNP Genotypes of Human Embryonic Stem Cell Lines: Policy Statement of the International Stem Cell Forum Ethics Working Party (2011) (16)
Ethical dimensions of genetics in pediatric neurology: a look into the future. (2002) (15)
An international policy on returning genomic research results (2021) (15)
Model consent clauses for rare disease research (2019) (15)
A roadmap for restoring trust in Big Data. (2018) (15)
The art and science of biobanking (2011) (15)
Understanding umbilical cord blood banking: what women need to know before deciding. (2007) (15)
Legal approaches regarding health-care decisions involving minors: implications for next-generation sequencing (2016) (15)
Introduction: the why and whither of genomic data sharing (2018) (15)
Harmonizing Privacy Laws to Enable International Biobank Research (2015) (15)
Privacy-Preserving Linkage of Genomic and Clinical Data Sets (2019) (15)
Stem Cell Patents: European Patent Law and Ethics Report: FP6 ‘Life Sciences, Genomics and Biotechnology for Health’ (2006) (14)
International Charter of principles for sharing bio-specimens and data (2016) (14)
Oversight of human inheritable genome modification (2015) (14)
ELSI challenges and strategies of national biobank infrastructures (2012) (14)
Ethical, Legal, and Regulatory Issues for the Implementation of Omics-Based Risk Prediction of Women’s Cancer: Points to Consider (2018) (14)
Exploring resources for intrafamilial communication of cancer genetic risk: we still need to talk (2013) (13)
Ethical guideposts for allelic variation databases (2000) (13)
Envisioning Implementation of a Personalized Approach in Breast Cancer Screening Programs: Stakeholder Perspectives (2019) (13)
Governance Mechanisms and Population Biobanks : Building a Framework for Trust (2008) (13)
Heritable Genome Editing: Who Speaks for "Future" Children? (2019) (13)
Return of Research Results: How Should Research Results Be Handled? (2011) (13)
A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research (2019) (13)
Genotype-driven recruitment: a strategy whose time has come? (2013) (13)
Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium (2016) (13)
Life Insurance and Genetics: A Comparative International Overview (2004) (13)
Data protection and consent to biomedical research: a step forward? (2014) (13)
Abortion law in Francophone countries. (1990) (13)
The ‘serious’ factor in germline modification (2019) (13)
Consortium, G.P A map of human genome variation from population-scale sequencing. Nature 467, 1061-1073 (2010) (13)
Bridging stem cell research and medicine: a learning health system. (2018) (12)
Organizational challenges to equity in the delivery of services within a new personalized risk-based approach to breast cancer screening (2018) (12)
One Size Does Not Fit All: Toward “Upstream Ethics”? (2010) (12)
A response to “Personalised medicine and population health: breast and ovarian cancer” (2019) (12)
Routledge handbook of medical law and ethics (2014) (12)
Populational Genetic DatabasesIs a Specific Ethical and Legal Framework Necessary (2005) (12)
Ethical Issues Involved in Establishing a Registry for Familial Alzheimer's Disease (1994) (12)
Editorial (An Idea Whose Time Has Come? An African Foresight Observatory on Genomics Medicine and Data-Intensive Global Science) (2012) (12)
Haemophilia gene therapy: the patients’ perspective (2009) (12)
Where Next for Genetics and Genomics? (2015) (11)
From Community Genetics to Public Health Genomics – What’s in a Name? (2008) (11)
Mitochondrial Replacement Therapy: The Road to the Clinic in Canada. (2017) (11)
“Matching” consent to purpose: The example of the Matchmaker Exchange (2017) (11)
“ Deconstructing ” Biobank Communication of Results (2009) (11)
Stability of Attitudes to the Ethical Issues Raised by the Return of Incidental Genomic Research Findings in Children: A Follow-Up Study (2015) (11)
Clinical Trial Transparency and Orphan Drug Development: Recent Trends in Data Sharing by the Pharmaceutical Industry (2014) (11)
A step forward for data protection and biomedical research (2016) (11)
From genomic databases to translation: a call to action (2011) (11)
Genetics and Life Insurance: A Comparative Analysis (2004) (11)
Data sharing in stem cell translational science: policy statement by the International Stem Cell Forum Ethics Working Party. (2015) (10)
Of Screening, Stratification, and Scores (2021) (10)
Streamlining ethical review of data intensive research (2016) (10)
Connective tissue: Cancer patients’ attitudes towards medical research using excised (tumour) tissue (2011) (10)
Newborn screening programmes: Emerging biobanks? (2012) (10)
Incidental Findings in Genomic Research: A Review of International Norms (2011) (10)
Policy and data-intensive scientific discovery in the beginning of the 21st century. (2011) (10)
Nutriproteomics and Proteogenomics: Cultivating Two Novel Hybrid Fields of Personalized Medicine with Added Societal Value. (2010) (10)
