Irene Higginson | Academic Influence

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Irene Higginson

Philosophy

#2734

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#4582

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#755

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#1281

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Philosophy

Irene Higginson's Degrees

PhD Palliative Care King's College London
Masters Health Services Research University of Oxford
Bachelors Psychology University of Oxford

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Why Is Irene Higginson Influential?

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According to Wikipedia, Irene J. Higginson is a British professor, head of department and the director of King's College London's Cicely Saunders Institute. Higginson has a medical degree from the University of Nottingham.

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Irene Higginson's Published Works

Number of citations in a given year to any of this author's works

Total number of citations to an author for the works they published in a given year. This highlights publication of the most important work(s) by the author

Published Works

A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease. (2006) (1046)
Using quality of life measures in the clinical setting (2001) (902)
Factors influencing death at home in terminally ill patients with cancer: systematic review (2006) (881)
Place of care in advanced cancer: a qualitative systematic literature review of patient preferences. (2000) (845)
Systematic Reviews (1999) (840)
The prevalence of symptoms in end-stage renal disease: a systematic review. (2007) (778)
Heterogeneity and changes in preferences for dying at home: a systematic review (2013) (679)
Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage: the Lancet Commission report (2017) (638)
Are quality of life measures patient centred? (2001) (589)
Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers? (2003) (510)
Where people die (1974—2030): past trends, future projections and implications for care (2008) (500)
Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group. (1999) (491)
Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review (1998) (448)
An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial. (2014) (444)
Better palliative care for older people (2004) (423)
What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness (2003) (407)
Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. (2012) (387)
How many people will need palliative care in 2040? Past trends, future projections and implications for services (2017) (384)
Do hospital-based palliative teams improve care for patients or families at the end of life? (2002) (358)
What Is the Evidence That Palliative Care Teams Improve Outcomes for Cancer Patients and Their Families? (2010) (339)
Integration of oncology and palliative care: a Lancet Oncology Commission. (2018) (335)
How many people need palliative care? A study developing and comparing methods for population-based estimates (2014) (319)
Palliative care: views of patients and their families. (1990) (295)
The escalating global burden of serious health-related suffering: projections to 2060 by world regions, age groups, and health conditions (2019) (293)
Are there differences in the prevalence of palliative care-related problems in people living with advanced cancer and eight non-cancer conditions? A systematic review. (2014) (290)
Effective methods of giving information in cancer: a systematic literature review of randomized controlled trials. (2001) (288)
Development and validation of a core outcome measure for palliative care: the palliative care outcome scale (1999) (277)
Evaluating complex interventions in End of Life Care: the MORECare Statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews (2013) (259)
Implementing patient-reported outcome measures in palliative care clinical practice: A systematic review of facilitators and barriers (2014) (253)
Effectiveness and cost‐effectiveness of home palliative care services for adults with advanced illness and their caregivers (2013) (253)
Symptoms in advanced renal disease: a cross-sectional survey of symptom prevalence in stage 5 chronic kidney disease managed without dialysis. (2007) (251)
Where do cancer patients die? Ten-year trends in the place of death of cancer patients in England (1998) (250)
Experimental and quasi-experimental designs (2011) (245)
Measurement of breathlessness in advanced disease: a systematic review. (2007) (235)
Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. (2010) (233)
Communication training for health professionals who care for patients with cancer: a systematic review of effectiveness (2004) (230)
Measuring Symptoms in Terminal Cancer: Are Pain and Dyspnoea Controlled? (1989) (228)
Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups (2008) (223)
Understanding breathlessness: cross-sectional comparison of symptom burden and palliative care needs in chronic obstructive pulmonary disease and cancer. (2010) (216)
Neuromuscular electrical stimulation for muscle weakness in adults with advanced disease. (2016) (215)
Benzodiazepines for the relief of breathlessness in advanced malignant and non-malignant diseases in adults. (2016) (212)
Are bereaved family members a valid proxy for a patient's assessment of dying? (1994) (207)
Palliative care: the solid facts (2004) (206)
The Role and Response of Palliative Care and Hospice Services in Epidemics and Pandemics: A Rapid Review to Inform Practice During the COVID-19 Pandemic (2020) (198)
Antidepressants for depression in physically ill people. (2010) (196)
Validity of the support team assessment schedule: do staffs' ratings reflect those made by patients or their families? (1993) (195)
Outcome measures in palliative care for advanced cancer patients: a review. (1997) (192)
Patterns of dying: palliative care for non-malignant disease. (2004) (191)
What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death (2017) (190)
Improving end-of-life care for patients with chronic heart failure: “Let’s hope it’ll get better, when I know in my heart of hearts it won’t” (2007) (190)
Dying with cancer, living well with advanced cancer. (2008) (185)
Reversal of the British trends in place of death: Time series analysis 2004–2010 (2012) (180)
Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness. (2008) (175)
Using satisfaction to measure the quality of palliative care: a review of the literature. (2003) (169)
Palliative care in hospital, hospice, at home: results from a systematic review. (2002) (168)
The level of need for palliative care: a systematic review of the literature (2000) (167)
Characteristics, Symptom Management, and Outcomes of 101 Patients With COVID-19 Referred for Hospital Palliative Care (2020) (167)
The development and validation of the King's Brief Interstitial Lung Disease (K-BILD) health status questionnaire (2012) (165)
Child and adolescent mental health service use. HoNOSCA as an outcome measure. (2000) (162)
Experience of persistent psychological symptoms and perceived stigma among people with HIV on antiretroviral therapy (ART): a systematic review. (2014) (160)
Is a specialist breathlessness service more effective and cost-effective for patients with advanced cancer and their carers than standard care? Findings of a mixed-method randomised controlled trial (2014) (159)
Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale (2010) (157)
Communication training for health professionals who care for patients with cancer: a systematic review of training methods (2005) (154)
Non-pharmacological interventions for breathlessness in advanced stages of malignant and non-malignant diseases. (2008) (154)
Meeting the communication and information needs of chronic heart failure patients. (2008) (154)
Changing Patterns in Place of Cancer Death in England: A Population-Based Study (2013) (152)
A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS) (2019) (152)
Does palliative care improve outcomes for patients with HIV/AIDS? A systematic review of the evidence (2005) (151)
Dying at home – is it better: A narrative appraisal of the state of the science (2013) (146)
Caregiver assessment of patients with advanced cancer: concordance with patients, effect of burden and positivity (2008) (144)
Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: does it make a difference? A systematic review. (2015) (142)
Antidepressants for the treatment of depression in palliative care: systematic review and meta-analysis (2011) (140)
The palliative care needs for fibrotic interstitial lung disease: A qualitative study of patients, informal caregivers and health professionals (2013) (139)
Do social factors affect where patients die: an analysis of 10 years of cancer deaths in England. (1999) (136)
Is short-term palliative care cost-effective in multiple sclerosis? A randomized phase II trial. (2009) (136)
Do religious or spiritual beliefs influence bereavement? A systematic review (2007) (135)
EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services – Recommendations from the European Association for Palliative Care (EAPC) Task Force on Outcome Measurement (2016) (133)
Interventions for improving palliative care for older people living in nursing care homes. (2011) (131)
The measurement of spirituality in palliative care and the content of tools validated cross-culturally: a systematic review. (2011) (127)
Palliative care and management of troublesome symptoms for people with chronic obstructive pulmonary disease (2017) (126)
Is the qualitative research interview an acceptable medium for research with palliative care patients and carers? (2008) (126)
Disability in activities of daily living among adults with cancer: A systematic review and meta-analysis. (2017) (125)
WITHDRAWN: Non-pharmacological interventions for breathlessness in advanced stages of malignant and non-malignant diseases. (2013) (125)
Caring for a person in advanced illness and suffering from breathlessness at home: Threats and resources (2009) (125)
Textbook of Palliative Medicine (2009) (125)
Psychological distress in cancer from survivorship to end of life care: prevalence, associated factors and clinical implications. (2010) (124)
Working with ambivalence: informal caregivers of patients at the end of life (2001) (124)
Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service (2010) (121)
Developing primary palliative care (2004) (121)
Palliative care in sub-Saharan Africa (2005) (120)
Research into palliative care in sub-Saharan Africa. (2013) (118)
Evidence based palliative care (1999) (115)
The development of evidence-based European guidelines on the management of depression in palliative cancer care. (2011) (115)
Research methods in palliative care. (2007) (115)
Improving palliative care for cancer. (2003) (114)
Spiritual needs in health care (2004) (114)
The lived experience of breathlessness and its implications for care: a qualitative comparison in cancer, COPD, heart failure and MND (2011) (114)
Symptom prevalence and quality of life of patients with end-stage liver disease: A systematic review and meta-analysis (2018) (113)
Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study (2015) (113)
Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help (2011) (112)
Neuromuscular electrical stimulation to improve exercise capacity in patients with severe COPD: a randomised double-blind, placebo-controlled trial. (2016) (110)
Trajectories of illness in stage 5 chronic kidney disease: a longitudinal study of patient symptoms and concerns in the last year of life. (2011) (110)
The use of opioid analgesia in end-stage renal disease patients managed without dialysis: recommendations for practice. (2007) (110)
Challenges to conducting research with older people living in nursing homes (2009) (109)
Symptom assessment in palliative care: a need for international collaboration. (2008) (109)
End‐Stage Renal Disease: A New Trajectory of Functional Decline in the Last Year of Life (2011) (109)
Home palliative care for terminal cancer patients: a survey on the final week of life (1999) (109)
Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. (2012) (108)
Symptoms in the month before death for stage 5 chronic kidney disease patients managed without dialysis. (2010) (107)
Clinical Audit in Palliative Care (1993) (106)
The need for palliative care for patients with non-cancer diseases: a review of the evidence. (2001) (106)
