Crispin Jenkinson

Crispin Jenkinson's AcademicInfluence.com Rankings

Crispin Jenkinson

Engineering

#3394

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#4465

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Biomedical Engineering

#159

World Rank

#164

Historical Rank

engineering Degrees

Crispin Jenkinson

Philosophy

#4892

World Rank

#7564

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#2255

World Rank

#3213

Historical Rank

philosophy Degrees

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Engineering
Philosophy

Crispin Jenkinson's Degrees

Masters Biomedical Engineering University of Oxford
Bachelors Biomedical Engineering University of Oxford

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Crispin Jenkinson's Published Works

Number of citations in a given year to any of this author's works

Total number of citations to an author for the works they published in a given year. This highlights publication of the most important work(s) by the author

Published Works

Assessing the quality of reports of randomized clinical trials: is blinding necessary? (1996) (16098)
Short form 36 (SF36) health survey questionnaire: normative data for adults of working age. (1993) (1642)
The Parkinson's Disease Questionnaire (PDQ-39): development and validation of a Parkinson's disease summary index score. (1997) (970)
The development and validation of a short measure of functioning and well being for individuals with Parkinson's disease (1995) (921)
A shorter form health survey: can the SF-12 replicate results from the SF-36 in longitudinal studies? (1997) (831)
Comparison of therapeutic and subtherapeutic nasal continuous positive airway pressure for obstructive sleep apnoea: a randomised prospective parallel trial (1999) (788)
Patients’ experiences and satisfaction with health care: results of a questionnaire study of specific aspects of care (2002) (662)
The Picker Patient Experience Questionnaire: development and validation using data from in-patient surveys in five countries. (2002) (574)
The routine use of patient reported outcome measures in healthcare settings (2010) (560)
Assessment of the SF-36 version 2 in the United Kingdom. (1999) (538)
PDQ-39: a review of the development, validation and application of a Parkinson’s disease quality of life questionnaire and its associated measures (1998) (491)
Criterion validity and reliability of the SF-36 in a population sample (1994) (426)
Development and Testing of the UK SF-12 (1997) (388)
The PDQ-8: Development and validation of a short-form parkinson's disease questionnaire (1997) (351)
Validating Self-rated Health in Different Ethnic Groups (2000) (323)
European patients' views on the responsiveness of health systems and healthcare providers. (2005) (320)
Short Form 36 (SF-36) Health Survey questionnaire: which normative data should be used? Comparisons between the norms provided by the Omnibus Survey in Britain, the Health Survey for England and the Oxford Healthy Life Survey. (1999) (306)
Self-report quality of life measure for people with schizophrenia: the SQLS. (2000) (276)
An exploration of social and economic outcome and associated health-related quality of life after critical illness in general intensive care unit survivors: a 12-month follow-up study (2013) (267)
Self-reported functioning and well-being in patients with Parkinson's disease: comparison of the short-form health survey (SF-36) and the Parkinson's Disease Questionnaire (PDQ-39) (1995) (256)
Comparison of three measures of quality of life outcome in the evaluation of continuous positive airways pressure therapy for sleep apnoea (1997) (209)
Randomised controlled trial comparing hospital at home care with inpatient hospital care. I: three month follow up of health outcomes (1998) (208)
Development and testing of the UK SF-12 (short form health survey). (1997) (208)
Patients' health related quality of life before and after aesthetic surgery. (1996) (188)
Measuring patients’ experiences and outcomes (2009) (183)
Determining minimally important differences for the PDQ-39 Parkinson's disease questionnaire. (2001) (181)
Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy. (2004) (178)
Health selection in the Whitehall II study, UK. (2003) (173)
Responsiveness and minimally important change for the Manchester-Oxford foot questionnaire (MOXFQ) compared with AOFAS and SF-36 assessments following surgery for hallux valgus. (2007) (172)
The development and validation of a patient-reported questionnaire to assess outcomes of elbow surgery. (2008) (166)
Comparing Alternative Rasch-Based Methods vs Raw Scores in Measuring Change in Health (2004) (163)
Outcome measures for adult critical care: a systematic review. (2000) (160)
A patient-based questionnaire to assess outcomes of foot surgery: Validation in the context of surgery for hallux valgus (2006) (155)
Using the SF-36 measure to compare the health impact of multiple sclerosis and Parkinson’s disease with normal population health profiles (2003) (146)
The Nottingham Health Profile: an analysis of its sensitivity in differentiating illness groups. (1988) (144)
An assessment of the construct validity of the SF-12 summary scores across ethnic groups. (2001) (138)
Quality of life and patient satisfaction following treatment for menorrhagia. (1994) (136)
The new UK National Statistics Socio-Economic Classification (NS-SEC); investigating social class differences in self-reported health status. (2000) (126)