Viva Europa, a Land of Excellence in Research and Innovation for Health and Wellbeing (2017) (10)
A comparative analysis of the requirements for the use of data in biobanks based in Finland, Germany, the Netherlands, Norway and the United Kingdom (2014) (10)
Letter: Relearning the 3 R’s? Reinterpretation, recontact, and return of genetic variants (2019) (10)
Protecting Genetic Information: A Comparison of Normative Approaches (2004) (10)
Next-Generation Sequencing and the Return of Results. (2016) (10)
Umbilical cord blood stem cells: issues with private and public banks. (2004) (10)
The ethics weathervane (2015) (9)
Research on Human Embryos and Reproductive Materials: Revisiting Canadian Law and Policy (2018) (9)
Genetic database software as medical devices (2018) (9)
Regulation of Stem Cell-Based Therapies in Canada: Current Issues and Concerns (2012) (9)
The Provision of Genetic Testing and Related Services in Quebec, Canada (2020) (9)
Towards a global cancer knowledge network: dissecting the current international cancer genomic sequencing landscape (2017) (9)
Unesco and population genetics (1996) (9)
DNA sampling and informed consent. (1989) (9)
Bringing Code to Data: Do Not Forget Governance (2020) (9)
Vaccines of the 21st century and vaccinomics: data-enabled science meets global health to spark collective action for vaccine innovation. (2011) (9)
Population Biobanking and International Collaboration (2015) (9)
Doping controls and the ‘Mature Minor’ elite athlete: towards clarification? (2020) (9)
Failure to replicate the association of rare loss-of-function variants in type I IFN immunity genes with severe COVID-19 (2020) (9)
Fostering public cord blood banking and research in Canada. (2013) (9)
Biotechnology: Sovereignty and Sharing (1999) (9)
The global emergence of epidemiological biobanks: Opportunities and challenges (2010) (9)
The Human Right to Science and the Regulation of Human Germline Engineering. (2019) (9)
Do It Yourself Newborn Screening. (2016) (9)
From medical ethics to “genethics” (2000) (8)
The stepwise process of integrating a genetic counsellor into primary care (2022) (8)
Genetics and life insurance in Canada: points to consider (2003) (8)
Physicians and genetic malpractice. (2002) (8)
Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences. (2020) (8)
Biobanks (2012) (8)
Genomics: from persons to populations and back again. (2013) (8)
Ethics approval in applications for open-access clinical trial data: An analysis of researcher statements to clinicalstudydatarequest.com (2017) (8)
Pediatric research 'personalized'? International perspectives on the return of results. (2013) (8)
Whose Commons? Data Protection as a Legal Limit of Open Science (2019) (8)
Pandemics, privacy, and public health research (2020) (8)
Canada's Assisted Human Reproduction Act: Pragmatic Reforms in Support of Research (2019) (8)
Genomics and Public Health: Legal and Socio-Ethical Perspectives (2006) (8)
Outcome of over 1500 matches through the Matchmaker Exchange for rare disease gene discovery: The 2-year experience of Care4Rare Canada (2021) (7)
Modeling consent in the time of COVID-19 (2020) (7)
Donor Insemination: Children as In Concreto or In Abstracto Subjects of Rights? (1993) (7)
Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe (2020) (7)
Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. (2016) (7)
Genetic testing, legal capacity and adolescents. (1998) (7)
La génétique humaine : de l'information à l'informatisation (1992) (7)
Improving clinical trial sampling for future research - an international approach: outcomes and next steps from the DIA future use sampling workshop 2011. (2013) (7)
“CRISPR babies”: What does this mean for science and Canada? (2019) (7)
Umbilical cord blood banking in Canada: socio-ethical and legal issues. (2005) (7)
The Genetic Family as Patient? (2020) (7)
Towards a global cancer knowledge network: dissecting the current international cancer genomic sequencing landscape (2017) (7)
Data Sharing and Privacy (2017) (7)
Ethical and legal perspectives on inherited cancer susceptibility (1998) (7)
Health privacy in genetic research (2009) (7)
Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC). (2012) (6)
Pre-implantation Genetic Diagnosis: The Road Forward in Canada. (2019) (6)
What are some of the ELSI challenges of international collaborations involving biobanks, global sample collection, and genomic data sharing and how should they be addressed? (2014) (6)
Genetic Choices: A Paradigm for Prospective International Ethics? (1994) (6)
A marathon, not a sprint – neuroimaging, Open Science and ethics (2021) (6)
Can research ethics committees enable clinical trial data sharing (2017) (6)
Ethical and legal concerns: reproductive technologies 1990–1993 (1993) (6)
Secondary Uses of Personal Data for Population Research (2009) (6)
Physician Recruitment of Patients to Non-Therapeutic Oncology Clinical Trials: Ethics Revisited (2013) (6)