Quality of life and survival prediction in terminal cancer patients (2004) (105)
The etiology and management of intractable breathlessness in patients with advanced cancer: a systematic review of pharmacological therapy (2008) (105)
Does the patient‐held record improve continuity and related outcomes in cancer care: a systematic review (2007) (105)
Validation and clinical application of the german version of the palliative care outcome scale. (2005) (105)
Discovering the hidden benefits of cognitive interviewing in two languages: The first phase of a validation study of the Integrated Palliative care Outcome Scale (2015) (105)
Response and role of palliative care during the COVID-19 pandemic: A national telephone survey of hospices in Italy (2020) (104)
Managing the supportive care needs of those affected by COVID-19 (2020) (104)
Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service. (2004) (104)
The prevalence and burden of symptoms amongst cancer patients attending palliative care in two African countries. (2011) (103)
Depression assessment and classification in palliative cancer patients: a systematic literature review (2009) (102)
Symptom Prevalence and Severity in People Severely Affected by Multiple Sclerosis (2006) (102)
Living with motor neurone disease: lives, experiences of services and suggestions for change. (2005) (101)
Local preferences and place of death in regions within England (2011) (100)
Palliative care for non-cancer patients (2001) (100)
Improving supportive and palliative care for adults with cancer: Research Evidence (2004) (100)
Pain experienced by lung cancer patients: a review of prevalence, causes and pathophysiology. (2004) (100)
Culture and End of Life Care: A Scoping Exercise in Seven European Countries (2012) (99)
Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities (2003) (98)
Social and clinical determinants of preferences and their achievement at the end of life: prospective cohort study of older adults receiving palliative care in three countries (2017) (98)
Social and clinical determinants of preferences and their achievement at the end of life: prospective cohort study of older adults receiving palliative care in three countries (2017) (98)
Effectiveness of palliative day care in improving pain, symptom control, and quality of life. (2003) (98)
Is antiretroviral therapy associated with symptom prevalence and burden? (2006) (98)
Living with breathlessness: A survey of caregivers of breathless patients with lung cancer or heart failure (2013) (98)
Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers (2017) (95)
Feasibility, acceptability and potential effectiveness of Dignity Therapy for older people in care homes: A phase II randomized controlled trial of a brief palliative care psychotherapy (2012) (94)
Socioeconomic position and use of healthcare in the last year of life: A systematic review and meta-analysis (2019) (94)
A novel approach to enhancing hope in patients with advanced cancer: a randomised phase II trial of dignity therapy (2011) (94)
Effect of a palliative home care team on hospital admissions among patients with advanced cancer (2003) (93)
Quality of life measures for the palliative care of people severely affected by multiple sclerosis: a systematic review (2004) (93)
Terminal cancer patients and timing of referral to palliative care: a multicenter prospective cohort study. Italian Cooperative Research Group on Palliative Medicine. (1999) (93)
Specialist Palliative Care is More Than Drugs: A Retrospective Study of ILD Patients (2011) (92)
Palliative care for patients with advanced fibrotic lung disease: a randomised controlled phase II and feasibility trial of a community case conference intervention (2015) (92)
The impact of disease-related symptoms and palliative care concerns on health-related quality of life in multiple myeloma: a multi-centre study (2016) (92)
Palliative Care and the Management of Common Distressing Symptoms in Advanced Cancer: Pain, Breathlessness, Nausea and Vomiting, and Fatigue (2020) (92)
Priorities for treatment, care and information if faced with serious illness: A comparative population-based survey in seven European countries (2014) (92)
Interventions to improve symptoms and quality of life of patients with fibrotic interstitial lung disease: a systematic review of the literature (2012) (91)
The use of two common palliative outcome measures in clinical care and research: A systematic review of POS and STAS (2011) (91)
A multicenter evaluation of cancer pain control by palliative care teams. (1997) (91)
"I will do it if it will help others:" motivations among patients taking part in qualitative studies in palliative care. (2008) (90)
Efficacy of acupuncture in asthma: systematic review and meta-analysis of published data from 11 randomised controlled trials (2002) (89)
Interactive technologies and videotapes for patient education in cancer care: systematic review and meta-analysis of randomised trials (2006) (89)
Cultural meanings of pain: a qualitative study of Black Caribbean and White British patients with advanced cancer (2008) (89)
Symptoms and Quality of Life in Late Stage Parkinson Syndromes: A Longitudinal Community Study of Predictive Factors (2012) (89)
Experiences of breathlessness: A systematic review of the qualitative literature (2007) (89)
The value of cognitive interviewing techniques in palliative care research (2007) (88)
Reversal of English trend towards hospital death in dementia: a population-based study of place of death and associated individual and regional factors, 2001–2010 (2014) (88)
Prevalence of symptoms in patients with multiple myeloma: a systematic review and meta‐analysis (2016) (88)
Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature (2012) (88)
Breathlessness, functional status, distress, and palliative care needs over time in patients with advanced chronic obstructive pulmonary disease or lung cancer: a cohort study. (2014) (88)
Liverpool Care Pathway for patients with cancer in hospital: a cluster randomised trial (2014) (88)
Place and Cause of Death in Centenarians: A Population-Based Observational Study in England, 2001 to 2010 (2014) (87)
The clinical and cost effectiveness of a Breathlessness Intervention Service for patients with advanced non-malignant disease and their informal carers: mixed findings of a mixed method randomised controlled trial (2016) (87)
Emergency department attendance by patients with cancer in their last month of life: a systematic review and meta-analysis. (2015) (86)
Effectiveness of two palliative support teams. (1992) (86)
Psychosocial issues in palliative care: the patient, the family, and the process and outcome of care. (1995) (86)
The development and validation of the King's Sarcoidosis Questionnaire for the assessment of health status (2012) (86)
Researching breathlessness in palliative care: consensus statement of the National Cancer Research Institute Palliative Care Breathlessness Subgroup (2009) (86)
Symptom prevalence, severity and palliative care needs assessment using the Palliative Outcome Scale: A cross-sectional study of patients with Parkinson’s disease and related neurological conditions (2013) (86)
Recommendations for managing missing data, attrition and response shift in palliative and end-of-life care research: Part of the MORECare research method guidance on statistical issues (2013) (84)
What are the perceived needs and challenges of informal caregivers in home cancer palliative care? Qualitative data to construct a feasible psycho-educational intervention (2012) (84)
The impact of a breathlessness intervention service (BIS) on the lives of patients with intractable dyspnea: A qualitative phase 1 study (2006) (83)
Accounts of carers' satisfaction with health care at the end of life: A comparison of first generation black Caribbeans and white patients with advanced disease (2001) (83)
The experience of breathlessness: the social course of chronic obstructive pulmonary disease. (2010) (82)
Communication, information and support for adults with malignant cerebral glioma : a systematic literature review (2002) (81)
`Fighting for everything': service experiences of people severely affected by multiple sclerosis (2007) (81)
Living and dying with dignity: a qualitative study of the views of older people in nursing homes. (2009) (81)
Holistic services for people with advanced disease and chronic breathlessness: a systematic review and meta-analysis (2018) (81)
Variations in the quality and costs of end-of-life care, preferences and palliative outcomes for cancer patients by place of death: the QUALYCARE study (2010) (80)
Identifying neuropathic pain in patients with head and neck cancer: use of the Leeds Assessment of Neuropathic Symptoms and Signs Scale. (2003) (80)
"I know he controls cancer": the meanings of religion among Black Caribbean and White British patients with advanced cancer. (2008) (80)
End-of-life care across Southern Europe: a critical review of cultural similarities and differences between Italy, Spain and Portugal. (2012) (80)
‘Best practice’ in developing and evaluating palliative and end-of-life care services: A meta-synthesis of research methods for the MORECare project (2013) (79)
Communication in end-of-life cancer care: a comparison of team assessments in three European countries. (2002) (78)
Quality of life among patients receiving palliative care in South Africa and Uganda: a multi-centred study (2011) (78)
Comparative Analysis of Informal Caregiver Burden in Advanced Cancer, Dementia, and Acquired Brain Injury. (2015) (77)
‘I wish I knew more ...’ the end-of-life planning and information needs for end-stage fibrotic interstitial lung disease: views of patients, carers and health professionals (2012) (77)
Antidepressants for the treatment of depression in neurological disorders: a systematic review and meta-analysis of randomised controlled trials (2011) (77)
Meeting information needs of patients with incurable progressive disease and their families in South Africa and Uganda: multicentre qualitative study (2009) (77)
Paddington Complexity Scale and Health of the Nation Outcome Scales for Children and Adolescents (1999) (76)
The clinical epidemiology of depression in palliative care and the predictive value of somatic symptoms: Cross-sectional survey with four-week follow-up (2011) (76)
A Systematic Review of the Use of the Palliative Care Outcome Scale and the Support Team Assessment Schedule in Palliative Care. (2015) (76)
A critical review of advance directives in Germany: attitudes, use and healthcare professionals' compliance. (2012) (75)
Loss and change: experiences of people severely affected by multiple sclerosis (2007) (74)
End-of-life care—what do cancer patients want? (2014) (73)
What issues matter most to people with multiple myeloma and how well are we measuring them? A systematic review of quality of life tools (2012) (72)
End-of-life care: lessons from other nations. (2005) (72)
Identifying psychological distress at key stages of the cancer illness trajectory: a systematic review of validated self-report measures. (2011) (71)
A framework for complexity in palliative care: A qualitative study with patients, family carers and professionals (2018) (71)
Individual breathlessness trajectories do not match summary trajectories in advanced cancer and chronic obstructive pulmonary disease: results from a longitudinal study (2010) (70)
Needs assessments in palliative care: an appraisal of definitions and approaches used. (2007) (70)
The relationship between patient characteristics and carer psychological status in home palliative cancer care (2003) (69)
Definition, categorization, and terminology of episodic breathlessness: consensus by an international Delphi survey. (2014) (68)
Developing a model of short-term integrated palliative and supportive care for frail older people in community settings: perspectives of older people, carers and other key stakeholders (2016) (68)
Effectiveness of a hand-held fan for breathlessness: a randomised phase II trial (2010) (68)
Systematic review of specialist palliative day-care for adults with cancer (2005) (67)
Support in the community for people with dementia and their carers: a comparative outcome study of specialist mental health service interventions (2003) (67)
Clinical Effectiveness and Safety of Acupuncture in the Treatment of Irradiation-Induced Xerostomia in Patients with Head and Neck Cancer: A Systematic Review (2010) (67)
Understanding what matters most to people with multiple myeloma: a qualitative study of views on quality of life (2014) (66)
