Ellen Wright Clayton
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American geneticist
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Why Is Ellen Wright Clayton Influential?
(Suggest an Edit or Addition)According to Wikipedia, Ellen Wright Clayton is an American Rosalind E. Franklin Professor of genetics and chairwoman of the Institute of Medicine Board at the Population Health and Public Health Practice who became a 2013 recipient of the David Rall Medal.
Ellen Wright Clayton's Published Works
Published Works
- A second generation human haplotype map of over 3.1 million SNPs (2007) (4567)
- Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations (2008) (636)
- Factors that prompted families to file medical malpractice claims following perinatal injuries. (1992) (486)
- Obstetricians' prior malpractice experience and patients' satisfaction with care. (1994) (407)
- Operational Implementation of Prospective Genotyping for Personalized Medicine: The Design of the Vanderbilt PREDICT Project (2012) (380)
- Return of genomic results to research participants: the floor, the ceiling, and the choices in between. (2014) (336)
- Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants: Updated Guidelines from a National Heart, Lung, and Blood Institute Working Group (2010) (324)
- Ethical, legal, and social implications of genomic medicine. (2003) (323)
- Hereditary hemochromatosis: gene discovery and its implications for population-based screening. (1998) (290)
- Informed consent for genetic research on stored tissue samples. (1995) (280)
- Recommendations for returning genomic incidental findings? We need to talk! (2013) (275)
- Privacy in the Genomic Era (2014) (223)
- Beyond myalgic encephalomyelitis/chronic fatigue syndrome: an IOM report on redefining an illness. (2015) (202)
- Principles of Human Subjects Protections Applied in an Opt‐Out, De‐identified Biobank (2010) (195)
- Guidelines on Forgoing Life-Sustaining Medical Treatment (2013) (179)
- Confronting commercial sexual exploitation and sex trafficking of minors. (2014) (177)
- Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US. (2017) (152)
- Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. (2016) (143)
- A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States (2015) (142)
- Newborn Screening Technology: Proceed With Caution (2006) (141)
- Adverse Effects of Vaccines (2011) (138)
- Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network (2012) (123)
- The legal risks of returning results of genomics research (2012) (113)
- Implications of disclosing individual results of clinical research. (2006) (99)
- A systematic literature review of individuals’ perspectives on privacy and genetic information in the United States (2018) (95)
- Informed Consent and Biobanks (2005) (95)
- Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children (2014) (94)
- Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making. (2013) (83)
- ISSCR Guidelines for Stem Cell Research and Clinical Translation: The 2021 update (2021) (82)
- The law of genetic privacy: applications, implications, and limitations (2019) (81)
- Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes (2015) (80)
- Identifiability in biobanks: models, measures, and mitigation strategies (2011) (79)
- Ethical, legal, and social implications of incorporating genomic information into electronic health records (2013) (78)
- Lack of interest by nonpregnant couples in population-based cystic fibrosis carrier screening. (1996) (76)
- Nonpigmented Serratia marcescens. (1966) (73)
- Attitudes of Clinicians Following Large-Scale Pharmacogenomics Implementation (2015) (72)
- Suing for Medical Malpractice (1993) (72)
- A Multi-Investigator/Institutional DNA Bank for AIDS-Related Human Genetic Studies: AACTG Protocol A5128 (2003) (68)
- Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience. (2011) (67)
- Research paper: Openness of patients' reporting with use of electronic records: psychiatric clinicians' views (2010) (67)
- Stakeholder engagement: a key component of integrating genomic information into electronic health records (2013) (66)
- Managing incidental genomic findings: legal obligations of clinicians (2013) (63)
- Incidental Findings in Genetics Research Using Archived DNA (2008) (61)
- The OHRP and SUPPORT. (2013) (61)
- Two large‐scale surveys on community attitudes toward an opt‐out biobank (2011) (58)