Place de la bioéthique en recherche et dans les services cliniques (2005) (6)
Exposing participants? Population biobanks go geo (2015) (6)
Harmonised consent in international research consortia: an impossible dream? (2011) (6)
Electronic Consent to Health Research in Canada (2012) (6)
Modern birth technology and human rights. (1985) (6)
Geolocalisation of athletes for out-of-competition drug testing: ethical considerations. Position statement by the WADA Ethics Panel (2018) (6)
Towards a reconstruction of the "genetic family": new principles? (1998) (6)
Beyond ELSIs: Where to from Here? From “Regulating” to Anticipating and Shaping the Innovation Trajectory in Personalized Medicine (2013) (6)
Direct-to-consumer genetic testing: driving choice? (2010) (6)
Stem cell charter. (2010) (6)
Three decades of genetic privacy: a metaphoric journey (2021) (6)
Broaden human-rights focus for health data under GDPR (2018) (6)
The Role of P3G in Encouraging Public Trust in Biobanks (2012) (6)
The Future of Cord Blood Banking in Canada (2006) (5)
Ethical, Legal, and Social Issues (ELSI) of Responsible Data Sharing Involving Children in Genomics: A Systematic Literature Review of Reasons (2020) (5)
Warning Patients’ Relatives of Genetic Risks: Policy Approaches (2005) (5)
Stem Cell Research Funding Policies and Dynamic Innovation: A Survey of Open Access and Commercialization Requirements (2014) (5)
Biotechnologies nibbling at the legal “human” (2019) (5)
Study protocol for the Sino-Canadian Healthy Life Trajectories Initiative (SCHeLTI): a multicentre, cluster-randomised, parallel-group, superiority trial of a multifaceted community-family-mother-child intervention to prevent childhood overweight and obesity (2021) (5)
Genetic Information: Use and Abuse (2002) (5)
The sIRB System: A Single Beacon of Progress in the Revised Common Rule? (2017) (5)
International bioethics, human genetics, and normativity. (1997) (5)
Normative Approaches to Address Genetic Discrimination: Placebo or Panacea? (2017) (5)
Genetic predisposition to cancer--issues to consider. (1996) (5)
The international data governance landscape (2022) (5)
The human embryo: ethical and legal aspects. (2009) (5)
Streamlining review of research involving humans: Canadian models (2015) (5)
Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility (2021) (5)
Professional norms: towards a Canadian consensus? (1995) (5)
How mutually recognizable is mutual recognition? An international terminology index of research ethics review policies in the USA, Canada, UK and Australia. (2016) (5)
Substitute consent to data sharing: a way forward for international dementia research? (2017) (5)
Open science and community norms (2012) (5)
'Principled' personalized medicine? (2009) (5)
The commercialization of genomic research in Canada. (2010) (5)
The Right to Benefit from Science and Its Implications for Genomic Data Sharing (2020) (5)
Demystifying biobanks. (2013) (4)
Picard Lecture in Health Law--1992. Human genetics: parental, professional and political responsibility. (1993) (4)
Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations (2019) (4)
What are the most oppressing legal and ethical issues facing biorepositories and what are some strategies to address them? (2011) (4)
A new twist on an old problem: primary care physicians and results from direct-to-consumer genetic testing. (2013) (4)
Genome-based newborn screening: a conceptual analysis of the best interests of the child standard. (2015) (4)
Broad Consent for Future Research: International Perspectives (2018) (4)
Human Subjects Research, Ethics, and International Codes on Genetic Research (2002) (4)
Population Biobanks and Access (2011) (4)
Developing registries of volunteers: key principles to manage issues regarding personal information protection (2010) (4)
Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations (2018) (4)
RESEARCH ETHICS. Ethics review for international data-intensive research (2016) (4)
Of Biotechnology and Man (2004) (4)
Confidentiality in genetic testing: legal and ethical issues in an international context. (1993) (4)
How Can We Not Waste Legacy Genomic Research Data? (2020) (4)
Newborn genetic screening: ethical and social considerations for the nineties. (1991) (4)
Ethics Issues in Stem Cell Research (2006) (4)
Currents in Contemporary Bioethics: Open Access as Benefit Sharing? The Example of Publicly Funded Large-Scale Genomic Databases (2012) (4)
The Serious Factor in Expanded Prenatal Genetic Testing (2022) (4)
Are We Asking the Right Ethics Questions on Drug Shortages? Suggestions for a Global and Anticipatory Ethics Framework (2012) (4)
Enabling pharmacogenomic clinical trials through sampling. (2010) (4)
Rationale for an integrated approach to genetic epidemiology. (1992) (4)
Policy barriers in coherent population-based research (2006) (4)
Influence des facteurs organisationnels sur l’implantation d’une approche personnalisée de dépistage du cancer du sein (2016) (4)