MORECare research methods guidance development: Recommendations for ethical issues in palliative and end-of-life care research (2013) (66)
Bioelectrical impedance phase angle relates to function, disease severity and prognosis in stable chronic obstructive pulmonary disease. (2015) (65)
Relationship between three palliative care outcome scales (2004) (64)
Priorities and preferences for end of life care in England, Wales and Scotland. (2003) (64)
The Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic Review and Meta-analysis. (2017) (64)
Public health and palliative care. (2005) (63)
‘My body's falling apart.’ Understanding the experiences of patients with advanced multimorbidity to improve care: serial interviews with patients and carers (2014) (62)
Outcome measurement in palliative care: The Essentials (2014) (62)
Evaluation of a new model of short-term palliative care for people severely affected with multiple sclerosis: a randomised fast-track trial to test timing of referral and how long the effect is maintained (2011) (62)
Factors associated with aggressive end of life cancer care (2015) (62)
Effectiveness of topical administration of opioids in palliative care: a systematic review. (2009) (61)
The Real-World Problem of Care Coordination: A Longitudinal Qualitative Study with Patients Living with Advanced Progressive Illness and Their Unpaid Caregivers (2014) (61)
The Selection and Use of Outcome Measures in Palliative and End-of-Life Care Research: The MORECare International Consensus Workshop (2013) (61)
MANAGING BEREAVEMENT IN THE CLASSROOM: A CONSPIRACY OF SILENCE? (2003) (61)
Coordination of care for individuals with advanced progressive conditions: a multi-site ethnographic and serial interview study. (2013) (61)
Maintaining dignity for residents of care homes: a qualitative study of the views of care home staff, community nurses, residents and their families. (2014) (60)
Randomised clinical trial of early specialist palliative care plus standard care versus standard care alone in patients with advanced cancer: The Danish Palliative Care Trial (2017) (59)
Research challenges in palliative and end of life care (2016) (59)
Episodic and continuous breathlessness: a new categorization of breathlessness. (2013) (58)
Cancer Pain: Cancer pain epidemiology: a systematic review (2003) (58)
Systematic review of the primary research on minority ethnic groups and end-of-life care from the United Kingdom. (2012) (57)
PRISMA: a pan-European co-ordinating action to advance the science in end-of-life cancer care. (2010) (57)
Palliative day care: what do services do? (2000) (57)
Opioid prescribing for cancer pain during the last 3 months of life: associated factors and 9-year trends in a nationwide United Kingdom cohort study. (2012) (57)
Optimal approaches to the health economics of palliative care: report of an international think tank. (2009) (57)
Study protocol: delayed intervention randomised controlled trial within the Medical Research Council (MRC) Framework to assess the effectiveness of a new palliative care service (2006) (57)
Patient reports of symptoms and their treatment at three palliative care projects servicing individuals with HIV/AIDS. (2005) (57)
Place of death, and its relation with underlying cause of death, in Parkinson’s disease, motor neurone disease, and multiple sclerosis: A population-based study (2013) (56)
Prevalence, burden, and correlates of physical and psychological symptoms among HIV palliative care patients in sub-Saharan Africa: an international multicenter study. (2012) (56)
‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall) (2021) (56)
Integration of oncology and palliative care. (2018) (56)
The gap between policy and practice: a systematic review of patient-centred care interventions in chronic heart failure (2015) (56)
Pharmacological treatment of refractory breathlessness (2009) (56)
A tale of two cities: factors affecting place of cancer death in London and New York. (2007) (56)
A Systematic Review of End-of-Life Care Communication Skills Training for Generalist Palliative Care Providers: Research Quality and Reporting Guidance. (2017) (55)
Psychological well-being and quality of care: a factor-analytic examination of the palliative care outcome scale. (2010) (55)
Patterns and predictors of place of cancer death for the oldest old (2005) (55)
Availability of essential drugs for managing HIV-related pain and symptoms within 120 PEPFAR-funded health facilities in East Africa: A cross-sectional survey with onsite verification (2014) (55)
Psychological, social and spiritual distress at the end of life in heart failure patients (2007) (55)
Dying to be home? Preferred location of death of first-generation black Caribbean and native-born white patients in the United Kingdom. (2004) (55)
Randomised controlled trial of a new palliative care service: Compliance, recruitment and completeness of follow-up (2008) (55)
Episodic breathlessness in patients with advanced disease: a systematic review. (2013) (54)
Reporting of clinically diagnosed dementia on death certificates: retrospective cohort study (2016) (54)
The changing demographics of inpatient hospice death: Population-based cross-sectional study in England, 1993–2012 (2016) (53)
Palliative care for patients with severe covid-19 (2020) (53)
Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia (2017) (53)
How common are palliative care needs among older people who die in the emergency department? (2010) (53)
If you had less than a year to live, would you want to know? A seven‐country European population survey of public preferences for disclosure of poor prognosis (2013) (52)
How can a measure improve assessment and management of symptoms and concerns for people with dementia in care homes? A mixed-methods feasibility and process evaluation of IPOS-Dem (2018) (52)
Measurement of dyspnoea in the clinical rather than the research setting (2008) (52)
Benzodiazepines for the relief of breathlessness in advanced malignant and non-malignant diseases in adults. (2010) (52)
The Challenges of Caring for People Dying From COVID-19: A Multinational, Observational Study (CovPall) (2021) (52)
Influences on Care Preferences of Older People with Advanced Illness: A Systematic Review and Thematic Synthesis (2018) (51)
A Phase II randomised controlled trial assessing the feasibility, acceptability and potential effectiveness of Dignity Therapy for older people in care homes: Study protocol (2009) (51)
The need for palliative care in Ireland: a population-based estimate of palliative care using routine mortality data, inclusive of nonmalignant conditions. (2015) (51)
A comparison of two measures of quality of life: their sensitivity and validity for patients with advanced cancer (1994) (51)
How Should Nations Measure the Quality of End‐of‐Life Care for Older Adults? Recommendations for an International Minimum Data Set (2006) (51)
Integration of palliative care throughout HIV disease. (2012) (51)
To be involved or not to be involved: A survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe (2013) (50)
Accuracy of prognosis estimates by four palliative care teams: a prospective cohort study (2002) (50)
A research study to identify facilitators and barriers to outcome measure implementation. (2005) (50)
Evaluation of palliative care: steps to quality assurance? (1989) (50)
An Evaluation of Systematic Reviews of Palliative Care Services (2002) (49)
Palliative Care Services in the Community: What Do Family Doctors Want? (1999) (49)
Episodes of breathlessness: Types and patterns – a qualitative study exploring experiences of patients with advanced diseases (2013) (49)
Benefits and costs of home palliative care compared with usual care for patients with advanced illness and their family caregivers. (2014) (49)
Predictors of emergency department attendance by people with dementia in their last year of life: Retrospective cohort study using linked clinical and administrative data (2018) (49)
Efficiency of searching the grey literature in palliative care. (2001) (48)
Family anxiety in advanced cancer: a multicentre prospective study in Ireland. (1997) (48)
Implementing a quality improvement programme in palliative care in care homes: a qualitative study (2011) (48)
Service Delivery Models to Maximize Quality of Life for Older People at the End of Life: A Rapid Review (2019) (48)
Children and young people who die from cancer: epidemiology and place of death in England (1995-9) (2003) (48)
Breathlessness in cancer patients - implications, management and challenges. (2011) (47)
Minimum dataset activity for hospice and hospital palliative care services in the UK 1997/98 (2000) (47)
The influence of protein containing meals on the pharmacokinetics of levodopa in healthy volunteers. (1991) (47)
Palliative cancer care: an epidemiologic study. (2011) (47)
Study Protocol: Phase III single-blinded fast-track pragmatic randomised controlled trial of a complex intervention for breathlessness in advanced disease (2011) (47)
Symptom management in patients with established renal failure managed without dialysis. (2006) (47)
Access and equity in HIV/AIDS palliative care: a review of the evidence and responses (2005) (47)
Coordination of end-of-life care for patients with lung cancer and those with advanced COPD: are there transferable lessons? A longitudinal qualitative study (2014) (47)
Using routine data to improve palliative and end of life care (2016) (46)
The detection of depression in palliative care (2009) (46)
The Use of Opioid Analgesia in End-Stage Renal Disease Patients Managed Without Dialysis (2007) (45)
Developing A Breathlessness Intervention Service for Patients with Palliative and Supportive Care Needs, irrespective of Diagnosis (2011) (45)
The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers. (2020) (45)
Assessing quality-of-life in older people in care homes. (2011) (45)
Development and evaluation of the feasibility and effects on staff, patients, and families of a new tool, the Psychosocial Assessment and Communication Evaluation (PACE), to improve communication and palliative care in intensive care and during clinical uncertainty (2013) (45)
International trends in circumstances of death and dying among older people (2011) (45)
Clinical priorities, barriers and solutions in end-of-life cancer care research across Europe. Report from a workshop. (2010) (45)
Is the presence of dyspnea a risk factor for morbidity in cancer patients? (2000) (44)
What palliative care-related problems do patients experience at HIV diagnosis? A systematic review of the evidence. (2011) (44)
Nurse-led palliative care for HIV-positive patients taking antiretroviral therapy in Kenya: a randomised controlled trial. (2015) (44)
Clinical audit by a palliative care team (1991) (44)
Assessing the feasibility, acceptability and potential effectiveness of Dignity Therapy for people with advanced cancer referred to a hospital-based palliative care team: Study protocol (2009) (44)
"It makes you feel that somebody is out there caring": a qualitative study of intervention and control participants' perceptions of the benefits of taking part in an evaluation of dignity therapy for people with advanced cancer. (2013) (44)
‘Peace’ and ‘life worthwhile’ as measures of spiritual well-being in African palliative care: a mixed-methods study (2013) (43)
Past trends and projections of hospital deaths to inform the integration of palliative care in one of the most ageing countries in the world (2015) (43)
Changing patterns of mortality during the COVID-19 pandemic: Population-based modelling to understand palliative care implications (2020) (43)
Population, mortality and place of death in Germany (1950-2050) - implications for end-of-life care in the future. (2012) (43)
A psychometric evaluation of measures of spirituality validated in culturally diverse palliative care populations. (2011) (42)
Evaluating psycho-educational interventions for informal carers of patients receiving cancer care or palliative care: Strengths and limitations of different study designs (2011) (42)
The minimal important difference of the King's Brief Interstitial Lung Disease Questionnaire (K-BILD) and forced vital capacity in interstitial lung disease. (2013) (42)
Expert opinion on detecting and treating depression in palliative care: A Delphi study (2011) (42)
‘I'll be in a safe place’: a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care (2016) (42)