Review of outcome measures used in adult critical care (2001) (118)
Nutritional management in MND/ALS patients: an evidence based review (2004) (117)
Development Standards for Health Measures (1996) (116)
Evaluation of index and profile measures of health status in a randomized controlled trial. Comparison of the Medical Outcomes Study 36-Item Short Form Health Survey, EuroQol, and disease specific measures. (1997) (114)
Should breast reduction surgery be rationed? A comparison of the health status of patients before and after treatment: postal questionnaire survey (1996) (110)
The level of haemoglobin in anaemic cancer patients correlates positively with quality of life (2002) (109)
Importance of sensitivity to change as a criterion for selecting health status measures. (1992) (104)
Health‐related quality of life in parkinson's disease: A study of outpatient clinic attenders (1997) (104)
The use of the SF-36 questionnaire in adult survivors of childhood cancer: evaluation of data quality, score reliability, and scaling assumptions (2006) (103)
Responsiveness of the Manchester-Oxford Foot Questionnaire (MOXFQ) compared with AOFAS, SF-36 and EQ-5D assessments following foot or ankle surgery. (2012) (103)
Health‐status of adult survivors of childhood cancer: A large‐scale population‐based study from the British childhood cancer survivor study (2007) (101)
Cross-cultural evaluation of the short form 8-item Parkinson's Disease Questionnaire (PDQ-8): results from America, Canada, Japan, Italy and Spain. (2007) (101)
A comparison of the sensitivity to change of several health status instruments in rheumatoid arthritis. (1993) (98)
The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe (2000) (96)
The Manchester–Oxford Foot Questionnaire (MOXFQ) (2013) (95)
Evidence for the validity and reliability of the ALS assessment questionnaire: the ALSAQ-40. (1999) (94)
Outcome selection and role of patient reported outcomes in contemporary cardiovascular trials: systematic review (2010) (94)
Comparison of two approaches to measuring change in health status in rheumatoid arthritis: the Health Assessment Questionnaire (HAQ) and modified HAQ. (1992) (94)
Comparison of UK and US methods for weighting and scoring the SF-36 summary measures. (1999) (93)
The Parkinson's disease questionnaire (1998) (92)
MEASURING HEALTH STATUS AND QUALITY OF LIFE (1999) (88)
Quality of life in patients undergoing inguinal hernia repair. (1997) (87)
Evaluation of treatment for congestive heart failure in patients aged 60 years and older using generic measures of health status (SF-36 and COOP charts). (1997) (87)
Properties of the Picker Patient Experience questionnaire in a randomized controlled trial of long versus short form survey instruments. (2003) (85)
How should we evaluate health status? A comparison of three methods in patients presenting with obstructive sleep apnoea (1998) (84)
Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Sheffield 2016: advances in patient reported outcomes research (2016) (83)
A Review: Carers, MND and service provision (2006) (83)
Development and validation of a short measure of health status for individuals with amyotrophic lateral sclerosis/ motor neurone disease: the ALSAQ-40 (1999) (82)
Development and testing of the Medical Outcomes Study 36-Item Short Form Health Survey summary scale scores in the United Kingdom. Results from a large-scale survey and a clinical trial. (1997) (82)
The SF-36 Physical and Mental Health Summary Measures: An Example of How to Interpret Scores (1998) (81)
Does self-reported well-being of patients with Parkinson's disease influence caregiver strain and quality of life? (2011) (79)
Evidence for the sensitivity of the SF-36 health status measure to inequalities in health: results from the Oxford healthy lifestyles survey. (1996) (76)
A systematic review of outcome measures used in forensic mental health research with consensus panel opinion. (2010) (75)
The influence of psychosocial factors on survival after myocardial infarction. (1993) (75)
Management of respiration in MND/ALS patients: An evidence based review (2006) (72)
The MOXFQ patient-reported questionnaire: assessment of data quality, reliability and validity in relation to foot and ankle surgery. (2011) (72)
The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: a cohort survey (2014) (71)
Informal carers’ experience of assistive technology use in dementia care at home: a systematic review (2019) (70)
The London handicap scale: a re-evaluation of its validity using standard scoring and simple summation (2000) (69)
Making sense of ambiguity: evaluation in internal reliability and face validity of the SF 36 questionnaire in women presenting with menorrhagia. (1996) (68)
Assessment of health-related quality-of-life in males with Anderson Fabry Disease before therapeutic intervention (2002) (68)
Can pain and function be distinguished in the Oxford Knee Score in a meaningful way? An exploratory and confirmatory factor analysis (2013) (68)
Development and validation of a short measure of health status for individuals with acute myocardial infarction: The myocardial infarction dimensional assessment scale (MIDAS) (2002) (64)
Use of the short form health survey (SF-36) in patients with amyotrophic lateral sclerosis: tests of data quality, score reliability, response rate and scaling assumptions (2002) (62)
Factors Influencing Quality of Life in Caregivers of People with Parkinson's Disease and Implications for Clinical Guidelines (2012) (60)