RMGA Statement of Principles on the Return of Research Results and Incidental Findings (2013) (4)
AI in Cardiovascular Imaging: "Unexplainable" Legal and Ethical Challenges? (2021) (4)
Should Age-Dependent Absolute Risk Thresholds Be Used for Risk Stratification in Risk-Stratified Breast Cancer Screening? (2021) (4)
Reproductive genetics: Canadian and European perspectives. (1993) (4)
Catalyzing umbilical cord blood research in Canada: a survey of current needs and practices of principal investigators. (2009) (4)
Ethical Aspects of Genome Research and Banking (2001) (4)
Challenges to Ethics Review in Health Research (2009) (4)
Reflections: the challenge of biotechnology and public policy. (2000) (4)
Coming Out to Play: Privacy, Data Protection, Children’s Health, and COVID-19 Research (2021) (4)
Multidisciplinary perceptions of human genetics in Canada: "Delphi" results with regards to the practice of medical genetics. (1995) (4)
ACCE, Pharmacogenomics, and Stopping Clinical Trials: Time to Extend the CONSORT Statement? (2011) (4)
International mHealth Research: Old Tools and New Challenges (2020) (4)
Genetics and Society Project (2001) (4)
Reproductive technology and international mechanisms of protection of the human person. (1987) (4)
COVID-19 and beyond: a call for action and audacious solidarity to all the citizens and nations, it is humanity’s fight (2020) (4)
Polygenic risk scores and risk-stratified breast cancer screening: Familiarity and perspectives of health care professionals. (2022) (3)
Spare Embryos and Stem Cell Research: Consent Issues (2003) (3)
Génétique et assurance vie : analyse comparative (2004) (3)
Ethical challenges of precision cancer medicine. (2020) (3)
Human genome meeting 2016 (2016) (3)
Risk-Stratified Approach to Breast Cancer Screening in Canada: Women’s Knowledge of the Legislative Context and Concerns about Discrimination from Genetic and Other Predictive Health Data (2021) (3)
Don't Take It Personal: European Union Legal Aspects of Procuring and Protecting Environmental Exposure Data in Population Biobanks Through the Use of a Geo-Information-Systems Toolkit. (2016) (3)
Legal aspects of animal-human combinations in Canada (2007) (3)
The Cambridge Textbook of Bioethics: Bio-banking (2008) (3)
"Well-bear and well-rear" in China? (1998) (3)
Policy forum: genetic technologies. Commercialization of genetic research and public policy. (1999) (3)
Reciprocity and the Quest for Meaningful Disclosure (2019) (3)
Streamlining ethical review of data intensive research: Unfounded concerns about local liability should not delay urgent reform (2016) (3)
Does policy grow on trees? (2014) (3)
Genomics4RD: An integrated platform to share Canadian deep‐phenotype and multiomic data for international rare disease gene discovery (2022) (3)
Precision medicine: a matter of regulation or collaboration? (2016) (3)
Privacy in Canadian Paediatric Biobanks: A Changing Landscape (2011) (3)
Erratum: Evaluation of BRCA1 and BRCA2 mutation prevalence, risk prediction models and a multistep testing approach in French-Canadian families with high risk of breast and ovarian cancer (Journal of Medical Genetics (2007) 44, (107-121)) (2007) (3)
Newborn Screening Programs: Next Generation Ethical and Social Issues (2018) (3)
Newborn screening for sickle-cell disease : socio-ethical implications (2006) (3)
‘Serious’ factor—a relevant starting point for further debate: a response (2019) (3)
Editorial [Personalized Vaccines and Public Health Genomics: Anticipating and Monitoring the ELSIs] (2010) (3)
Les bases de données génétiques populationnelles : Un encadrement éthiqueEt juridique spécifique nécessaire ? (2005) (3)
The Legal Framing of Computerized Processing of Health Data :A European and Canadian Perspective (2006) (2)
Informed Consent in Genetics (2012) (2)
When information is the treatment? Precision medicine in healthcare (2020) (2)
Correction: The composition and capacity of the clinical genetics workforce in high-income countries: a scoping review (2020) (2)
Cancer genetics: a model for multifactorial conditions? (2001) (2)
Legal regulation of cancer surveillance: Canadian and international perspectives. (2000) (2)
MERCK: STAYING THE COURSE (2005) (2)
Rhetorical Discourses in International Patent Lawmaking (2009) (2)
Reproductive technology and the law in Canada. (1986) (2)
Abstract 378: The Cancer Genome Collaboratory (2017) (2)
[Personalized medicine: equity and access]. (2014) (2)
Genetic testing, physicians and the law: will the tortoise ever catch up with the hare? (2010) (2)
An international effort towards developing standards for best practices in analysis, interpretation and reporting of clinical genome sequencing results in the CLARITY Challenge (2014) (2)
DIVERSA INC.: ETHICAL ISSUES IN BIOPROSPECTING PARTNERSHIPS (2005) (2)
The Human Genome Organization (HUGO) (1997) (2)