Review: Delivering research in end-of-life care: problems, pitfalls and future priorities (2010) (41)
The feasibility of a single-blinded fast-track pragmatic randomised controlled trial of a complex intervention for breathlessness in advanced disease (2009) (41)
A new approach to eliciting patients' preferences for palliative day care: the choice experiment method. (2005) (41)
Bereaved relatives’ views about participating in cancer research (2012) (41)
Development, effectiveness and cost-effectiveness of a new out-patient Breathlessness Support Service: study protocol of a phase III fast-track randomised controlled trial (2012) (41)
Appraisal of literature reviews on end-of-life care for minority ethnic groups in the UK and a critical comparison with policy recommendations from the UK end-of-life care strategy (2011) (41)
Stressors and Resources of Caregivers of Patients With Incurable Progressive Illness in Sub-Saharan Africa (2014) (40)
Self-management for breathlessness in COPD: the role of pulmonary rehabilitation (2009) (40)
Public preferences and priorities for end-of-life care in Kenya: a population-based street survey (2014) (40)
How should we manage information needs, family anxiety, depression, and breathlessness for those affected by advanced disease: development of a Clinical Decision Support Tool using a Delphi design (2015) (40)
Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis (2018) (40)
Feasibility and acceptability of a patient-reported outcome intervention in chronic heart failure (2017) (40)
Quality of life assessment and outcome of palliative care. (2001) (40)
The PRISMA Symposium 1: outcome tool use. Disharmony in European outcomes research for palliative and advanced disease care: too many tools in practice. (2011) (40)
Systematic literature review: outcome measures for child and adolescent mental health services. (1996) (39)
Measures to assess commonly experienced symptoms for people with dementia in long-term care settings: a systematic review (2016) (39)
'My dreams are shuttered down and it hurts lots’–a qualitative study of palliative care needs and their management by HIV outpatient services in Kenya and Uganda (2013) (39)
Psychological as well as illness factors influence acceptance of non-invasive ventilation (NIV) and gastrostomy in amyotrophic lateral sclerosis (ALS): A prospective population study (2014) (39)
Which patients with advanced respiratory disease die in hospital? A 14-year population-based study of trends and associated factors (2017) (39)
The Liverpool Care Pathway for cancer patients dying in hospital medical wards: A before–after cluster phase II trial of outcomes reported by family members (2014) (39)
‘Burden to others’ as a public concern in advanced cancer: a comparative survey in seven European countries (2013) (39)
International variation in classification of dialysis withdrawal: a systematic review. (2014) (39)
Professionals' views and experiences of using outcome measures in palliative care. (2003) (38)
Cultural competence in end-of-life care: terms, definitions, and conceptual models from the British literature. (2012) (38)
A Multi-Professional Short-Term Group Intervention for Informal Caregivers of Patients Using a Home Palliative Care Service (2002) (38)
Modelling services to meet the palliative care needs of chronic heart failure patients and their families: current practice in the UK (2007) (38)
Palliative care needs to be provided on basis of need rather than diagnosis (1999) (37)
Improving the assessment of quality of life in the clinical care of myeloma patients: the development and validation of the Myeloma Patient Outcome Scale (MyPOS) (2015) (37)
How integrated are neurology and palliative care services? Results of a multicentre mapping exercise (2016) (37)
Mixed methods research in the development and evaluation of complex interventions in palliative and end-of-life care: report on the MORECare consensus exercise. (2013) (37)
Use of the palliative outcome scale in Argentina: a cross-cultural adaptation and validation study. (2008) (37)
What factors influence emergency department visits by patients with cancer at the end of life? Analysis of a 124,030 patient cohort (2018) (36)
Adjusting to the caregiving role: the importance of coping and support. (2012) (36)
Textbook of Palliative Medicine and Supportive Care (2015) (36)
Variations in the cost of formal and informal health care for patients with advanced chronic disease and refractory breathlessness: A cross-sectional secondary analysis (2017) (36)
Outcomes 'out of africa': the selection and implementation of outcome measures for palliative care in Africa (2012) (36)
Patient and carer experiences of clinical uncertainty and deterioration, in the face of limited reversibility: A comparative observational study of the AMBER care bundle (2015) (35)
Home care by general practitioners for cancer patients in the last 3 months of life: An epidemiological study of quality and associated factors (2016) (35)
Exercise Deficiency Diseases of Ageing: The Primacy of Exercise and Muscle Strengthening as First-Line Therapeutic Agents to Combat Frailty. (2018) (35)
Neuromuscular electrical stimulation for muscle weakness in adults with advanced disease. (2013) (35)
Symptoms and Concerns Among Children and Young People with Life-Limiting and Life-Threatening Conditions: A Systematic Review Highlighting Meaningful Health Outcomes (2018) (35)
The "Spirit 8" successfully captured spiritual well-being in African palliative care: factor and Rasch analysis. (2012) (34)
Factors Associated with Transition from Community Settings to Hospital as Place of Death for Adults Aged 75 and Older: A Population‐Based Mortality Follow‐Back Survey (2016) (34)
It just didn't work: the realities of quality assessment in the English health care context. (2004) (34)
Chest pain: communication of symptoms and history in a London emergency department. (2006) (34)
Characteristics of episodic breathlessness as reported by patients with advanced chronic obstructive pulmonary disease and lung cancer: Results of a descriptive cohort study (2015) (33)
What is palliative day care? (2002) (33)
The randomized fast-track trial in palliative care: Role, utility and ethics in the evaluation of interventions in palliative care? (2011) (33)
The need to research refractory breathlessness (2016) (33)
Psychological services in hospices in the UK and Republic of Ireland. (2006) (33)
Vulnerability in palliative care research: findings from a qualitative study of black Caribbean and white British patients with advanced cancer (2009) (33)
Translating clinical tools in nursing practice. (2003) (32)
4 Palliative and Terminal Care (1997) (32)
Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study (2018) (32)
Results of a transparent expert consultation on patient and public involvement in palliative care research (2015) (32)
Current and future needs for hospice care: an evidence-based report (2013) (32)
Leaky pipeline, gender bias, self-selection or all three? A quantitative analysis of gender balance at an international palliative care research conference (2017) (32)
Progression, Symptoms and Psychosocial Concerns among Those Severely Affected by Multiple Sclerosis: A Mixed-Methods Cross-Sectional Study of Black Caribbean and White British People (2013) (31)
Using the 12‐item General Health Questionnaire to screen psychological distress from survivorship to end‐of‐life care: dimensionality and item quality (2012) (31)
Results of a pilot investigation into a complex intervention for breathlessness in advanced chronic obstructive pulmonary disease (COPD): Brief report (2010) (31)
Illness perceptions, adjustment to illness, and depression in a palliative care population. (2012) (31)
Culture is a priority for research in end-of-life care in Europe: a research agenda. (2012) (31)
"I Can Breathe Again!" Patients' Self-Management Strategies for Episodic Breathlessness in Advanced Disease, Derived From Qualitative Interviews. (2016) (31)
Electroacupuncture as an adjunctive treatment to control neuropathic pain in patients with cancer. (2007) (31)
Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care (2012) (31)
The value of uncertainty in critical illness? An ethnographic study of patterns and conflicts in care and decision-making trajectories (2015) (31)
Review: measures to determine the outcome of community services for people with dementia. (1995) (30)
Assessing structure, process and outcome in palliative day care: a pilot study for a multicentre trial. (2000) (30)
Place of death in children and young people with cancer and implications for end of life care: a population-based study in England, 1993–2014 (2016) (30)
Does Ethnicity Affect Where People with Cancer Die? A Population-Based 10 Year Study (2014) (30)
‘It doesn't do the care for you': a qualitative study of health care professionals' perceptions of the benefits and harms of integrated care pathways for end of life care (2015) (30)
Home or hospital? Choices at the end of life. (2004) (30)
A user's guide to the Palliative care Outcome Scale (2002) (30)
The TEAM Approach to Improving Oncology Outcomes by Incorporating Palliative Care in Practice. (2017) (30)
AIDS and cancer pain treated with slow release morphine. (1991) (29)
How to analyze palliative care outcome data for patients in Sub-Saharan Africa: an international, multicenter, factor analytic examination of the APCA African POS. (2013) (29)
‘It makes me feel that I’m still relevant’: A qualitative study of the views of nursing home residents on dignity therapy and taking part in a phase II randomised controlled trial of a palliative care psychotherapy (2013) (29)
Symptom Prevalence among People Affected by Advanced and Progressive Neurological Conditions—a Systematic Review (2007) (29)
Palliative day care: what does it cost to run a centre and does attendance affect use of other services? (2003) (29)
Inclusion of end-of-life care in the global health agenda. (2014) (29)
Patients’ experiences of a new integrated breathlessness support service for patients with refractory breathlessness: Results of a postal survey (2015) (28)
Cancer Trajectories at the End of Life: is there an effect of age and gender? (2008) (28)
Time to get it right: are preferences for place of death more stable than we think? (2010) (28)
Diversity in Defining End of Life Care: An Obstacle or the Way Forward? (2013) (28)
Characterizing episodic breathlessness in patients with advanced disease. (2013) (28)
Are we heading in the same direction? European and African doctors’ and nurses’ views and experiences regarding outcome measurement in palliative care (2012) (28)
What is palliative day care? A patient perspective of five UK services. (2002) (28)
Breathlessness – current and emerging mechanisms, measurement and management: A discussion from an European Association of Palliative Care workshop (2013) (28)
Decision Making About Gastrostomy and Noninvasive Ventilation in Amyotrophic Lateral Sclerosis (2016) (28)
Treatment outcomes in palliative care: the TOPCare study. A mixed methods phase III randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy (2012) (28)
Do we need palliative care audit in developing countries? (2002) (27)
A pan-European survey of research in end-of-life cancer care (2010) (27)
Reducing hospital beds for patients with advanced cancer (1994) (27)
Benzodiazepines for the relief of breathlessness in malignant and advanced non‐malignant diseases in adults (2008) (27)
Palliative Care Outcome Scale (2017) (26)
Electronic palliative care coordination systems (EPaCCS): a systematic review (2019) (26)
Factors associated with older people’s emergency department attendance towards the end of life: a systematic review (2018) (26)
A psychometric validation of two brief measures to assess palliative need in patients severely affected by multiple sclerosis. (2013) (26)
Learning from the public: citizens describe the need to improve end-of-life care access, provision and recognition across Europe (2013) (26)
Choosing care homes as the least preferred place to die: a cross-national survey of public preferences in seven European countries (2014) (26)
Religious faith and support at the end of life: a comparison of first generation black Caribbean and white populations (2002) (26)
The impact of population ageing on end-of-life care in Scotland: projections of place of death and recommendations for future service provision (2019) (26)
Fit to care? A comparison of informal caregivers of first-generation Black Caribbeans and White dependants with advanced progressive disease in the UK. (2003) (25)