The development and validation of a quality of life measure for the carers of people with Parkinson's disease (the PDQ-Carer). (2012) (60)
Transition questions to assess outcomes in rheumatoid arthritis. (1993) (58)
Why are we weighting? A critical examination of the use of item weights in a health status measure. (1991) (55)
How can patients' views of their care enhance quality improvement? (2009) (54)
Measuring the effects of online health information: Scale validation for the e-Health Impact Questionnaire. (2015) (54)
Distribution-based criteria for change in health-related quality of life in Parkinson's disease. (2004) (54)
Measuring the effects of online health information for patients: Item generation for an e-health impact questionnaire (2013) (54)
Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions (2013) (53)
Measuring change over time: a comparison of results from a global single item of health status and the multi-dimensional SF-36 health status survey questionnaire in patients presenting with menorrhagia (1994) (53)
ANKLE The Manchester – Oxford Foot Questionnaire ( MOXFQ ) DEVELOPMENT AND VALIDATION OF A SUMMARY INDEX SCORE (2013) (52)
Informing the NHS Outcomes Framework: evaluating meaningful health outcomes for children with neurodisability using multiple methods including systematic review, qualitative research, Delphi survey and consensus meeting (2014) (52)
Minimally important change was estimated for the Manchester-Oxford Foot Questionnaire after foot/ankle surgery. (2014) (52)
The current practice of handling and reporting missing outcome data in eight widely used PROMs in RCT publications: a review of the current literature (2016) (51)
Cross-cultural evaluation of the Parkinson's Disease Questionnaire: tests of data quality, score reliability, response rate, and scaling assumptions in the United States, Canada, Japan, Italy, and Spain. (2003) (51)
Can item response theory reduce patient burden when measuring health status in neurological disorders? Results from Rasch analysis of the SF-36 physical functioning scale (PF-10) (2001) (49)
Reduced item set for the amyotrophic lateral sclerosis assessment questionnaire: development and validation of the ALSAQ-5 (2001) (48)
A systematic review of generic multidimensional patient-reported outcome measures for children, part I: descriptive characteristics. (2015) (48)
Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures (2015) (47)
The Parkinson's Disease Questionnaire (PDQ-39): evidence for a method of imputing missing data. (2006) (47)
The amyotrophic lateral sclerosis assessment questionnaire (ALSAQ-40): tests of data quality, score reliability and response rate in a survey of patients (2000) (47)
People with limiting long-term conditions report poorer experiences and more problems with hospital care (2014) (45)
Development of a patient-reported outcome measure of activity and participation (the OKS-APQ) to supplement the Oxford knee score. (2014) (45)
Patient reports of the outcomes of treatment: a structured review of approaches (2014) (45)
Measuring quality of life in cosmetic surgery patients with a condition-specific instrument: the Derriford Scale. (1998) (43)
Outcome measures used in forensic mental health research: a structured review. (2009) (43)
Quality of life in amyotrophic lateral sclerosis/motor neuron disease: A structured review (2009) (41)
Multiple imputation for patient reported outcome measures in randomised controlled trials: advantages and disadvantages of imputing at the item, subscale or composite score level (2018) (41)
Do South Asian women with PCOS have poorer health-related quality of life than Caucasian women with PCOS? A comparative cross-sectional study (2010) (40)
Validity, reliability, and responsiveness of a self-reported foot and ankle score (SEFAS) (2012) (37)
Methods of assessing health-related quality of life and outcome for plastic surgery. (1999) (37)
A systematic review of generic multidimensional patient-reported outcome measures for children, part II: evaluation of psychometric performance of English-language versions in a general population. (2015) (37)
Tacit models of disability underlying health status instruments. (1993) (37)
Rasch scoring of outcomes of total hip replacement. (2003) (36)
A generic health status instrument in the assessment of rheumatoid arthritis. (1992) (35)
The Stroke Impact Scale: Validation in a UK Setting and Development of a SIS Short Form and SIS Index (2013) (33)
Self-reported health status and access to health services in a community sample with Parkinson's disease. (1997) (33)
Assessment and evaluation of health and medical care : a methods text (1997) (33)
Measurement of health status in patients with chronic illness: comparison of the Nottingham health profile and the general health questionnaire. (1990) (32)
Measuring the experiences of health care for patients with musculoskeletal disorders (MSD): development of the Picker MSD questionnaire. (2002) (32)
Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures (2014) (30)
Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy (2004) (30)
Patient attitudes to clinical trials: development of a questionnaire and results from asthma and cancer patients (2005) (30)
Patients’ experiences of deep brain stimulation for Parkinson's disease: a qualitative systematic review and synthesis (2016) (29)