- Teaching about cystic fibrosis carrier screening by using written and video information. (1995) (54)
- American Academy of Pediatrics Committee on Bioethics: Infants with anencephaly as organ sources: ethical considerations. (1992) (54)
- Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium (2010) (53)
- Return of research results from genomic biobanks: cost matters (2012) (52)
- Development of an Early Identification and Response Model of Malpractice Prevention (1997) (50)
- COMMITTEE TO REVIEW ADVERSE EFFECTS OF VACCINES (2011) (49)
- A Game Theoretic Framework for Analyzing Re-Identification Risk (2015) (43)
- Parents' responses to vaccine information pamphlets. (1994) (41)
- Physicians' Perspectives on Receiving Unsolicited Genomic Results (2018) (39)
- Protecting Life While Preserving Liberty: Ethical Recommendations for Suicide Prevention With Artificial Intelligence (2018) (38)
- Eliciting Preferences on Secondary Findings: The Preferences Instrument for Genomic Secondary Results (PIGSR) (2016) (38)
- Should promethazine in liquid form be available without prescription? (1990) (36)
- Ethical Issues in Newborn Sequencing Research: The Case Study of BabySeq (2019) (34)
- A Review of the HHS Family Planning Program: Mission, Management, and Measurement of Results (2009) (34)
- Expanding Access to Large-Scale Genomic Data While Promoting Privacy: A Game Theoretic Approach. (2017) (33)
- Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings (2014) (33)
- Talking with parents before newborn screening. (2005) (33)
- The Complex Relationship of Genetics, Groups, and Health: What it Means for Public Health (2002) (31)
- Practical guidance on informed consent for pediatric participants in a biorepository. (2014) (30)
- Experimental Arrest of Cerebral Blood Flow in Human Subjects: The Red Wing Studies Revisited (2011) (30)
- Mapping the incidentalome: estimating incidental findings generated through clinical pharmacogenomics testing (2012) (30)
- What should the law say about disclosure of genetic information to relatives? (1998) (30)
- Navigating the research–clinical interface in genomic medicine: analysis from the CSER Consortium (2017) (30)
- Returning Results in the Genomic Era: Initial Experiences of the eMERGE Network (2020) (29)
- Genetic testing in children. (1997) (29)
- Removing the shadow of the law from the debate about genetic testing of children. (1995) (29)
- Insurance Coverage Policies for Pharmacogenomic and Multi-Gene Testing for Cancer (2018) (29)
- Biobanks: too long to wait for consent. (2009) (28)
- Issues in state newborn screening programs. (1992) (28)
- What should be the role of public health in newborn screening and prenatal diagnosis? (1999) (27)
- Privacy and Security in the Genomic Era (2014) (27)
- Currents in Contemporary Ethics (2010) (25)
- Parental Perspectives on a Pediatric Human Non-Subjects Biobank (2012) (25)
- False Positive Newborn Screening Results Are Not Always Benign (2010) (25)
- “Human Non-Subjects Research”: Privacy and Compliance (2010) (24)
- Is it time for a universal genetic forensic database? (2018) (23)
- Sociotechnical safeguards for genomic data privacy (2022) (22)
- Data re-identification: societal safeguards. (2013) (21)
- Screening and treatment of newborns. (1992) (21)
- Sterilization of Women Who Are Mentally Handicapped (1990) (21)
- What Patients and Their Relatives Think About Testing for BMPR2 (2008) (20)
- Erratum: Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine (American Journal of Human Genetics (2016) 98(6) (1067–1076) (S0002929716301069) (10.1016/j.ajhg.2016.04.011)) (2016) (17)
- Erratum: Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine (American Journal of Human Genetics (2016) 98(6) (1067–1076) (S0002929716301069) (10.1016/j.ajhg.2016.04.011)) (2016) (17)
- Parents’ attitudes toward consent and data sharing in biobanks: A multisite experimental survey (2018) (17)
- The Past, Present, and Future of Informed Consent in Research and Translational Medicine (2018) (16)
- Uncertainty of Prenatally Diagnosed Congenital Heart Disease: A Qualitative Study (2020) (16)
- Informed Consent for Genetic Research-Reply (1996) (16)
- Obstetricians' Prior Malpractice Experience and Patients' Satisfaction With Care (1995) (16)
- Return of research results from genomic biobanks: a call for data (2013) (15)