The King’s Brief Interstitial Lung Disease (KBILD) questionnaire: an updated minimal clinically important difference (2019) (25)
Integrating palliative care into neurology services: what do the professionals say? (2017) (25)
Chest pain: physician perceptions and decision-making in a London emergency department. (2006) (25)
Self-report measurement of pain & symptoms in palliative care patients: a comparison of verbal, visual and hand scoring methods in Sub-Saharan Africa (2014) (25)
A Rasch Analysis of the Integrated Palliative Care Outcome Scale. (2019) (25)
Changes in mortality patterns and place of death during the COVID-19 pandemic: A descriptive analysis of mortality data across four nations (2021) (25)
Constructing understandings of end-of-life care in Europe: a qualitative study involving cognitive interviewing with implications for cross-national surveys. (2011) (25)
Doctors should not discuss resuscitation with terminally ill patients (2003) (24)
The changing demographics of inpatient hospice death: population-based, cross-sectional study in England, 1993–2012 (2015) (24)
Symptoms and anxiety predict declining health-related quality of life in multiple myeloma: A prospective, multi-centre longitudinal study (2019) (23)
Phase I Cancer Trials and Palliative Care: Antagonism, Irrelevance, or Synergy? (2016) (23)
Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study. (2018) (23)
What Constitutes High-Quality HIV/AIDS Palliative Care? (1999) (23)
Validity, reliability and responsiveness to change of the Italian palliative care outcome scale: a multicenter study of advanced cancer patients (2016) (23)
Provision of palliative care for chronic heart failure inpatients: how much do we need? (2009) (22)
Evaluation of hospital palliative care teams: strengths and weaknesses of the before-after study design and strategies to improve it (2009) (22)
Fear of dying in an ethnically diverse society: cross-sectional studies of people aged 65+ in Britain (2010) (22)
Understanding which people with dementia are at risk of inappropriate care and avoidable transitions to hospital near the end-of-life: a retrospective cohort study. (2019) (22)
Measuring quality of care in palliative care services. (2000) (22)
Predictors of non-remission of depression in a palliative care population (2011) (22)
Quality of life and wellbeing among HIV outpatients in East Africa: a multicentre observational study (2014) (22)
Research into end-of-life cancer care—investment is needed (2012) (22)
Does the EQ-5D capture the concerns measured by the Palliative care Outcome Scale? Mapping the Palliative care Outcome Scale onto the EQ-5D using statistical methods (2017) (21)
Control and Context Are Central for People With Advanced Illness Experiencing Breathlessness: A Systematic Review and Thematic Synthesis. (2019) (21)
Standards, Guidelines, and Quality Measures for Successful Specialty Palliative Care Integration Into Oncology: Current Approaches and Future Directions. (2020) (21)
Finding a ‘new normal’ following acute illness: A qualitative study of influences on frail older people’s care preferences (2018) (21)
Assessing the Effectiveness and Acceptability of Interprofessional Palliative Care Education (2005) (21)
Geographical and temporal Understanding In place of Death in England (1984–2010): analysis of trends and associated factors to improve end-of-life Care (GUIDE_Care) – primary research (2014) (21)
Breathlessness and crises in the context of advanced illness: A comparison between COPD and lung cancer patients (2014) (20)
How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA (2016) (20)
Managing Cancer Pain at the End of Life with Multiple Strong Opioids: A Population-Based Retrospective Cohort Study in Primary Care (2014) (20)
Emergency department attendance by patients with cancer in the last month of life: a systematic review and meta-analysis (2015) (20)
‘I'll continue as long as I can, and die when I can't help it’: a qualitative exploration of the views of end-of-life care by those affected by head and neck cancer (HNC) (2014) (20)
Prevalence, course and associations of desire for hastened death in a UK palliative population: a cross-sectional study (2011) (20)
Establishing key criteria to define and compare models of specialist palliative care: A mixed-methods study using qualitative interviews and Delphi survey (2019) (20)
Acceptability and preferences of six different routes of drug application for acute breathlessness: a comparison study between the United Kingdom and Germany. (2012) (20)
Reconciling employment with caring for a husband with an advanced illness (2009) (20)
Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique (2019) (20)
The MVQOLI successfully captured quality of life in African palliative care: a factor analysis. (2011) (20)
Does ethnicity matter? Bereavement outcomes in two ethnic groups living in the United Kingdom (2005) (19)
Quality of care and evaluating services (1994) (19)
Palliative care-related self-report problems among cancer patients in East Africa: a two-country study (2014) (19)
Psychometric Properties of a Generic, Patient-Centred Palliative Care Outcome Measure of Symptom Burden for People with Progressive Long Term Neurological Conditions (2016) (19)
Strategies used in improving and assessing the level of reporting of implementation fidelity in randomised controlled trials of palliative care complex interventions: A systematic review (2018) (19)
Public health and palliative care in 2015. (2015) (19)
Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey (2012) (19)
Marie Curie nurses: enabling patients with cancer to die at home. (2002) (19)
Patterns of dignity-related distress at the end of life: A cross-sectional study of patients with advanced cancer and care home residents (2014) (19)
MRC guidance on developing and evaluating complex interventions: Application to research on palliative and end of life care (2013) (18)
How common are palliative care needs among older people who die in the emergency department? (2011) (18)
Dignity Through Integrated Symptom Management: Lessons From the Breathlessness Support Service. (2016) (18)
Republished: Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey (2012) (18)
General practitioners' use and experiences of palliative care services: a survey in south east England (2008) (18)
The experience of using the SEIQoL-DW with patients with advanced chronic obstructive pulmonary disease (COPD): issues of process and outcome (2010) (18)
How does a new breathlessness support service affect patients? (2015) (18)
Home or Hospital? Choices at the end of Life (2004) (18)
Multi-centred mixed-methods PEPFAR HIV care & support public health evaluation: study protocol (2010) (18)
Meanings of happiness among two ethnic groups living with advanced cancer in south London: a qualitative study (2013) (18)
Service needs of patients with advanced HIV disease: a comparison of client and staff reports at three palliative care projects. (2004) (18)
A randomised, multicentre clinical trial of specialised palliative care plus standard treatment versus standard treatment alone for cancer patients with palliative care needs: the Danish palliative care trial (DanPaCT) protocol (2013) (18)
Detailed statistical analysis plan for the Danish Palliative Care Trial (DanPaCT) (2014) (18)
The clinical utility of quality of life measures (2003) (18)
Who needs palliative care? (1998) (18)
‘Less ticking the boxes, more providing support’: A qualitative study on health professionals’ concerns towards the Liverpool Care of the Dying Pathway (2015) (17)
Research priorities in health economics and funding for palliative care: views of an international think tank. (2009) (17)
COVID-19 trajectories among 57 million adults in England: a cohort study using electronic health records (2022) (17)
Is end-of-life care a priority for policymakers? Qualitative documentary analysis of health care strategies (2018) (17)
Audit in palliative care: does practice change? (1996) (17)
Two HIV/AIDS community support teams: patient characteristics, problems at referral and during the last 6 weeks of life. (1995) (17)
Symptom severity in advanced cancer, assessed in two ethnic groups by interviews with bereaved family members and friends. (2003) (17)
Cancer Pain: Cancer pain epidemiology (2009) (16)
Time for a prospective study to evaluate the Amber Care Bundle (2013) (16)
Spiritual care recommendations for people receiving palliative care in sub-Saharan Africa (2010) (16)
Palliative care and the need for education - Do we know what makes a difference? A limited systematic review (2006) (16)
Audit in palliative care (1993) (16)
Overview of assessment (2009) (16)
Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement) (2020) (16)
Quality criteria valuable with slight modification. (2007) (16)
Outcome measurement in palliative care (2014) (16)
Methodological considerations for end-of-life research in patients with chronic kidney disease. (2008) (16)
Improving Generalist End of Life Care (2008) (15)
It would be NICE to have more evidence? (2004) (15)
Screening for depression in advanced disease: psychometric properties, sensitivity, and specificity of two items of the Palliative Care Outcome Scale (POS). (2015) (15)
Does a social model of hospice day care affect advanced cancer patients’ use of other health and social services? A prospective quasi-experimental trial (2010) (15)
Intensity and correlates of multidimensional problems in HIV patients receiving integrated palliative care in sub-Saharan Africa (2012) (15)
Experiences, concerns, and priorities for palliative care research during the COVID-19 pandemic: A rapid virtual stakeholder consultation with people affected by serious illness in England (2020) (15)
Hospice at home--a new service for patients with advanced HIV/AIDS: a pilot evaluation of referrals and outcomes. (1996) (15)
Can professionals improve their assessments? (1998) (15)
The PRISMA Symposium 4: how should Europe progress end-of-life and palliative clinical care research? Recommendations from the proceedings. (2011) (15)
Factors Associated with Participation, Active Refusals and Reasons for Not Taking Part in a Mortality Followback Survey Evaluating End-of-Life Care (2016) (15)
A psychometric evaluation of the functional assessment of chronic illness therapy-palliative care (FACIT-Pal) scale with palliative care samples in three African countries. (2014) (15)
Language translation of outcome measurement tools: views of health professionals. (2003) (15)
Prohibit, Protect, or Adapt? The Changing Role of Volunteers in Palliative and Hospice Care Services During the COVID-19 Pandemic. A Multinational Survey (Covpall) (2021) (15)
Assessing palliative care outcomes for people with motor neurone disease living at home. (2004) (15)
Fast-track trials in palliative care: an alternative randomized controlled trial design. (2009) (15)
Translation and cognitive testing of the Italian Integrated Palliative Outcome Scale (IPOS) among patients and healthcare professionals (2019) (15)
Prescription patterns of analgesics in the last 3 months of life: a retrospective analysis of 10202 lung cancer patients (2011) (15)
The views and experiences of older people with conservatively managed renal failure: a qualitative study of communication, information and decision-making (2019) (15)
Multidimensional Patient-Reported Problems within Two Weeks of HIV Diagnosis in East Africa: A Multicentre Observational Study (2013) (15)
Social-cultural factors in end-of-life care in Belgium: A scoping of the research literature (2013) (15)
'A softening of edges': a comparison of yoga classes at palliative care services in New Delhi and London. (2010) (15)
Population-based palliative care planning in Ireland: how many people will live and die with serious illness to 2046? (2019) (14)
‘The greatest thing in the world is the family’: the meaning of social support among Black Caribbean and White British patients living with advanced cancer (2012) (14)
Of apples and oranges: Lessons learned from the preparation of research protocols for systematic reviews exploring the effectiveness of Specialist Palliative Care (2016) (14)
Palliative care: Based on neither diagnosis nor prognosis, but patient and family need. Commentary on Chattoo and Atkin. (2009) (14)
Effect of Short-term Integrated Palliative Care on Patient-Reported Outcomes Among Patients Severely Affected With Long-term Neurological Conditions (2020) (14)