Measurement properties of multidimensional patient‐reported outcome measures in neurodisability: a systematic review of evaluation studies (2015) (28)
Exploring the experiences of people with mild cognitive impairment and their caregivers with particular reference to healthcare – a qualitative study (2013) (28)
Asking patients about their treatment. (1993) (27)
Evaluation of the Dartmouth COOP charts in a large-scale community survey in the United Kingdom. (2002) (26)
Mapping from the Parkinson’s Disease Questionnaire PDQ-39 to the Generic EuroQol EQ-5D-3L (2015) (26)
The impact of HIV on maternal quality of life in Uganda (2006) (26)
The impact of perceived lack of support provided by health and social care services to caregivers of people with motor neuron disease (2012) (26)
Psychometric validation of a multi-dimensional capability instrument for outcome measurement in mental health research (OxCAP-MH) (2017) (26)
Deriving summary indices of health status from the Amyotrophic Lateral Sclerosis Assessment Questionnaires (ALSAQ-40 and ALSAQ-5) (2003) (26)
Influence of hospital and clinician workload on survival from colorectal cancer: cohort study (1999) (25)
Quality of life measurement: does it have a place in routine clinical assessment? (1994) (25)
Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study (2015) (24)
Patients’ experiences of health and social care in long-term neurological conditions in England: A cross-sectional survey (2013) (24)
Quality of life and burden of morbidity in primary care users with multimorbidity (2018) (23)
Quality in the provision of headache care. 2: defining quality and its indicators (2012) (23)
Validation of the Oxford Participation and Activities Questionnaire (2016) (23)
The SF 36 health survey questionnaire. ...if used within its limits. (1993) (23)
Living with breathlessness in chronic heart failure: a qualitative study (2017) (22)
Health-Related Quality of Life in Amyotrophic Lateral Sclerosis: Determining a Meaningful Deterioration (2004) (22)
Health-Related Quality-of-Life Measurement in Patients with Parkinson’s Disease (1999) (22)
Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health (2016) (22)
[Validation of the French language version of the Parkinson's Disease Questionnaire - PDQ-39]. (2002) (22)
Desirable properties for instruments assessing quality of life: evidence from the PDQ-39. (1997) (21)
Quality in the provision of headache care. 1: systematic review of the literature and commentary (2012) (21)
Quality of life in patients with Parkinson’s disease: Translation and psychometric evaluation of the Iranian version of PDQ-39 (2010) (20)
Data quality, floor and ceiling effects, and test–retest reliability of the Mild Cognitive Impairment Questionnaire (2018) (20)
Evaluation of the Dutch version of the Parkinson's Disease Questionnaire 39. (2008) (20)
A structured review of patient reported outcome measures used for cosmetic surgical procedures (2013) (20)
The coronary heart disease in-patient experience questionnaire (I-PEQ (CHD)): Results from the survey of National Health Service patients (2002) (19)
The European Amyotrophic Lateral Sclerosis Health Profile Study (1998) (18)
The conceptual validity and appropriateness of using health-related quality of life measures with minority ethnic groups. (1999) (18)
The PDQ-Carer: development and validation of a summary index score. (2013) (18)
The social dimension of health status measures in rheumatoid arthritis. (1991) (18)
Quality of Life and Health: Concepts, Methods and Applications (1996) (18)
Health Status and Mood State in a Migraine Sample (1990) (18)
Comparing results from long and short form versions of the Parkinson's disease questionnaire in a longitudinal study. (2015) (18)
Evaluating the psychometric properties of an e-based version of the 39-item Parkinson’s Disease Questionnaire (2015) (17)
Application of Sen’s capability approach to outcome measurement in mental health research: psychometric validation of a novel multi-dimensional instrument (OxCAP-MH) (2014) (17)
Experiences of Using Web-Based and Mobile Technologies to Support Self-Management of Type 2 Diabetes: Qualitative Study (2018) (17)
Health Inequalities: Comparing health inequalities among men aged 18–65 years in Australia and England using the SF‐36 (2002) (17)
Patients experience of fatigue in advanced heart failure (2019) (17)
Factors associated with satisfaction with bunion surgery in women: A prospective study (2007) (17)
Derivation and Validation of a Modified Short Form of the Stroke Impact Scale (2016) (17)
Quality of life in coeliac disease: item reduction, scale development and psychometric evaluation of the Coeliac Disease Assessment Questionnaire (CDAQ) (2018) (16)
A STRUCTURED REVIEW OF PATIENT-REPORTED OUTCOME MEASURES (PROMs) FOR STROKE (2009) (16)
Comparison of the 40-item Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40) with a short-form five-item version (ALSAQ-5) in a longitudinal survey (2007) (16)
Early recovery following lower limb arthroplasty: Qualitative interviews with patients undergoing elective hip and knee replacement surgery. Initial phase in the development of a patient‐reported outcome measure (2018) (16)
The development and validation of a patient-reported quality of life measure for people with mild cognitive impairment (2013) (16)
Association between spousal emotional abuse and reproductive outcomes of women in India: findings from cross-sectional analysis of the 2005–2006 National Family Health Survey (2018) (15)