- Seeking Genomic Knowledge: The Case for Clinical Restraint. (2013) (15)
- Compensation under the National Childhood Vaccine Injury Act. (1990) (15)
- Father and mother know best: defining the liability of physicians for inadequate genetic counseling. (1978) (14)
- Health and kinship matter: Learning about direct-to-consumer genetic testing user experiences via online discussions (2019) (14)
- Panel Comment: Why the Use of Anonymous Samples for Research Matters (1995) (14)
- Religion, conscience, and controversial clinical practices. (2007) (14)
- So what are we going to do about research using clinical information and samples? (2004) (13)
- When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority. (2016) (13)
- How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others? (2015) (13)
- Why the Americans with Disabilities Act Matters for genetics. (2015) (13)
- Public Attitudes Toward Direct to Consumer Genetic Testing (2019) (13)
- Whose DNA is it anyway? Relationships between families and researchers. (1993) (13)
- Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience (2018) (13)
- Pharmacogenomics and Children (2003) (13)
- Patient awareness and approval for an opt-out genomic biorepository. (2013) (12)
- Responding to the sexual exploitation of minors. (2014) (12)
- Newborn Hearing ScreeningIssues in Legal Liability and Quality Assurance (1997) (12)
- Program Guidelines for Project Grants for Family Planning Services (2009) (12)
- Attitudes and Beliefs of Sports Medicine Providers to Sickle Cell Trait Screening of Student Athletes (2011) (12)
- Imagined Futures: Capturing the Benefits of Genome Sequencing for Society (2013) (11)
- Primum non nocere: the case against transplant for children with sickle cell anemia without progressive end-organ disease. (2017) (11)
- Balancing Expediency and Scientific Rigor in Severe Acute Respiratory Syndrome Coronavirus 2 Vaccine Development (2020) (11)
- Genetics and public health: informed consent beyond the clinical encounter (2000) (11)
- Solidifiers for oil spill response (1996) (10)
- Premature guidance about whole-genome sequencing. (2013) (10)
- Patient perspectives on variant reclassification after cancer susceptibility testing (2020) (10)
- Sickle Cell Trait Screening in Athletes: Pediatricians' Attitudes and Concerns (2011) (10)
- Pharmacogenomics and children: meeting the ethical challenges. (2003) (10)
- The role of distress in uptake and response to predisposition genetic testing: the BMPR2 experience. (2012) (10)
- Childhood Vaccine Exemptions: A Broader Perspective Is Required (2016) (10)
- It’s all in the timing: calibrating temporal penalties for biomedical data sharing (2018) (9)
- Does the law require reinterpretation and return of revised genomic results? (2021) (9)
- Conducting a large, multi-site survey about patients’ views on broad consent: challenges and solutions (2016) (9)
- Natural Settings Trials — Improving the Introduction of Clinical Genetic Tests (2004) (9)
- Patients with Ehlers–Danlos syndrome on the diagnostic odyssey: Rethinking complexity and difficulty as a hero's journey (2021) (9)
- ISSCR guidelines for the transfer of human pluripotent stem cells and their direct derivatives into animal hosts (2021) (9)
- Improving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines (2019) (9)
- How Can Law and Policy Advance Quality in Genomic Analysis and Interpretation for Clinical Care? (2020) (8)
- Online Pediatric Research: Addressing Consent, Assent, and Parental Permission (2020) (8)
- Through the lens of the sequence. (2001) (8)
- Children in Methamphetamine Homes: A Survey of Physicians Practicing in Southeast Tennessee (2007) (8)
- In support of mitochondrial replacement therapy (2019) (8)
- Planning the Genome Institute's Future (2003) (8)
- Enabling realistic health data re-identification risk assessment through adversarial modeling. (2021) (7)
- What Results Should Be Returned from Opportunistic Screening in Translational Research? (2020) (7)
- Improving Access to Medicines in Low-Income Countries: A Review of Mechanisms (2015) (7)
- Be Ready to Talk With Parents About Direct-to-Consumer Genetic Testing. (2019) (7)
- Sharing Individual Research Results with Biospecimen Contributors: Counterpoint (2012) (7)
- Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. (2016) (7)
- Dobbs and the future of health data privacy for patients and healthcare organizations (2022) (7)