Measuring geographical accessibility to palliative and end of life (PEoLC) related facilities: a comparative study in an area with well-developed specialist palliative care (SPC) provision (2017) (14)
[Epidemiological study of place of death in Portugal in 2010 and comparison with the preferences of the Portuguese population]. (2013) (14)
Use of mirtazapine in patients with chronic breathlessness: A case series (2018) (14)
Organization and governance (2009) (14)
Fatigue in cancer (2004) (14)
Invisible and intangible illness: a qualitative interview study of patients' experiences and understandings of conservatively managed end-stage kidney disease. (2019) (14)
A Comparison of Four Outcome Measures of Terminal Care (1988) (14)
Challenges in defining ‘palliative care’ for the purposes of clinical trials (2012) (14)
A Population-Based Conceptual Framework for Evaluating the Role of Healthcare Services in Place of Death (2018) (13)
Cognitive interviewing of bereaved relatives to improve the measurement of health outcomes and care utilisation at the end of life in a mortality followback survey (2013) (13)
The end of life: unknown and unplanned? (2007) (13)
Outcome measures for routine use in dementia services: some practical considerations. (1997) (13)
Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study (2021) (13)
Dying at home during the pandemic (2021) (13)
End-of-life care and place of death in adults with serious mental illness: A systematic review and narrative synthesis (2019) (13)
Preparedness of African Palliative Care Services to Respond to the COVID-19 Pandemic: A Rapid Assessment (2020) (13)
How many people will need palliative care in Scotland by 2040? A mixed-method study of projected palliative care need and recommendations for service delivery (2021) (13)
Identifying Neuropathic Pain in Patients with Head and Neck Cancer: Use of the Leeds Assessment of Neuropathic Symptoms and Signs Scale (2003) (13)
Place of death and factors associated with hospital death in patients who have died from liver disease in England: a national population-based study. (2019) (13)
Community-based short-term integrated palliative and supportive care reduces symptom distress for older people with chronic noncancer conditions compared with usual care: A randomised controlled single-blind mixed method trial. (2021) (13)
The stability of care preferences following acute illness: a mixed methods prospective cohort study of frail older people (2020) (13)
Appropriate methods to assess the effectiveness and efficacy of treatments or interventions to control cancer pain. (2004) (13)
Rasch analysis and impact factor methods both yield valid and comparable measures of health status in interstitial lung disease. (2015) (12)
Illness perceptions, adjustment to illness and depression in a palliative care population (2011) (12)
for Black, Asian and Minority Ethnic groups in the UK (2013) (12)
Effect of participation in a randomised controlled trial of an integrated palliative care intervention on HIV-associated stigma (2018) (12)
Recommendations for services for people living with chronic breathlessness in advanced disease: Results of a transparent expert consultation (2018) (12)
Evidence on home palliative care: Charting past, present, and future at the Cicely Saunders Institute – WHO Collaborating Centre for Palliative Care, Policy and Rehabilitation (2013) (12)
Comprar Textbook of Palliative Medicine | Charles F. Von Gunten | 9780340966242 | Hodder Arnold (2008) (12)
Holistic models for end of life care: Establishing the place of culture (2014) (12)
Services, costs and appropriate outcomes in end of life care. (1999) (12)
Associations between informal care costs, care quality, carer rewards, burden and subsequent grief: the international, access, rights and empowerment mortality follow-back study of the last 3 months of life (IARE I study) (2020) (12)
Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study (2021) (12)
Development of a Patient-Reported Palliative Care-Specific Health Classification System: The POS-E (2017) (12)
Exploring meanings of illness causation among those severely affected by multiple sclerosis: a comparative qualitative study of Black Caribbean and White British people (2015) (12)
The challenges of caring for people dying from COVID-19: a multinational,observational study of palliative and hospice services (CovPall) (2020) (12)
Active ingredients of a person-centred intervention for people on HIV treatment: analysis of mixed methods trial data (2018) (11)
Cachexia-anorexia syndrome in cancer patients (1996) (11)
Seeing is believing – healthcare professionals’ perceptions of a complex intervention to improve care towards the end of life: A qualitative interview study (2018) (11)
Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services (2021) (11)
Palliative day care: what do services do? Palliative Day Care Project Group. (2000) (11)
Changing health behaviour with rehabilitation in thoracic cancer: A systematic review and synthesis (2018) (11)
Spiritual wellbeing in sub-Saharan Africa: the meaning and prevalence of ‘feeling at peace’ (2011) (11)
Outcome measurement-a scoping review of the literature and future developments in palliative care clinical practice. (2018) (11)
Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services. (2020) (11)
The future of end-of-life care (2018) (11)
Avoid ‘prognostic paralysis’—just get ahead and plan and co-ordinate care (2014) (11)
Exploratory analyses of the Danish Palliative Care Trial (DanPaCT): a randomized trial of early specialized palliative care plus standard care versus standard care in advanced cancer patients (2019) (11)
Capturing activity, costs, and outcomes: The challenges to be overcome for successful economic evaluation in palliative care (2013) (11)
The effect of Palliative Daycare on Hope: A comparison of Daycare Patients with Two Control Groups (2011) (11)
The views of patients with advanced cancer regarding participation in serial questionnaire studies (2008) (11)
Patterns of emergency department attendance among older people in the last three months of life and factors associated with frequent attendance: a mortality follow-back survey. (2019) (11)
Measuring the net benefits of hospice and palliative care: a composite measure for multiple audiences-palliative net benefit. (2011) (10)
Randomised, double-blind, multicentre, mixed-methods, dose-escalation feasibility trial of mirtazapine for better treatment of severe breathlessness in advanced lung disease (BETTER-B feasibility) (2020) (10)
Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall) (2021) (10)
The development, validity, reliability and practicality of a new measure of palliative care : the Support Team Assessment Schedule (1992) (10)
The Effective Management of Cancer Pain (2000) (10)
About the “surprise question” (2017) (10)
Development and validation of a casemix classification to predict costs of specialist palliative care provision across inpatient hospice, hospital and community settings in the UK: a study protocol (2018) (10)
Equal or not? Women hold less prestigious roles at respiratory medicine conferences than men (2020) (10)
Project to improve management of terminal illness: Summary of findings from PROMOTE (2004) (10)
Towards patient-centred cancer care: cross-cultural validity and responsiveness of the Turkish Integrated Palliative care Outcome Scale (2020) (10)
Death from renal failure eighty years on: how far have we come? (2007) (10)
Topics in Palliative Care Vol. 4 (2000) (10)
End of life content in geriatric textbooks: what is the current situation? (2006) (10)
Mental health status of clients from three HIV/AIDS palliative care projects (2004) (10)
Breathlessness during daily activity: The psychometric properties of the London Chest Activity of Daily Living Scale in patients with advanced disease and refractory breathlessness (2016) (10)
Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study (2017) (9)
[What influences end-of-life decisions? Results of a representative German survey]. (2015) (9)
Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study (2020) (9)
How can we achieve person-centred care for people living with HIV/AIDS? A qualitative interview study with healthcare professionals and patients in Ghana (2019) (9)
Cancer Pain : Assessment and Management (2003) (9)
Valuing Attributes of Home Palliative Care With Service Users: A Pilot Discrete Choice Experiment. (2017) (9)
What is the evidence for mirtazapine in treating cancer-related symptomatology? A systematic review (2019) (9)
The AMBER care bundle for hospital inpatients with uncertain recovery nearing the end of life: the ImproveCare feasibility cluster RCT. (2019) (9)
Mirtazapine for chronic breathlessness? A review of mechanistic insights and therapeutic potential (2018) (9)
Cost–effectiveness of lenalidomide in multiple myeloma (2010) (9)
Spiritual care recommendations for people from Black and minority ethnic (BME) groups receiving palliative care in the UK (2010) (9)
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data (2021) (9)
The intensity of caregiving is a more important predictor of adverse bereavement outcomes for adult–child than spousal caregivers of patients who die of cancer (2017) (9)
Epidemiology of Pain in Cancer (2013) (9)
What methods do stakeholders prefer for feeding back performance data: a qualitative study in palliative care. (2004) (9)
Symptom dimensions in people affected by long-term neurological conditions: a factor analysis of a patient-centred palliative care outcome symptom scale (2019) (9)
Epidemiology of cancer pain (2004) (9)
A randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy: recruitment, refusal, randomisation and missing data (2014) (9)
Disability in basic activities of daily living is associated with symptom burden in older people with advanced cancer or chronic obstructive pulmonary disease: A secondary data analysis. (2020) (8)
Project to impROve management of terminal illnEss (PROMOTE). (2001) (8)
''Necessity is the mother of invention'': Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multi-national survey (CovPall) (2020) (8)
Gastrointestinal Symptoms in Advanced Cancer Patients (2002) (8)
Intention-to-treat analyses for randomised controlled trials in hospice/palliative care: the case for analyses to be of people exposed to the intervention. (2019) (8)
The presence of CD4 counts for the management of HIV patients in East Africa: A multicentred study (2014) (8)
Holistic services for people with advanced disease and chronic or refractory breathlessness: a mixed-methods evidence synthesis (2019) (8)
Developing an integrated rehabilitation model for thoracic cancer services: views of patients, informal carers and clinicians (2018) (8)
Managing patients with lung cancer (2000) (8)
Palliative care: no longer a luxury but a necessity? (2009) (8)
PEPFAR public health evaluation -- care and support. Phase 2 Uganda. (2010) (8)
Changing gear: guidelines for managing the last days of life in adults; the research evidence (1997) (8)
The role of palliative care teams: Systematic review of their effectiveness and cost-effectiveness. Report to Wales Office of Research and Development of the National Assembly of Wales. (2000) (8)
Pain and symptom control in HIV disease: under-researched and poorly managed. (2005) (8)
Developing methods to improve the quality of end-of-life care (2004) (8)
Public evidence before the House of Lords Select Committee on the Assisted Dying for the Terminally Ill Bill, 14 Sept. 2004 (2005) (8)
Primary care service use by end-of-life cancer patients: a nationwide population-based cohort study in the United Kingdom (2020) (8)
Drivers of care costs and quality in the last 3 months of life among older people receiving palliative care: A multinational mortality follow-back survey across England, Ireland and the United States (2020) (7)
I’ve had a good life, what’s left is a bonus: Factor analysis of the Mental Adjustment to Cancer Scale in a palliative care population (2014) (7)
What is the potential for the use of clinical outcome measures to be computerised? Findings from a qualitative research study. (2004) (7)
Rediscovering dignity at the bedside (2007) (7)
Comparisons of Costs between Black Caribbean and White British Patients with Advanced Multiple Sclerosis in the UK (2014) (7)
First International Symposium on Places of Death: An Agenda for the 21st Century (2006) (7)
Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked primary, community and secondary care data (2021) (7)