Quality of Life Measurement in Neurodegenerative and Related Conditions (2011) (15)
Carers’ experience of using assistive technology for dementia care at home: a qualitative study (2020) (15)
Normative data for the SF-12 health survey in the Republic of Ireland with comparisons to England (2001) (15)
The needs and experiences of services by individuals with long-term progressive neurological conditions, and their carers : a benchmarking study (2010) (15)
Subjective health assessment (2013) (15)
A children's acute respiratory illness scale (CARIFS) predicted functional severity and family burden. (2004) (15)
Contrasting evidence of the effectiveness of cosmetic surgery from two health related quality of life measures. (1999) (15)
Impact of COVID-19 restrictions on carers of persons with dementia in the UK: a qualitative study (2021) (14)
Factors relating to patients' reports about hospital care for coronary heart disease in England (2003) (14)
Self-reported Functioning and Well-being in Patients with Parkinson's Disease: Comparison of the Short-form 36 and the Parkinson's Disease Questionnaire (1996) (14)
Review Paper: Measuring outcomes for neurological disorders: a review of disease-specific health status instruments for three degenerative neurological conditions (2005) (14)
Interpreting change scores on the Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40) (2003) (14)
Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time. (2003) (13)
Patient reported outcomes (2016) (13)
The Long-Term Conditions Questionnaire: conceptual framework and item development (2016) (13)
Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England (2017) (13)
An Evaluation of a Near Real-Time Survey for Improving Patients’ Experiences of the Relational Aspects of Care. (2018) (13)
The Outcomes and Experiences Questionnaire: development and validation (2014) (13)
Development of the Oxford Participation and Activities Questionnaire: constructing an item pool (2015) (12)
Can pain and function be distinguished in the Oxford Hip Score in a meaningful way? (2014) (12)
Patient-Reported Outcome Measure for Early Postoperative Recovery Following Lower Limb Arthroplasty: A Systematic Review. (2016) (11)
Measuring Health And Medical Outcomes (2013) (11)
The Oxford Participation and Activities Questionnaire: study protocol (2013) (11)
Factors associated with patient satisfaction with foot and ankle surgery in a large prospective study. (2012) (11)
Assessing short term outcome (1992) (11)
Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time (2003) (10)
Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion (2016) (10)
Comparison of statistical approaches for analyzing incomplete longitudinal patient-reported outcome data in randomized controlled trials (2018) (10)
Evolutionary Thinking in Medicine (2016) (9)
A pilot evaluation of specialist community pharmacy services for patients with Parkinson's disease (2007) (9)
Predictors of activity and participation across neurodegenerative conditions: a comparison of people with motor neurone disease, multiple sclerosis and Parkinson’s disease (2018) (9)
The Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ‐40): Evidence for a method of imputing missing data (2007) (9)
Randomised controlled trials and health services research (1995) (8)
Evolutionary Thinking in Medicine: From Research to Policy and Practice (Advances in the Evolutionary Analysis of Human Behaviour) (2020) (8)
Using rapid cycle tests of change to develop the Carers Assistive Technology Experience Questionnaire: a cognitive interview study in the UK (2021) (7)
Quality of life in coeliac disease: qualitative interviews to develop candidate items for the Coeliac Disease Assessment Questionnaire (2018) (7)
Rasch measurement in the assessment of amytrophic lateral sclerosis patients. (2003) (7)
Developing approaches to the collection and use of evidence of patient experience below the level of national surveys (2016) (7)
Social Class Differences in Morbidity Using the New U.K. National Statistics Socio‐Economic Classification: Do Class Differences in Employment Relations Explain Class Differences in Health? (1999) (6)
Generating items for the Oxford Participation and Activities Questionnaire (Ox-PAQ) (2014) (6)
Consensus meeting participants (2014) (6)
Quality of Life Measurement in Neurodegenerative and Related Conditions: Index (2011) (6)
Death by Questionnaire: Quality of Life Measurement Could Seriously Damage your Health (1999) (6)
The Coeliac Disease Assessment Questionnaire (Cdaq): Development of a Patient-Reported Outcome Measure (2016) (5)
Measuring improvement in health-status with the Oxford Participation and Activities Questionnaire (Ox-PAQ) (2018) (5)
Erratum to “Responsiveness and minimally important change for the Manchester-Oxford foot questionnaire (MOXFQ) compared with AOFAS and SF-36 assessments following surgery for hallux valgus” [Osteoarthritis and Cartilage 2007;15:918–931] (2011) (5)
Measuring mental health in amyotrophic lateral sclerosis (ALS): A comparison of the SF-36 Mental Health Index with the Psychological General Well-Being Index (2001) (5)
Pretesting An E-Based Version Of The Oxford Participation & Activities Questionnaire (Ox-Paq) (2016) (5)
Towards a shared vision for measureable and meaningful health outcomes for children and young people with neurodisability: qualitative research, Delphi survey, systematic review, and stakeholder prioritisation (2015) (5)