- Analysis of conflict of interest policies among organizations producing clinical practice guidelines (2021) (7)
- Baby Aaron and the elders. (1999) (7)
- Patients' willingness to reconsider cancer genetic testing after initially declining: Mention it again (2020) (7)
- Biomedical Research Cohort Membership Disclosure on Social Media (2019) (7)
- Stewardship of patient genomic data: A policy statement of the American College of Medical Genetics and Genomics (ACMG). (2021) (6)
- Overview of Family Planning in the United States (2009) (6)
- The Implementation Chasm Hindering Genome-informed Health Care (2020) (6)
- From Rogers to Rivers: The Rights of the Mentally Ill to Refuse Medication (1987) (6)
- Ethical conflicts in translational genetic research: lessons learned from the eMERGE-III experience (2020) (6)
- Ethical and practical challenges to studying patients who opt out of large-scale biorepository research. (2013) (5)
- Do research participants share genomic screening results with family members? (2021) (5)
- Potential liability in cases of child abuse and neglect. (1997) (5)
- Using game theory to thwart multistage privacy intrusions when sharing data (2021) (5)
- Detecting the Presence of an Individual in Phenotypic Summary Data (2018) (5)
- Religious and spiritual issues in medical genetics (2009) (5)
- Commentary: What is Really at Stake in Baby K? A Response to Ellen Flannery (1995) (5)
- MALPRACTICE, PATIENT SATISFACTION, AND PHYSICIAN-PATIENT COMMUNICATION. AUTHORS' REPLIES (1995) (5)
- Exploring options for expanded newborn screening. (2005) (5)
- A Ray of Light About Frozen Embryos (1992) (4)
- Legal and Ethical Commentary: The Dangers of Reading Duty Too Broadly (1997) (4)
- The reckoning: The return of genomic results to 1444 participants across the eMERGE3 Network. (2022) (4)
- Genetics, public health, and the law (2000) (4)
- Balancing Expediency and Scientific Rigor in SARS-CoV-2 Vaccine Development. (2020) (4)
- Direct-to-consumer genetic testing: Prospective users’ attitudes toward information about ancestry and biological relationships (2021) (4)
- Disclosure of Genetic Risk Revealed in a Research Study. (2020) (4)
- A Survey of Overlapping Surgery Policies at U.S. Hospitals (2021) (4)
- Satisfaction With Obstetric Care: Relation to Neonatal Intensive Care (1998) (4)
- From Ventilators to Vaccines: Reframing the Ethics of Resource Allocation (2020) (4)
- Lessons to be learned from the move toward expanded newborn screening. (2009) (4)
- Combatting human trafficking in the United States: how can medical informatics help? (2020) (4)
- Key Expert Stakeholder Perceptions of the Law of Genomics: Identified Problems and Potential Solutions (2020) (4)
- Doping Doctors: The Influence of the Marketing Departments of Pharmaceutical Companies on Physician and Researcher Behavior in Japan (2016) (4)
- Salmeterol and inhaled corticosteroids in patients with persistent asthma. (2001) (4)
- The Public Perception of the #GeneEditedBabies Event Across Multiple Social Media Platforms: Observational Study (2022) (4)
- The web of relations: thinking about physicians and patients. (2006) (3)
- Evaluating pharmacogenetic tests: a case example. (2004) (3)
- Redefining Myalgic Encephalomyelitis/Chronic Fatigue Syndrome--Reply. (2015) (3)
- Let us ask better questions (2013) (3)
- Enrichment sampling for a multi-site patient survey using electronic health records and census data (2019) (3)
- Commercial Interests, the Technological Imperative, and Advocates: Three Forces Driving Genomic Sequencing in Newborns. (2018) (2)
- The Unbearable Requirement of Informed Consent (2019) (2)
- Diphtheria Toxoid–, Tetanus Toxoid–, and Acellular Pertussis–Containing Vaccines (2011) (2)
- COMMITTEE ON A COMPREHENSIVE REVIEW OF THE HHS OFFICE OF FAMILY PLANNING TITLE X PROGRAM (2009) (2)
- Clinical and ethical considerations in managing carrier detection. (2009) (2)
- A genetically augmented future (2018) (2)
- Risks of compulsory genetic databases—Response (2019) (2)
- The Ethical Health Lawyer: An Empirical Assessment of Moral Decision Making (2008) (2)
- Integrating Genetics into Public Health Policy and Practice (2007) (2)
- Anonymous genetic testing: reply to Mehlman et al. (1996) (2)
- Introduction: The Crucial Role of Law in Supporting Successful Translation of Genomics into Clinical Care (2020) (2)