EPCRC, European Palliative Care Research Collaborative. The detection of depression in palliative care. (2009) (6)
Preparedness and Capacity of Indian Palliative Care Services to Respond to the COVID-19 Pandemic: An Online Rapid Assessment Survey (2021) (6)
Evidence Based Symptom Control in Palliative Care: Systematic Reviews and Validated Clinical Practice Guidelines for 15 Common Problems in Patients with Life Limiting Disease (2000) (6)
Phase II mixed methods’ feasibility cluster randomised controlled trial of a novel community-based enhanced care intervention to improve person-centred outcomes for people living with HIV in Ghana (2020) (6)
Regional variations in geographic access to inpatient hospices and Place of death: A Population-based study in England, UK (2020) (6)
Prevalence, severity, duration and measurement of pain in sub-Saharan Africa (2004) (6)
Wellbeing among sub-Saharan African patients with advanced HIV and/or cancer: an international multicentred comparison study of two outcome measures (2014) (6)
Determining the prevalence of palliative needs and exploring screening accuracy of depression and anxiety items of the integrated palliative care outcome scale – a multi-centre study (2019) (6)
Trajectories of disability in activities of daily living in advanced cancer or respiratory disease: a systematic review (2020) (6)
Preparedness to Face the COVID-19 Pandemic in Hospice and Palliative Care Services in the Asia-Pacific Region: A Rapid Online Survey (2021) (6)
The Effectiveness of Singing or Playing a Wind Instrument in Improving Respiratory Function in Patients with Long-Term Neurological Conditions: A Systematic Review (2017) (6)
“Keep All Thee ‘Til the End”: Reclaiming the Lifeworld for Patients in the Hospice Setting (2019) (6)
Exploring costs, cost components, and associated factors among people with dementia approaching the end of life: A systematic review (2021) (6)
Priorities and preferences for end of life care in Scotland (2002) (6)
Predicting outcomes following holistic breathlessness services: A pooled analysis of individual patient data (2019) (6)
MORECare research methods guidance development: recommendations for health economic evaluations in palliative and end of life care research (2012) (6)
Refractory breathlessness: oxygen or room air? (2010) (6)
Palliative and Terminal Care (2018) (5)
Cancer Control in Africa 6 Research into palliative care in sub-Saharan Africa (2013) (5)
Pharmacological and nonpharmacological interventions to improve symptom control, functional exercise capacity and quality of life in interstitial lung disease: an evidence synthesis (2020) (5)
The King's brief interstitial lung disease (K-BILD) questionnaire; an updated minimal important difference (2016) (5)
Current and future needs for hospice care (2013) (5)
MoreCare research methods guidance development:recommendations for using mixed methods to develop and evaluate complex interventions in palliative and end of life care (2012) (5)
Correspondence. Minority ethnic groups and our healthier nation (2000) (5)
Longitudinal validity and reliability of the Myeloma Patient Outcome Scale (MyPOS) was established using traditional, generalizability and Rasch psychometric methods (2017) (5)
Attitudes to timeliness of death and euthanasia among first generation black Caribbean and white patients and their families living in the United Kingdom. (2003) (5)
Effect of Short-term Integrated Palliative Care on Patient-Reported Outcomes Among Patients Severely Affected With Long-term Neurological Conditions A Randomized Clinical Trial (2020) (5)
[Quality of life at the end of life. Analysis of the quality of life of oncologic patients treated with palliative care. Results of a multicenter observational study (staging)]. (1999) (5)
The effectiveness and cost-effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers (2016) (5)
Intelligent Palliative Care Based on Patient-Reported Outcome Measures (2022) (5)
The Myeloma Patient Outcome Scale is the first quality of life tool developed for clinical use and validated in patients with follicular lymphoma (2017) (5)
Public opinion on preferences and priorities for end-of-life care in sub-Saharan Africa: piloting a novel method of street surveying (2011) (5)
Early bereavement: what factors influence children's responses to death? (2002) (5)
Relationships between prolonged physical and social isolation during the COVID-19 pandemic, reduced physical activity and disability in activities of daily living among people with advanced respiratory disease (2021) (5)
The quality of expectation: Healing, palliation or disappointment (2000) (4)
To what extent do the NRS and CRQ capture change in patients' experience of breathlessness in advanced disease? Findings from a mixed-methods double blind randomised feasibility trial. (2019) (4)
Correction: Socioeconomic position and use of healthcare in the last year of life: A systematic review and meta-analysis (2019) (4)
Palliative Care in Acute Heart Failure (2020) (4)
Do guidelines influence breathlessness management in advanced lung diseases? A multinational survey of respiratory medicine and palliative care physicians (2022) (4)
Building user participation to reshape services for people affected by motor neurone disease. (2002) (4)
Cognitive-emotional interventions for breathlessness in adults with advanced diseases (2017) (4)
Palliative care in terminal illness (1994) (4)
Do guidelines influence breathlessness management in advanced lung diseases? A multinational survey of respiratory medicine and palliative care physicians (2022) (4)
What Next in Refractory Breathlessness? Breathlessness? Research Questions for Palliative Care (2014) (4)
Palliative care needs of heart failure patients in China: putting people first (2017) (4)
Music to be born to, music to die to (2000) (4)
Cochrane Reviews: Four Proposals for Improvement. (2015) (4)
Financial help for terminally ill patients (1990) (4)
Place of death and other factors associated with unnatural mortality in patients with serious mental disorders: population-based retrospective cohort study (2019) (4)
“I’ll be in a safe place”: a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care (2016) (4)
Respiratory interventions for breathlessness in adults with advanced diseases (2017) (4)
MORECARE CAPACITY: MENTAL CAPACITY AND PROCESSES OF CONSENT FOR RESEARCH ON END-OF-LIFE CARE (2013) (4)
Recent developments in managing breathlessness: International researchers' meeting on Breathlessness in London, November 2006 (2007) (4)
Evaluation of an intervention to reduce the impact of childhood bereavement at school. (2001) (4)
In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’ (2019) (4)
Symptom control and survival for people severely ill with COVID: a multicentre cohort study (CovPall-Symptom). (2022) (3)
Cognitive behavioural therapy (CBT) for panic and anxiety in chronic obstructive pulmonary disease - A systematic review (2012) (3)
Population-based needs assessment for patient and family care (2009) (3)
Computer database for palliative care (1992) (3)
Which outcome domains are important in palliative care and when? : results of an international expert workshop (2018) (3)
Development and validation of the Myeloma Patient Outcome Scale (MyPOS): A quality of life questionnaire for use in the clinical care of people with multiple myeloma (2014) (3)
Early Engagement in Physical Activity and Exercise Is Key in Managing Cancer Cachexia. (2017) (3)
The impact of palliative medicine? (1999) (3)
The global palliative care lottery: can we overcome it? (2011) (3)
Evidence-based policy in palliative care: time to learn from our mistakes (2016) (3)
Current and future needs for hospice care : an evidence-based report HELP THE HOSPICES COMMISSION into the future of hospice care (2013) (3)
Physical interventions for breathlessness in adults with advanced diseases (2017) (3)
A comparison of two scoring methods for the King's sarcoidosis questionnaire (2015) (3)
"Outcomes" Is Not an Oxymoron in Hospice/Palliative Care. (2016) (3)
Determinants of Healthcare Costs in the Last Year of Life (TH316-A) (2013) (3)
CovPall: Improving palliative care for people affected by the COVID-19 pandemic by sharing learning – the national and international response (2020) (3)
The role of service factors on variations in place of death: an observational study (2019) (3)
Bereavement in the classroom (2004) (3)
The HIV basic care package: where is it available and who receives it? Findings from a mixed methods evaluation in Kenya and Uganda (2014) (3)
Quality, standards, organisational and clinical audit for hospice and palliative care services (1992) (3)
ill patients with cancer: systematic review Factors influencing death at home in terminally (2009) (3)
The real-world problem of care coordination: a longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers (2014) (3)
Characteristics and mortality rates among patients requiring intermediate care: a national cohort study using linked databases (2021) (3)
Managing clinical uncertainty in older people towards the end of life: a systematic review of person-centred tools (2021) (3)
Symptom Severity in Advanced Cancer, Assessed in Two Ethnic Groups by Interviews with Bereaved Family Members and Friends (2003) (3)
Managing clinical uncertainty in older people towards the end of life: a systematic review of person-centred tools (2021) (3)
The impact of and response to the COVID-19 pandemic on a hospital palliative care team (2021) (3)
International advances in outcome measurement in palliative care: One step closer to cross-national comparisons of routinely collected outcome data in palliative care (2015) (3)
S133 The assessment of health related quality of life in interstitial lung disease with the King's brief interstitial lung disease questionnaire (K-BILD) (2011) (3)
Circumstances of death and dying (2012) (3)
OPTIMISING PALLIATIVE CARE FOR FRAIL ELDERS IN COMMUNITY SETTINGS; PREFERENCES FOR CARE AND PALLIATIVE OUTCOMES IN THE LAST MONTHS OF LIFE (2014) (2)
Improving outcomes in upper gastro-intestinal cancer: the manual and research evidence. Proposal 1: Communication; Proposal 17: High quality integrated hospital, hospice and community based palliative care services; Additional Consideration: Psychosocial interventions for patients with upper GI canc (2000) (2)
A virtual user involvement forum for people living with motor neuron disease (2003) (2)
Antibiotic prescribing in primary care for end-of-life cancer patients. (2013) (2)
Recruiting patients with advanced malignant and non-malignant disease: lessons learned from a palliative care RCT (2011) (2)
Clinical Pain Management - Cancer Pain (2004) (2)
Influences on emergency department attendance among frail older people with deteriorating health: a multicentre prospective cohort study. (2021) (2)
Oxford Textbook of Oncology (2003) (2)
Palliative Care as a Public Health Issue (2021) (2)
Use of controlled release morphine sulphate tablets by a terminal care support team: a retrospective cohort study (1989) (2)
The place where they have to take you in or the place where you prefer to be? (2009) (2)
Palliative care in Africa: An appraisal of current service reports and evidence (2004) (2)
Universal coverage for palliative care in respiratory disease and critical care. (2017) (2)
7.10 Clinical and organizational audit and quality improvement in palliative medicine (2009) (2)
Stroke patients' experiences of shoulder pain (2004) (2)
Rights, Needs and Social Exclusion at the End of Life (2008) (2)
Episodic breathlessness: a clinically relevant and rising issue. (2014) (2)
PRISMA: Share best practice in end-of-life cancer care research and measurement (2010) (2)
Clinical Interventions for fatigue (2004) (2)
What Are the Predictors of Health-related Quality of Life and Cost in Multiple Myeloma? A Meta-analysis (2014) (2)
Immediate versus delayed short-term integrated palliative care for advanced long-term neurological conditions: the OPTCARE Neuro RCT (2020) (2)
The King's Brief Interstitial Lung Disease Questionnaire; Responsiveness And Minimal Important Difference (2012) (2)
Palliative care in end-stage renal disease (2015) (2)
Short-term integrated rehabilitation for people with newly diagnosed thoracic cancer: a multi-centre randomized controlled feasibility trial (2019) (2)
Place of death in children and young people with cancer and implications for end of life care: a population-based study in England, 1993–2014 (2016) (2)