Children and Young People’s Response to Parental Illness : A Handbook of Assessment and Practice (2016) (5)
Development of the Motor Neuron Disease Carer Questionnaire (2009) (5)
Health Status Measurement in Neurological Disorders (2000) (5)
Carers’ experiences of assistive technology use in dementia care: a cross sectional survey (2020) (5)
Healthcare experiences and quality of life of adults with coeliac disease: a cross-sectional study. (2020) (5)
Informal carers’ experience and outcomes of assistive technology use in dementia care in the community: a systematic review protocol (2019) (5)
An electronic version of the PDQ-39: acceptability to respondents and assessment of alternative response formats. (2014) (5)
The Relational Aspects of Care Questionnaire: item reduction and scoring using inpatient and accident and emergency data in England (2018) (4)
Furthering our understanding of the needs of adolescent children of parents with Parkinson’s disease (2013) (4)
Burden of cancer trial participation: A qualitative sub-study of the INTERIM feasibility RCT (2021) (4)
Development of a core outcome set for lower limb orthopaedic surgical interventions in ambulant children and young people with cerebral palsy: a study protocol (2020) (4)
Quality of life in ALS. (2000) (4)
Evaluating the psychometric properties of an electronic version of the Parkinson’s Disease Questionnaire (PDQ-39) (2014) (4)
Public and patient involvement (2014) (4)
An Electronic Version of the Pdq-39: Acceptability To Respondents and Assessment of Alternative Response formats. (2014) (4)
The development and validation of the Parkinson’s disease questionnaire and related measures (2011) (4)
The Oxford Participation and Activities Questionnaire (Ox-PAQ): development of a short form and index measure (2019) (4)
MYMOP, a patient generated measure of outcomes (1996) (4)
Should breast reduction surgery be rationed? (1996) (4)
Young People’s Response to Parental Neurological Disorder: A Structured Review (2020) (4)
Using cognitive interviews to assess and refine the Coeliac Disease Assessment Questionnaire (CDAQ) (2015) (3)
Medical education leaders' perceptions of postgraduate medical education reform (2014) (3)
PNP30: CHANGES IN QUALITY OF LIFE RESULTING FROM TREATMENT FOR PERSONS WITH ADVANCED PARKINSON'S DISEASE: SUMANIROLE VERSUS PLACEBO (2003) (3)
Early Recovery Following Total and Unicompartmental Knee Arthroplasty Assessed Using Novel Patient-Reported Measures. (2021) (3)
Strategies and challenges for monitoring patient experience at the local level (2015) (3)
THE DEVELOPMENT AND VALIDATION OF A QUALITY OF LIFE MEASURE FOR PEOPLE WITH MILD COGNITIVE IMPAIRMENT (THE MCQ) (2013) (3)
Parkinson's Disease Questionnaire--39 (2014) (3)
Withdrawing gluten‐free food from prescriptions in England: a mixed‐methods study to examine the impact of policy changes on quality of life (2019) (2)
Development of an Exercise‐Specific Parkinson's Disease Questionnaire: The PDQ‐Exercise (2021) (2)
A scoring system for the foot and ankle that is acceptable, reliable, valid and responsive. (2012) (2)
Item generation for the Long-Term Conditions Questionnaire (LTCQ): qualitative interviews with patients (2015) (2)
Refining items in the Long-Term Conditions Questionnaire (LTCQ): cognitive interviews, stakeholder feedback and translatability assessment (2015) (2)
Administering the Routine Activities domain of the Oxford Participation and Activities Questionnaire as a stand-alone scale: the Oxford Routine Activities Measure (2018) (2)
Health Status Measurement and Outcomes (2008) (2)
Quality-of-life outcomes after cosmetic surgery. (1999) (2)
Unilateral Versus Bilateral Same-Day Surgery Outcomes for Hallux Valgus : An Eight Year Prospective Cohort Study (2012) (2)
Patient-reported outcomes in long-term conditions: a cohort survey in England (2013) (2)
Outcome measure for parkinsons disease. (1995) (2)
Energy Policy needs Bifocals (2016) (2)
PCH2: THE LEVEL OF HAEMOGLOBIN (Hb) IN U.K. CANCER PATIENTS CORRELATES POSITIVELY WITH QUALITY OF LIFE (QoL) (2000) (2)
Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research (2017) (2)
The Importance of Recognising Depression in Adolescents Affected by Parental Illness (2012) (2)
Development of the Oxford Participation & Activities Questionnaire: Semi structured interviews with potential users (2013) (2)
Health-related Quality of Life (2003) (2)
Spanish version of the Parkinson’s Disease Questionnaire–Carer (PDQ-Carer) (2016) (2)
Development of a patient-reported outcome measure (PROM) and change measure for use in early recovery following hip or knee replacement (2020) (2)
Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research (2017) (2)
Validation of the Oxford Participation & Activities Questionnaire (Ox-PAQ) (2016) (1)
SENSITIVITY TO CHANGE OVER TIME OF 4 HEALTH-STATUS INSTRUMENTS IN RHEUMATOID-ARTHRITIS (1992) (1)
THE E-HEALTH IMPACT QUESTIONNAIRE: DEVELOPING A TOOL TO MEASURE THE EFFECTS OF USING HEALTH-RELATED WEBSITES (2013) (1)
Health Care Professionals' Perceptions of the Arthroplasty Patient Experience: Planning Phase in the Development of a Patient‐Reported Outcome Measure (2018) (1)
Quality of Life Measurement in Neurodegenerative and Related Conditions: Aspects of methodology relevant to patient-reported outcome measures (PROMs) (2011) (1)
Outcome measurement in neurodegenerative disease: attributes, applications & interpretation. (2015) (1)
Carers using assistive technology in dementia care: an explanatory sequential mixed-methods study (2021) (1)