- Can Clinical Genetics Laboratories be Sued for Medical Malpractice? (2020) (2)
- A Time for Gratitude (2000) (2)
- Publisher Correction: Sociotechnical safeguards for genomic data privacy (2022) (1)
- Implications for Existing Law/Regulations (2005) (1)
- Injection-Related Adverse Events (2011) (1)
- Contents, Vol. 8, Supplement 1, 1993 (1993) (1)
- Population Research and Voluntary Family Planning Programs (2009) (1)
- State-offered ethnically targeted reproductive genetic testing (2015) (1)
- Chapter 6 – Legal Aspects of Health Applications of Genomics (2016) (1)
- Prioritizing Attention over Privacy: Reddit Users are Implicitly Incentivized to Reveal Their Face When Discussing Their Direct-to-Consumer Genetic Test Results (Preprint) (2021) (1)
- Protecting research data of publicly revealing participants (2021) (1)
- Evaluating Biological Mechanisms of Adverse Events (2011) (1)
- Reproductive genetic testing: regulatory and liability issues. (1993) (1)
- Privacy and Confidentiality in Epidemiology: Special Challenges of Using Information Obtained without Informed Consent (2009) (1)
- Ethical Issues in Genetics and Infectious Diseases Research: An Interdisciplinary Expert Review. (2021) (1)
- Patients and Biobanks (2006) (1)
- Returning integrated genomic risk and clinical recommendations: the eMERGE study. (2023) (1)
- Practical Considerations for Reinterpretation of Individual Genetic Variants. (2023) (1)
- Are You and Your Waiting Room's Televised "Expert" Saying the Same Thing? (1993) (1)
- Lessons (re)learned from cystic fibrosis carrier screening. (1999) (1)
- The Death of a Baby: Neither Forgiven Nor Forgotten-Reply (1992) (1)
- The dispersion of genetic technologies and the law. (1995) (1)
- Title X Goals, Priorities, and Accomplishments (2009) (1)
- Legal Aspects of Health Applications of Genomics (2016) (1)
- Game theory for privacy-preserving sharing of genomic data (2020) (1)
- Afterword: Voices and Violence-- A Dialogue (1990) (1)
- A game theoretic approach to balance privacy risks and familial benefits (2023) (0)
- Encomium for Karen Rothenberg (2020) (0)
- TABLE 10-6, Summary of Epidemiologic Assessments, Mechanistic Assessments, and Causality Conclusions for Diphtheria Toxoid (DT)–, Tetanus Toxoid (TT)–, and Acellular Pertussis (aP)–Containing Vaccines (2011) (0)
- TABLE 6-10, Studies Included in the Weight of Epidemiologic Evidence for Live Attenuated Influenza Vaccine and Asthma Exacerbation or Reactive Airway Disease Episodes in Persons 5 Years of Age or Older (2011) (0)
- Support Title X and Family Planning (2012) (0)
- Podcast: Vaccines—Exactly How Safe Are They? (2011) (0)
- Newborn screening and whole genome sequencing: which way forward? (2014) (0)
- In support of mitochondrial replacement therapy (2019) (0)
- Summary of Previous Title X Evaluations and Reviews (2009) (0)
- Planning the Genome Institute's future [1] (multiple letters) (2003) (0)
- Family Planning Program Assessment Rating Tool (2009) (0)
- Bioethics of Genetic and Genomic Testing (2017) (0)
- Impact of returning unsolicited genomic results to nongenetic health care providers in the eMERGE III Network. (2022) (0)
- Genetic testing is different. Essay review. (2001) (0)
- Editorial Statement (2001) (0)
- Sociotechnical safeguards for genomic data privacy (2022) (0)
- Title X–and OPA-Funded Research (2009) (0)
- Podcast: How Safe is Vaccination? Answers For Worried Parents (2011) (0)
- Measurement of Quality in the Title X Family Planning Program (2009) (0)
- INFORMED CONSENT FOR GENETIC RESEARCH. AUTHOR'S REPLY (1996) (0)
- Improving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines (2019) (0)
- A Scalable Tool for Realistic Health Data Re-identification Risk Assessment (2022) (0)
- 2009 Holocaust Lecture Series: Ellen Wright Clayton: "Avoiding the Evils of Eugenics in a Genomic Age" (2009) (0)
- Medicolegal Aspects of Prenatal Diagnosis (2021) (0)
- Ethical conflicts in translational genetic research: lessons learned from the eMERGE-III experience (2020) (0)
- Notes on Contributors (2011) (0)
- Managing reidentification risks while providing access to the All of Us research program. (2023) (0)
- Bioethics of Genetic Testing (2001) (0)
- Outcomes of Returning Medically Actionable Genomic Results in Pediatric Research (2022) (0)
- Biospecimen Exceptionalism in the ANPRM (2014) (0)
- Title X Family Planning Program Regulations (2009) (0)