Confidentiality and accessibility of medical information: A comparative analysis (1982) (2)
Women’s perceptions of PERSPECTIVE: a breast cancer risk stratification e-platform (2022) (2)
An implementation framework for the feedback of individual research results and incidental findings in research (2014) (2)
Seeking a "Race to the Top" in Genomic Cloud Privacy? (2015) (2)
Genetics and stem cell research : models of international policy-making (2010) (2)
Longitudinal Health Studies: Secondary Uses Serving the Future. (2021) (2)
Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot? (2019) (2)
From Tissues to Genomes (2013) (2)
The globalized gene (2006) (2)
Public Health Genomics Journal: Adjusting the Agenda to Future Needs (2011) (2)
Further delineation of BCAP31-linked intellectual disability: description of 17 new families with LoF and missense variants (2021) (2)
Population Biobanks and the Principle of Reciprocity (2017) (2)
AFFYMETRIX, INC.: USING CORPORATE ETHICS ADVICE (2005) (2)
Corrigendum: Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility (2021) (2)
Genomic Databases, Access Review, and Data Access Committees (2016) (2)
Stem Cells in a Pluralistic Society: Consequences of Proposed Canadian Legislation (2003) (2)
Genetic counselors and legal recognition: A made‐for‐Canada approach (2021) (2)
210Po in shellfish Mytella falcata from a tropical estuary (2009) (2)
Genome-wide sequencing in acutely ill infants: genomic medicine’s critical application? (2018) (1)
Computational tools for genomic data de-identification: facilitating data protection law compliance (2021) (1)
Selected abstracts submitted to the Third International Symposium on Hereditary Breast and Ovarian Cancer (2009) (1)
Genetic information and the law: constraints, liability and rights. (1986) (1)
Subject Index Vol. 7, 2004 (2004) (1)
Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations (2014) (1)
Special Issue — From Biobanks to the Clinic (2014) (1)
The "legitimization" of artificial insemination: promise or problem? (1978) (1)
Biotechnology and the consumer : a research project sponsored by the Office of Consumer Affairs of Industry Canada (1998) (1)
Emerging issues in paediatric health research consent forms in Canada: working towards best practices (2013) (1)
Power to the people: a wiki-governance model for biobanks (2012) (1)
From Poetry to Policy: An Interview with Bartha Maria Knoppers. (2019) (1)
guidelines for rigorous retrospective data harmonization (2017) (1)
Ethical challenges and innovations in the dissemination of genomic data: the experience of the PERSPECTIVE project (2015) (1)
Recruiting Terminally Ill Patients into Non-Therapeutic Oncology Studies: views of Health Professionals (2012) (1)
Conception artificielle et responsabilité médicale : une étude de droit comparé (1986) (1)
Frontline Ethico-Legal Issues in Childhood Cancer Genetics Research (2021) (1)
Nature, nurture and exposure (2015) (1)
Developing Educational Resources to Advance Umbilical Cord Blood Banking and Research: A Canadian Perspective. (2015) (1)
A Legal Duty of Genetic Recontact in Canada (2019) (1)
International ethics harmonization and the global alliance for genomics and health (2014) (1)
ISSCR guidelines uphold human right to science for benefit of all (2021) (1)
The Canadian Open Neuroscience Platform – An Open Science Framework for the Neuroscience Community (2022) (1)
Médecine personnalisée : équité et accès (2014) (1)
La protection de l’information génétique : une comparaison des approches normatives (2004) (1)
Humanity across International Law and Biolaw: The concept of humanity and biogenetics (2014) (1)
Author Correction: Pan-cancer analysis of whole genomes (2023) (1)
The changing landscape of human-animal chimera research: A Canadian regulatory perspective. (2010) (1)
A human rights approach to an international code of conduct for genomic and clinical data sharing (2014) (1)
L'Analyse génétique à des fins de preuve et les droits de l'homme : aspects médico-scientifique, éthique et juridique (1997) (1)
A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada (2021) (1)
Book Reviews-Legal Rights and Human Genetic Material (1998) (1)
DNA Banking: A Retrospective‐prospective (2008) (1)
GENZYME: PUTTING PATIENTS FIRST (2005) (1)
Genetically Enhanced Minors: Whose Responsibility? (2018) (1)
La protection de l’information génétique dans le domaine médical au Québec : principe général de confidentialité et questions soulevées par les dispositions d’exception (2006) (1)
Legal approaches regarding health-care decisions involving minors: implications for next-generation sequencing (2017) (1)
Ethical Dimensions in Paediatric Neurology: A Look into the Future (2002) (1)
Trade-secret model: legal limitations. (2011) (1)
Oversight, governance, and policy for making decisions about return of individual genomic findings (2020) (1)
Biomedical Data Identifiability in Canada and the European Union: From Risk Qualification to Risk Quantification? (2021) (1)