The Oxford Participation & Activities Questionnaire (Ox-Paq): Psychometric Analysis. (2015) (1)
‘‘Quality’’ in Headache Care. What Is It and How Can It Be Measured? (2011) (1)
Assessing Patients' Experiences with Medical Injury Reconciliation Processes: Item Generation for a Novel Survey Questionnaire. (2021) (1)
Health-protective behaviours and risk of fall-related hip fractures: a population-based case–control study (2006) (1)
Validity and reliability of the German language SF-36 health survey in patients with amyotrophic lateral sclerosis (2002) (1)
Quality-of-life repercussions and costs of parkinson's disease (2001) (1)
Measures of health status-the nottingham health profile and the SF-36 (1993) (1)
Pretesting newly generated items to complement the 39-item Parkinson’s Disease Questionnaire (2019) (1)
Use of the Oxford Participation and Activities Questionnaire in chronic obstructive pulmonary disease (2019) (1)
Multi-morbidity as a predictor of quality of life (2017) (1)
Correction to: multiple imputation for patient reported outcome measures in randomised controlled trials: advantages and disadvantages of imputing at the item, subscale or composite score level (2018) (1)
Quality of life in coeliac disease: the qualitative development of a new patient-reported outcome measure (2013) (1)
Psychometric evaluation of the Oxford participation & activities questionnaire (Ox-PAQ) (2015) (1)
Mailed questionnaires: quality matters - Reply (2004) (1)
Transition Questions or Items (2014) (1)
Making senseofambiguity: evaluation ofinternal reliability andface validity oftheSF36 questionnaire inwomen presenting with menorrhagia (1996) (0)
Comparison of missing data options (2018) (0)
CO69 Test-Retest Reliability of the PDQ-Exercise (2022) (0)
Measuring the impact of using health-related websites: The eHealth impact questionnaire (2015) (0)
Quality of Life Measurement in Neurodegenerative and Related Conditions: Preface (2011) (0)
ePRO Migration and Usability Testing of Patient-Reported Outcome (PRO) Measures (2013) (0)
Measuring the impact of parental illness (2017) (0)
Parkinson's Disease Questionnaire--39; Dutch Version (2020) (0)
Schizophrenia Quality of Life Scale (2016) (0)
Predictors of quality of life in adults with coeliac disease in England (2018) (0)
Work package 3b: the EXPERT study – randomised trial of patient experience-based websites (2016) (0)
Developing the coeliac disease assessment questionnaire (CDAQ): an assessment of translatability (2014) (0)
PND3 THE PARKINSON'S DISEASE QUESTIONNAIRE (PDQ): DEVELOPMENT AND VALIDATION OF THE PDQ-EXERCISE (2020) (0)
The OxCAP-MH: a Novel, Multi-dimensional, Patient-Reported Capabilities Instrument for Mental Health Research and Policy (2014) (0)
Test-retest reliability of the PDQ-Carer. (2022) (0)
Web-Based and mHealth Technologies to Support Self-Management in People Living With Type 2 Diabetes: Validation of the Diabetes Self-Management and Technology Questionnaire (DSMT-Q) (Preprint) (2020) (0)
PNS194 THE OXFORD PARTICIPATION AND ACTIVITIES QUESTIONNAIRE (OX-PAQ): DEVELOPMENT OF A SHORT FORM AND SINGLE INDEX SCORE. (2020) (0)
Pretesting an electronic version of the PDQ-39. (2013) (0)
Carers using assistive technology in dementia care at home: a mixed methods study (2022) (0)
Children’s and young people’s response to parental illness: introduction and overview (2017) (0)
PMH6: DEVELOPMENT OF A NEW DISEASE-SPECIFIC QUALITY OF LIFE SCALE FOR USE IN SCHIZOPHRENIA (1999) (0)
Evidence forthesensitivity oftheSF-36health statusmeasure toinequalities inhealth: results fromtheOxford healthy lifestyles survey (1996) (0)
Author’s response to reviews Title: Informal carers' experience of assistive technology use in dementia care at home: A systematic review Authors: (2019) (0)
Web-Based and mHealth Technologies to Support Self-Management in People Living With Type 2 Diabetes: Validation of the Diabetes Self-Management and Technology Questionnaire (DSMT-Q) (2020) (0)
Coeliac disease. (2019) (0)
Patient-reported outcome measurement in primary care for people with long-term conditions: stakeholders views (2014) (0)
A comparison of statistical approaches for analysing missing longitudinal patient reported outcome data in randomised controlled trials (2017) (0)
Patients Evaluaction of Hospital Treatment: A Structured Review (MT) (2012) (0)
In this issue (2005) (0)
Developing a tool to measure the effects of using health-related websites (the e-Health Impact Questionnaire) (2013) (0)
Methodology and data sources (2018) (0)
Patient Attitudes toward Clinical Trials Questionnaire (2017) (0)
PND57 A Measure of Carer Quality of Life in Parkinson's Disease (PDQ-Carer): Development and Validation of a Summary Index Score (2012) (0)
Developing and pre-testing an item pool relating to the effects of exposure to health websites (2012) (0)
Computerized adaptive testing for the Oxford Hip, Knee, Shoulder, and Elbow scores (2022) (0)
Use of the Routine Activities Domain of the Oxford Participation & Activities Questionnaire (Ox-PAQ) (2016) (0)
Stage 2.2: MEDLINE (OvidSP) search strategy (2014) (0)
CO145 Sensitivity to Change of the PDQ-Exercise (2022) (0)
Editorial: Quality of life: Recent advances in theory and methods: Quality of life measurement in health settings (1997) (0)
Factors related to the Quality of Life of Carers of People with Parkinson’s Disease (2012) (0)
Work package 1c: refining and validation of the e-Health Impact Questionnaire (2016) (0)