- Response to Patryn and Zagaja (2016) (0)
- Religion and Genomics: "Genomics, Religion, and Communication: Traversing Perspectives, Vocabularies, and Findings" (2008) (0)
- IDIOPATHICHYPERCALCURIA INA CHILD (1964) (0)
- Reviewer Acknowledgment (2009) (0)
- Implicit Incentives Among Reddit Users to Prioritize Attention Over Privacy and Reveal Their Faces When Discussing Direct-to-Consumer Genetic Test Results: Topic and Attention Analysis (2022) (0)
- Committee Site Visits (2009) (0)
- Attaining Majority in Research: Re-contact for Consent to Continued Participation? (2016) (0)
- Family Planning Annual Report Data Elements (2009) (0)
- Reviewer Acknowledgment 2016 (2017) (0)
- Legal aspects of medical genetics in Wisconsin. (1985) (0)
- Foreword (2001) (0)
- B Introduction: Newborn Screening: Storage and Access for Research? (2007) (0)
- Organization, Funding, and Management of the Title X Program (2009) (0)
- Publisher Correction: Sociotechnical safeguards for genomic data privacy (2022) (0)
- Genetic research in the global community globalization and human rights: bioethics (2004) (0)
- Screening for Treatable Disorders (1993) (0)
- NIH workshop statement. (1993) (0)
- Correspondence on “Exploring the motivations of research participants who chose not to learn medically actionable secondary findings about themselves” by Schupmann et al (2021) (0)
- A genetically augmented future (2018) (0)
- The dispersion of genetic technologies and the law. (1995) (0)
- Reviewer Acknowledgment (2008) (0)
- Genetics in the Courts. Henry M. Butzel (1988) (0)
- Measles mumps and rubella vaccine (2011) (0)
- Mapping Parents’ Journey Following Prenatal Diagnosis of Congenital Heart Disease (T315C) (2021) (0)
- Correction to: Dobbs and the future of health data privacy for patients and healthcare organizations (2022) (0)
- Causality Conclusion Tables (2011) (0)
- Ten fingers, ten toes: newborn screening for untreatable disorders. (2009) (0)
- Collection of Data to Measure Program Outcomes (2009) (0)
- Prioritizing Attention over Privacy: Analysis of Face Image Posting Behavior in Online Direct-to-Consumer Genetic Testing Forum (Preprint) (2021) (0)
- Testing Teens: A Commentary (2008) (0)
- LGBTQ+ Perspectives on Conducting Genomic Research on Sexual Orientation and Gender Identity (2022) (0)
- Genetics and Ethics in Pediatrics (2013) (0)
- Avoiding Liability and Other Legal Land Mines in the Evolving Genomics Landscape. (2022) (0)
- JME volume 48 issue 1 Cover and Front matter (2020) (0)
- Genetic Testing Is Different (2001) (0)
- A world less silent: celebrating Jay Katz's contributions to law, medicine, and ethics. Proceedings of a meeting to honor Jay Katz. October 15, 2004. New Haven, Connecticut, USA. (2006) (0)
- How to Achieve Privacy in Large Diverse Health Systems (2022) (0)
- Hepatitis A vaccine (2011) (0)
- Pediatrics ethics: A view from the United States (1996) (0)
- What Should We Be Asking of Informed Consent? (2020) (0)
- Physicians’ perspectives on receiving unsolicited genomic results (2018) (0)
- Recent notable HIPAA breach violation cases as reported by the U.S. Department of Health and Human Services. (2015) (0)
- List of Adverse Events (2011) (0)
- Program Management and Administration (2009) (0)
- Mapping parents' journey following prenatal diagnosis of CHD: a qualitative study. (2022) (0)
- Malpractice, Patient Satisfaction, and Physician-Patient Communication-Reply (1995) (0)
- Human papillomavirus vaccine (2011) (0)
- Biobanks, governance, and informed consent and individual control - a view from the United States (2015) (0)
- Human-Centered Design to Address Biases in Artificial Intelligence (2023) (0)
- Defining human life: Medical, legal, and ethical considerations. Margery W. Shaw and Edward Doudera (eds) Ann Arbor, Michigan: AUPHA Press. 1983 (1984) (0)
- The experiences and identity issues of men with intellectual disabilities who sexually offend against women. (2010) (0)
- Intellectual Conflicts of Interest Among Pulmonary and Critical Care Clinical Practice Guidelines (0)
- A Representativeness-informed Model for Research Record Selection from Electronic Medical Record Systems (2022) (0)
- Worldwide Spill Response Strategy (1994) (0)
- Index to Volume 22 (1997) (0)
- Response (2009) (0)
- JOURNAL: INDEX OF AUTHORS, 1965 (1965) (0)
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