Streamlining ethics review for international health research. (2022) (1)
Genomic newborn screening: public health policy considerations and recommendations (2017) (1)
Contents, Vol. 8, Supplement 1, 1993 (1993) (1)
Genotype-driven recruitment: a strategy whose time has come? (2013) (1)
Tool-sharing issues in coherent population-based research (2006) (1)
The HUGO ethics committee: six innovative statements. (2003) (1)
The impact of reporting magnetic resonance imaging incidental findings in the Canadian alliance for healthy hearts and minds cohort (2021) (1)
Re-contact Following Withdrawal of Minors from Research (2022) (1)
Medical Research Involving Children: A Review of International Policy Statements (2011) (1)
Management Strategies for Ethics in International Research (2014) (1)
HUGO's midlife crisis: life begins at 40 (1998) (1)
INVITED EDITORIAL Well-Bear and Well-Rear in China? (1998) (1)
The Equitable Implementation of Cystic Fibrosis Personalized Medicines in Canada (2021) (1)
Cultured Autologous Corneal Epithelia for the Treatment of Unilateral Limbal Stem Cell Deficiency: A Case Series of 15 Patients (2022) (1)
Human Dignity: In Danger of Banality - (The Case of Cloning) (2003) (1)
How to ensure the Human Cell Atlas benefits humanity (2022) (1)
Overview of Law and Policy Challenges (2005) (1)
What is in a Clause (2012) (1)
Challenges of mental illness Genetics and Mental Illness Laura Lee Hall (1997) (1)
Building a data sharing model for global genomic research (2014) (1)
The Human Genome Organisation: towards next-generation ethics (2013) (1)
Ethical and Analytic Challenges With Genomic Sequencing of Relapsed Hematologic Malignancies Following Allogeneic Hematopoietic Stem-Cell Transplantation (2021) (1)
Responsible sharing of biomedical data and biospecimens via the “Automatable Discovery and Access Matrix” (ADA-M) (2018) (1)
Regulation of International Direct-to-Participant Genomic Research: Symposium Introduction (2019) (1)
A centralized rare disease database and whole-genome sequencing as a standard of care: two essential implementations for the future of health (2021) (1)
Privacy, Confidentiality, and Genetic Information: A Comparative Analysis (1997) (1)
SCIONA LTD.: A PIONEER IN NUTRIGENOMICS: THE PATH TO CONSUMER ACCEPTANCE (2005) (1)
Bridging the European Data Sharing Divide in Genomic Science (2022) (1)
Author Correction: Computational tools for genomic data de-identification: facilitating data protection law compliance (2022) (0)
Broaden human-rights focus for health data under GDPR (2018) (0)
Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider (2012) (0)
Governing Stem Cells: Regenerative Medicine in Europe - The Vision and Recommendations From the EUCelLEX Project (2018) (0)
Attaining Majority in Research: Re-contact for Consent to Continued Participation? (2016) (0)
EXPERT GROUP ON HUMAN RIGHTS AND BIOTECHNOLOGY CONVENED BY THE UN HIGH COMMISSIONER FOR HUMAN RIGHTS: Conclusions on Human Reproductive Cloning UNHCHR's Expert Group on Human Rights and Biotechnology (2002) (0)
Introduction: The Age of Personal Genomics (2010) (0)
CONCLUSION: LESSONS FOR COMPANIES AND FUTURE ISSUES (2005) (0)
Correction to: Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations (2018) (0)
Mon bien est plus commun que le tien (2008) (0)
COVID-19 and Beyond: A Call for Action and Audacious Solidarity to All the Citizens and Nations, It Is Humanity’s Fight (2020) (0)
Genetic testing: a comparative view. (1993) (0)
International genomic cloud computing: â€˜miningâ€™ the terms of service (2015) (0)
An ethics safe harbor for international genomics research? (2013) (0)
A Human Rights Foundation for Global Data Sharing (2017) (0)
Populations and persons (2016) (0)
Gynecologic Cancer Risk and Genetics: Informing an Ideal Model of Gynecologic Cancer Prevention (2022) (0)
Recording the ethical provenance of data and automating data stewardship (2023) (0)
Reply to Merz et al. (1998) (0)
Bringing Code to Data: Do Not Forget Governance (Preprint) (2020) (0)
PIPELINE BIOTECH A/S: COMPETING REGULATORY REGIMES FOR LABORATORY ANIMAL EXPERIMENTS (2005) (0)
Towards an Ethics of ‘Complexity’ for ‘Common’ Diseases? (1996) (0)
An international policy on returning genomic research results (2021) (0)
The ethical and legal duties of physicians in clinical genetics and genomics (2014) (0)
Ethical decision-making by hospital committees. (1984) (0)
INTERLEUKIN GENETICS AND ALTICOR: AN UNLIKELY PARTNERSHIP (2005) (0)
Reviewer Acknowledgment 2012 (2012) (0)
Contents Vol. 3, 2000 (2001) (0)
Sharing and Safeguarding Pediatric Data (2022) (0)
The BioMedBridges Ethical Governance Framework (2014) (0)
Integrating Bioethics and Health Law Into the Canadian Institutes of Health Research (1999) (0)
Perspectives de parents concernant les découvertes fortuites en recherche pédiatrique : la voix manquante au débat (2017) (0)
A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada (2021) (0)