PCV110 DEVELOPMENT AND VALIDATION OF A SHORT PRO MEASURE OF HEALTH STATUS FOR INDIVIDUALS WITH ACUTE MYOCARDIAL INFARCTION: THE MYOCARDIAL INFARCTION DIMENSIONAL ASSESSMENT SCALE (MIDAS) (2011) (0)
Online Delphi survey with health professionals (2014) (0)
Development of the Oxford Participation & Activities Questionnaire: Exploring the Views of Relevant Professionals (2016) (0)
Comparing the functioning and well-being of people with motor neurone disease, multiple sclerosis and Parkinson’s disease (2016) (0)
Executive summary Outcome measures for adult critical care: a systematic review (2000) (0)
Development & Validation of the Oxford Participation & Activities Questionnaire: Exploring the Views of Relevant Stakeholders. (2013) (0)
Adhering to best practice guidelines in outcomes measurement (2018) (0)
Quality of Life Measurement in Neurodegenerative and Related Conditions: Patient-reported outcome measurement in motor neuron disease/amyotrophic lateral sclerosis – the ALSAQ-40 and ALSAQ-5 (2011) (0)
The London handicap scale - Reply (2000) (0)
Manual for Research Ethics Committees: Social survey research (2003) (0)
The Parkinson’s disease questionnaire (Pdq-39) - Evaluating The Psychometric Properties of an Electronic Version (2015) (0)
Translatability assessment of the e-health impact questionnaire (E-HIQ) (2013) (0)
Comment The use of family health services authority registers as a sampling frame in the UK: a review of theory and practice (0)
PND42 THE ASSOCIATION BETWEEN PARKININSON'S DISEASE QUESTIONNAIRE (PDQ) SCORES WITH CARER STRAIN AND QUALITY OF LIFE (2011) (0)
Qualitative interviews to explore experiences of using web-based and mobile technologies to support self-management of type 2 diabetes mellitus (2018) (0)
PND62 Carers of People With Parkinson's Disease: Factors Related to Quality of Life (2012) (0)
Synthesis of findings (2014) (0)
THE SCIENTIFIC ASSESSMENT OF SUBJECTIVE OUTCOME AFTER LAPAROSCOPIC UROLOGICAL PROCEDURES (2007) (0)
Version iterations of the definition of neurodisability at each round (2014) (0)
Predictors Of Activity And Participation In People With Motor Neurone Disease, Multiple Sclerosis And Parkinson’s Disease (2017) (0)
Work package 2b: understanding the important factors for user engagement with online personal experiences (2016) (0)
PND41 Parkinson's Disease Questionnaire (PDQ-39) As a Primary Endpoint in a Trial Comparing Deep Brain Stimulation With Best Medical Therapy Versus Best Medical Therapy Alone for Advanced Parkinson's Disease (PD SURG TRIAL): A Randomised, Open-Label Trial (2012) (0)
Questions used in the Delphi survey (2014) (0)
List of identified, non-eligible questionnaires (2014) (0)
The development of a patient reported outcome measure for fatigue and breathlessness for patients with chronic heart failure (OxFAB). (2022) (0)
Mailed questionnaires: quality matters (2004) (0)
Characteristics of excluded chronic-generic patient-reported outcome measures (2014) (0)
The current practice of handling and reporting missing outcome data in eight widely-used PROMS in RCT publications: are we doing well? (2015) (0)
The development of the long-term conditions questionnaire ( LTCQ ) Interim report (2016) (0)
The relationship between well-being and support provided by health and social services to caregivers of people with motor neurone disease (2012) (0)
A method for imputing missing questionnaire data (2011) (0)
PND28 CROSS CULTURAL EVALUATION OF THE SHORT FORM 8 ITEM PARKINSON'S DISEASE QUESTIONNAIRE: RESULTS FROM AMERICA, CANADA, JAPAN, ITALY AND SPAIN (2010) (0)
Validation of the Long-Term Conditions Questionnaire (LTCQ) (2016) (0)
Society for Social Medicine and the International Epidemiological Association European Group (2001) (0)
Systematic review of patient-reported outcomes for children and young people (2014) (0)
Qualitative research with children and young people affected by neurodisability, and parents (2014) (0)
Characteristics of excluded preference-based measures (2014) (0)
Applying multiple imputation to multi-item patient reported outcome measures: advantages and disadvantages of imputing at the item, sub-scale or score level (2016) (0)
Characteristics of excluded generic patient-reported outcome measures (2014) (0)
Authors' reply (1996) (0)
Parkinson Disease Questionnaire–Carer--Transcultural Adaptation; Spanish Version (2017) (0)
Social and psychological factors affecting the impact of painful chronic illness upon mental health (1989) (0)
Importance ofsensitivity tochange as a criterion forselecting health statusmeasures (1992) (0)
The coeliac disease assessment questionnaire (CDAQ): comparison of the paper and electronic versions (2016) (0)
Comparison oftwoapproaches tomeasuring change inhealth statusinrheumatoid arthritis: theHealth Assessment Questionnaire (HAQ) andmodified HAQ (1992) (0)
Enabling and supporting people to live with Long-Term conditions: qualitative and conceptual development of a patient-reported outcome measure (PRO) (2014) (0)
Comprar Quality of Life and Neurodegenerative Disease | Crispin Jenkinson | 9780521829014 | Cambridge University Press (2010) (0)
CO3 Sensitivity to Change of the Oxford Participation and Activities Questionnaire in People With Parkinson’s (2022) (0)
Adjuvant radiotherapy in patients with high‐risk cutaneous Squamous Cell Carcinoma After surgery (SCC‐AFTER): patient and carer views regarding a proposed clinical trial (2022) (0)

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