Models of International Policy-making (2010) (0)
NIH workshop statement. (1993) (0)
Symposium: Proceedings of 'The Genomics Revolution? Science, Law and Policy' (2005) (0)
53 GENETIC DISCRIMINATION BY INSURERS AS A RESULT OF GENETIC RESEARCH AND TESTING: A COMPARISON OF NATIONAL POLICIES (2005) (0)
Compendium of Policy and Ethical Framework Umbilical Cord Blood (UCB) – Banking, research and Clinical Applications (2015) (0)
Geneticism and Germ Line: Between Courage and Caution (1998) (0)
Current trends in biobanking for rare diseases: a review [Corrigendum] (2015) (0)
Correction to: Pandemics, privacy, and public health research (2020) (0)
Legal Issues: Patents and Public Access vs Private Protection (2001) (0)
Oocyte donation for stem cell research. (2007) (0)
Correction to: The stepwise process of integrating a genetic counsellor into primary care (2022) (0)
Appendix 1: Quebec: A Pioneer in the Regulation of AHR and Research in Canada [Expert Opinion for the Government of Quebec] (2017) (0)
Cloning: an international comparative overview. (1997) (0)
Ethics Watch (2004) (0)
Abstract 1832: Large variations in clinical and ethical aspects of genomic sequencing initiatives: A Global Alliance for Genomics and Health (GA4GH) survey (2016) (0)
Introduction (2005) (0)
Appendix 3: Response to the Second Opinion of Françoise Baylis (2017) (0)
The Gatekeeping Function in Personalized Medicine Initiatives (2017) (0)
[Medically assisted procreation: legal analysis and precepts]. (1992) (0)
The impact of reporting magnetic resonance imaging incidental findings in the Canadian alliance for healthy hearts and minds cohort (2021) (0)
The impact of reporting magnetic resonance imaging incidental findings in the Canadian alliance for healthy hearts and minds cohort (2021) (0)
Reviewer Acknowledgment (2005) (0)
TGN BIOTECH: A START-UP WITH ETHICAL ROOTS (2005) (0)
Preconception care and genetic risk: ethical issues (2011) (0)
Return of individual genomic research results: are laws and policies keeping step? (2019) (0)
Congress Committee (1963) (0)
Prenatal and Preimplantation Diagnosis: International Policy Perspectives (2021) (0)
PLS volume 30 issue 2 Cover and Front matter (2011) (0)
Recommendations for the reporting of results from diagnostic next generation sequencing (2017) (0)
Introduction: of Genomics and Public Health: Building Public Goods? (2007) (0)
Confidentiality and Recall (2006) (0)
Journal Club: Cascade Testing for Autosomal Recessive Disorders (2004) (0)
MAXIM PHARMACEUTICALS (A): INTERNAL AND EXTERNAL DIALOGUES (2005) (0)
“The Stakes Are Higher”- Patient and Caregiver Perspectives on Cystic Fibrosis Research and Personalized Medicine (2022) (0)
Reply to C Harling (2017) (0)
Model consent clauses for rare disease research (2019) (0)
Contents Vol. 81, 2014 (2015) (0)
Model consent clauses for rare disease research (2019) (0)
Genomics for Breast Cancer Prevention: Decision-makers’ Views on Socio-ethical and Organizational Challenges (2017) (0)
Vérité et information de la personne (2019) (0)
P3G: Towards an International Policy Platform for Population Genomics (2017) (0)
Panel on legal issues in genetic testing. (1993) (0)
Contents Vol. 16, 2013 (2014) (0)
Return of individual research results: Policies and experiences of cancer genomic researchers. (2014) (0)
Open Data in the Era of the GDPR: Lessons from the Human Cell Atlas. (2022) (0)
Laws and social attitudes toward pre-implantation genetic diagnosis: a comparison (2004) (0)
Of the Rights and Best Interests of Future Generations (2020) (0)
Registered access: authorizing data access (2018) (0)
Subject Index Vol. 3, 2000 (2001) (0)
INHERIT BRCAs Partnering in Oncogenetic Research – The INHERIT BRCAs Experience: Opportunities and Challenges (2005) (0)
Contents Vol. 15, 2012 (2012) (0)
Does policy grow on trees? (2014) (0)
GENOME ANALYSIS: LEGAL RULES -- PRACTICAL APPLICATION: REPORTS OF THE WORKSHOP 11-14TH JUNE 1992, UNDER THE AUSPICES OF THE COMMISSION OF THE EUROPEAN COMMUNITIES edited by E. Deutsch and G. De Oliveira (1996) (0)
Abstract 3605: ICGC in the cloud (2016) (0)
The best interests of the child and the return of results in genetic research: international comparative perspectives (2014) (0)
COVID-19 and beyond: a call for action and audacious solidarity to all the citizens and nations, it is humanity’s fight [version 1; peer review: 3 approved with reservations] (2021) (0)
Privacy, Confidentiality, and Health Research. William Lowrance. (2013) (0)
Biomedical Research Policy (2022) (0)
Attitudes to the return of incidental and targeted genomic findings obtained in a high-risk pediatric cancer versus an inherited genetic condition research setting (2013) (0)
The ethics weathervane (2015) (0)
Regulatory approaches to reproductive testing (2004) (0)
Exome/Genome-Wide Testing in Newborn Screening: A Proportionate Path Forward (2022) (0)
A response to “Personalised medicine and population health: breast and ovarian cancer” (2019) (0)
Mitochondrial Replacement Therapy: In Whose Interests? (2022) (0)
Comparative abortion law; the living abortus (1989) (0)
Ethical, Legal and Social Issues: Ethical Aspects of Genome Research and Banking (2007) (0)
Professional liability in Canada = La responsabilité civile des professionnels au Canada (1988) (0)
La recherche sur les cellules souches dans une société pluraliste : Les conséquences du projet de loi canadien (2003) (0)
Women’s perceptions of PERSPECTIVE: a breast cancer risk stratification e-platform (2022) (0)
CONP Ethics Toolkit v1.0.1 (2021) (0)
L’encadrement juridique du traitement informatisé des données relatives à la santé : perspective europeo-canadienne (2006) (0)
Considering our genetic legacy (2000) (0)
COVID-19 and beyond: a call for action and audacious solidarity to all the citizens and nations, it is humanity’s fight [version 1; peer review: awaiting peer review] (2020) (0)
MONSANTO COMPANY: BIO-AGRICULTURE PIONEER (2005) (0)
Newborn screening and whole genome sequencing: which way forward? (2014) (0)
NOVO NORDISK: THE TRIPLE BOTTOM LINE (2005) (0)
Don Chalmers: His Contributions to Legal Research and Education, Health Law, and Research Ethics, Locally and Globally. (2020) (0)
Reply to Kranendonk et al (2017) (0)
International Biobanking Summit V: Harmonizing Privacy Laws to Enable International Biobank Research. (2016) (0)
MILLENNIUM PHARMACEUTICALS, INC.: CREATING AND SUSTAINING CORPORATE VALUES (2005) (0)
Contents Vol. 7, 2004 (2004) (0)
SESSION 08: NEXT GENERATION SEQUENCING (2012) (0)
Attitudes of Researchers to the Return of Incidental and Targeted Genomic Findings Obtained in a Research Setting to Participants (2012) (0)
A decision tool to guide the ethics review of a challenging breed of emerging genomic projects (2016) (0)
Raising standards for global data-sharing—Response (2021) (0)
Regulation of Stem Cell-Based Therapies in Canada: Current Issues and Concerns (2012) (0)
P3G Observatory: A Tool for Population Research Projects In Genomics (2006) (0)
Dorothy C. Wertz 1938–2003 (2003) (0)
Data and Tools Integration in the Canadian Open Neuroscience Platform (2023) (0)
Ethics and Genetics (2013) (0)
Letter: Relearning the 3 R’s? Reinterpretation, recontact, and return of genetic variants (2019) (0)
Human gene editing: revisiting Canadian policy (2017) (0)
Author Correction: Inferring structural variant cancer cell fraction (2022) (0)
Author Correction: Patterns of somatic structural variation in human cancer genomes (2020) (0)
Points to consider for laboratories reporting results from diagnostic genomic sequencing (2017) (0)
Correction to: Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations (2018) (0)
Ethics & governance for the Canadian Open Neuroscience Platform (2018) (0)
Author Correction: Retrospective evaluation of whole exome and genome mutation calls in 746 cancer samples (2020) (0)
Development of a consent resource for genomic data sharing in the clinical setting (2018) (0)
Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations (2018) (0)
Stem Cell Research Funding Policies and Dynamic Innovation: A Survey of Open Access and Commercialization Requirements (2014) (0)
Author Correction: The evolutionary history of 2,658 cancers (2023) (0)
Overcoming barriers to facilitate the regulation of multi-centre regenerative medicine clinical trials (2018) (0)
Genomics: data sharing needs an international code of conduct (2020) (0)
Human genome meeting 2016 (2016) (0)
Contemporary trends in family law : a national perspective (1984) (0)
PHARMASNPS INC.: CREATING AN ETHICS ADVISORY BOARD (2005) (0)
La recherche sur les embryons et le droit pénal : entre prohibition et permissivité ? (2011) (0)
Une relecture contemporaine du droit de retrait du consentement à la recherche à l’heure des biobanques (2020) (0)
Vers une reconstruction de la famille génétique : De nouveaux principes en vue ? (1998) (0)
« Les notions d'autorisation et de consentement dans le contrat médical » (1978) (0)
Le devoir de confidentialité, les risques génétiques et les intérêts de la famille : approches normatives (2005) (0)
Les Enfants, Les Incapables et la Genetique (2001) (0)
Deuxième table ronde : procréation médicalement assistée : quand faut-il intervenir et où faut-il s'arrêter ? (1992) (0)
4. Des enjeux éthiques à l’évaluation éthique (2010) (0)
éthique Et juridique spécifique nécessaire (2005) (0)
Implanter une nouvelle approche pour le dépistage du cancer du sein : comment assurer l’inclusivité et l’accessibilité ? (2016) (0)
L'élaboration d'un code de conduite international en matière biomédicale (1991) (0)
Éthique et génome : défi 2000. L'être humain n'est-il qu'une autre sorte d'espèce ? (2000) (0)
Information génétique : qualification et communication en droit québécois (2019) (0)
Creating a data resource: what will it take to build a medical information commons? (2017) (0)

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