Health Status and Service Needs of Male Inmates Seriously Ill With HIV/AIDS at Two Large Urban Jails (2007) (2)
HIV-related pain in low- and middle-income countries with reference to sub-Saharan Africa (2016) (2)
Symptoms and trajectories experienced by older people approaching and at the end of life: implications for care (2015) (2)
A comparison of two scoring methods for the King's brief interstitial lung disease questionnaire (2015) (2)
British Psychological Oncology Group: seventh annual conference. (1992) (2)
Palliative care needs of people severely affected by multiple sclerosis (MS): views of people with MS and their informal carers (2004) (2)
The real-world problem of care coordination (2014) (2)
How do carers of people with long term neurological conditions experience the provision of replacement care: Final report to the Department of Health R&D grant 053/0012 (2011) (2)
Symptom prevalence of patients with end-stage liver disease: a systematic review (2016) (2)
Invisible suffering: breathlessness in and beyond the clinic--a reply. (2015) (2)
Analgesics and symptom control in cancer patients referred to the Bloomsbury terminal care support team (1989) (2)
FACTORS ASSOCIATED WITH END OF LIFE TRANSITION FOR OLDER ADULTS LIVING AT HOME: ANALYSIS OF CARERS' POST-BEREAVEMENT SURVEY (2015) (2)
P131 What is the Evidence For Pharmacological and Non-Pharmacological Interventions in Improving Dyspnoea, Other Symptoms and Quality of Life in Progressive Idiopathic Fibrotic Interstitial Lung Disease?- A Systematic Review of the Literature (2012) (2)
CREATING GUIDANCE FOR THE USE OF PATIENT REPORTED OUTCOME MEASURES (PROMS) IN CLINICAL PALLIATIVE CARE (2014) (2)
P30 Feasibility of a New Out-Patient Breathlessness Support Service (2012) (2)
Minority ethnic groups and our healthier nation. (2000) (2)
Association between primary care contacts, continuity of care and identification of palliative care needs with hospital utilization among people dying with dementia: a population-based cohort study (2022) (2)
Common elements of service delivery models that optimise quality of life and health service use among older people with advanced progressive conditions: a tertiary systematic review (2021) (2)
COVID-19: Impact on Pediatric Palliative Care (2022) (2)
Neuromuscular electrical stimulation to improve exercise capacity in patients with severe COPD - Authors' reply. (2016) (2)
Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall) (2022) (2)
Research degree supervision: Lottery or life belt (1990) (1)
HOME DEATHS ARE MORE COMMON AT WEEKENDS AND HOLIDAY PERIODS AMONG CHILDREN AND YOUNG PEOPLE (CYP) WHO DIE FROM CANCER (2014) (1)
Recruiting malignant & non-malignant disease patients: lessons from a palliative care RCT (2011) (1)
INCREASING COMPLEXITY AT THE END OF LIFE IN PEOPLE WHO DIED FROM CANCER AGED 85 YEARS OR OLDER, ENGLAND 2001–2012 (2015) (1)
Do we have adequate tools and skills to manage uncertainty among patients and families in ICU? (2017) (1)
Intensive care utilization in patients with end-stage liver disease: A population-based comparative study of cohorts with and without comorbid hepatocellular carcinoma in taiwan (2020) (1)
Early specialised palliative care: interventions, symptoms, problems (2020) (1)
Formal and Informal Costs of Care for People With Dementia Who Experience a Transition to Hospital at the End of Life: A Secondary Data Analysis. (2022) (1)
Assessment Of Health Related Quality Of Life (HRQOL) In Connective Tissue Disease Associated Interstitial Lung Diseases (CTD-ILD) (2011) (1)
A randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy: recruitment, refusal, randomisation and missing data (2014) (1)
Preferences and priorities to manage clinical uncertainty for older people with frailty and multimorbidity: a discrete choice experiment and stakeholder consultations (2021) (1)
HIV / AIDS in the age of palliative care. Foreword. (2001) (1)
“You can do it yourself and you can do it at your convenience”: internet accessibility and willingness of people with chronic breathlessness to use an internet-based breathlessness self-management intervention during the COVID-19 pandemic (2022) (1)
Just Palliative Care? Integrated Models of Care (2008) (1)
“The whole of humanity has lungs, doesn't it? We are not all the same sort of people”: patient preferences and choices for an online, self-guided chronic breathlessness supportive intervention: SELF-BREATHE (2022) (1)
Building user involvement in motor neurone disease: key lessons. (2004) (1)
Integrated Palliative Care Outcome Scale for Dementia (2018) (1)
25 Years: Looking Back, Looking Forward. (2022) (1)
Support Team Assessment Schedule (2017) (1)
Psychological Services in Hospices in the UK and Republic of Ireland (2006) (1)
The sound of anxiety: exploring the effect of audio recordings of breathing on self-reported breathlessness (2021) (1)
How good is palliative care at following the MRC new guidance on complex interventions? (2011) (1)
Management of Advanced Disease, Fourth edition (2012) (1)
Acute care utilisation towards the end of life and the place of death for patients with serious mental disorders: a register-based cohort study in South London. (2021) (1)
The Future of Palliative Medicine (2021) (1)
Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia (2022) (1)
Neuromuscular electrical stimulation in adults with advanced disease: An updated Cochrane systematic review (2016) (1)
Discussion of Quality and Audit in Health (2006) (1)
Implementing Outcome Measures in Palliative Care. (2018) (1)
Integrating palliative care into the ICU: a lasting and developing legacy (2022) (1)
Supporting bereaved students in primary and secondary schools (2004) (1)
Understanding what matters most to people with multiple myeloma: a qualitative study of views on quality of life (2014) (1)
Palliative care in cancer: how to improve clinical research. (2010) (1)
Establishing the Evidence Base for Palliative Care to the Medically-Underserved with HIV/AIDS (2004) (1)
Management of chronic breathlessness: a multinational survey of respiratory medicine and palliative care doctors (2020) (1)
First international symposium on places of death (2006) (1)
The 'Which Tool' Guide: Preliminary review of tools to measure clinical effectiveness in palliative care. (2001) (1)
Quality assurance and audit in palliative care (2000) (1)
Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal. (2021) (1)
Hospital-based specialist palliative care compared with usual care for adults with advanced illness and their caregivers: a systematic review (2021) (1)
P12 Predictors of mood in amyotrophic lateral sclerosis: physical and psychological factors (2012) (1)
Feasibility of assessing quality of care at the end of life in two cluster trials using an after-death approach with multiple assessments (2014) (1)
OP70 Place of Cancer Deaths in England, 2001-2010: Time Trends and Determinants (2012) (1)
Optimising breathlessness triggered services for older people with advanced diseases: a multicentre economic study (OPTBreathe) (2022) (1)
Twitter discussions from a respirology journal club - authors' reply. (2015) (1)
Conclusions from the Meeting (2001) (1)
Textbook of Clinical Pain Management: Cancer Pain (2008) (1)
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JAN Forum: your views and letters (2002) (1)
The challenges for policies and practices relating to MND health and social care. 13th International Symposium on ALS/ MND, Melbourne (2002) (1)
Holistic services for chronic breathlessness in people with advanced disease: a systematic review and meta-analysis (2018) (1)
Maintaining Dignity at the End of Life: The Views of Older People in Care Homes (2008) (1)
P86 The assessment of health related quality of life in sarcoidosis with the King's Sarcoidosis Questionnaire (KSQ) (2011) (1)
Pain experienced by patients attending a diabetes outpatient clinic: prevalence, severity and impact on psychosociall function (2004) (1)
Association of primary and community care services with emergency visits and hospital admissions at the end of life in people with cancer: a retrospective cohort study (2022) (1)
Development and Evaluation of Complex Interventions in Palliative Care (2019) (1)
What influenced people with chronic or refractory breathlessness and advanced disease to take part and remain in a drug trial? A qualitative study (2020) (1)
Intractable breathlessness in COPD – A suitable case for palliation? (2011) (0)
The Development Of The King's Fibrosis Questionnaire (KFQ) For Patients With Idiopathic Pulmonary Fibrosis (IPF) And Other Interstitial Lung Diseases (ILD's) (2011) (0)
Promoting supportive and palliative care research by a management fellow (2011) (0)
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Ethnicity affects the experience of family caregivers of people living with severe MS: findings from a cross sectional survey (2016) (0)
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How do we best evaluate interventions that aim to support bereaved schoolchildren and their teachers (2004) (0)
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Book reviews : Irvine D, Irvine S eds 1991: Making sense of audit. Oxford: Radcliffe Medical Press. xi + 162pp; figs. £12.50 (PB). ISBN 1 87090 12 1 (1992) (0)
A checklist for reporting factor analysis in palliative care research (2011) (0)
8 Developing a casemix classification for specialist palliative care: a multi-centre cohort study to develop a patient-specific prediction model for the cost of specialist palliative care using classification and regression tree analysis (2021) (0)
assessment of health status Sarcoidosis Questionnaire for the The development and validation of the King ' s and Surinder S Birring (2012) (0)
The King's sarcoid questionnaire (KSQ): The development of a novel health related quality of life (HRQOL) questionnaire (2011) (0)
5th Congress of the European Association of Palliative Care (1997) (0)
Edinburgh Research Explorer 'Burden to others' as a public concern in advanced cancer (2013) (0)
Challenges of research in palliative medicine (2009) (0)
Mastering breathlessness in patients with advanced respiratory disease (2014) (0)
The effectiveness and cost-effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers ( Protocol ) (0)
O-27 Rehabilitation provision across uk hospice services (2017) (0)
Better Breathlessness Services for Older People with Advanced Diseases: A Multicentre Discrete Choice Experiment and Economic Modelling (OPRBreathe) (2021) (0)
Co-ordination of generalist care for patients towards the end of life: a literature review (2011) (0)
3 Initial assessment (2010) (0)
Causal attributions of multiple sclerosis among black Caribbean and white British people with MS (2012) (0)
Of the 11th International Congress on Care of the Terminally III (1996) (0)
Art: Matters of Life and Death (2000) (0)
Validity , reliability and responsiveness to change of the Italian palliative care outcome scale : A multicenter study of advanced cancer patients Cancer palliative care (2016) (0)
Palliative Care Core Audit measure for palliative care : the palliative care Development and validation of a core outcome (1999) (0)
Assessment and management of other problems (2009) (0)
32 ETHNICITY AFFECTS THE EXPERIENCE OF FAMILY CAREGIVERS OF PEOPLE LIVING WITH SEVERE MS: FINDINGS FROM A CROSS SECTIONAL SURVEY (2016) (0)
Measuring the Intensity, Cost and Duration of Palliative Care-Relevant Cases Among all Hospitalizations in Three US and UK Hospitals (TH316-B) (2013) (0)
Author's response to reviews Title:Validity, reliability and responsiveness to change of the Italian Palliative care Outcome Scale. A multicentre study of advanced cancer patients. Authors: (2015) (0)
UvA-DARE ( Digital Academic Repository ) An integrated palliative and respiratory care for patients with advanced disease and refractory breathlessness : a randomised controlled trial (2014) (0)
Beyond the randomised trial: evidence and effectiveness in palliative care: Abstracts (2004) (0)
Care in the last year of life: satisfaction with health services among the black Caribbean population in an inner London health authority (1999) (0)
P87 The needs and experiences of progressive idiopathic fibrotic interstitial lung disease patients, informal caregivers and health professionals: a qualitative study (2011) (0)
Clinical audit, quality improvement, and safety in palliative medicine (2021) (0)
PP58 Exploration of the relationship between area-based measures of deprivation and parental occupation socio-economic classification (SEC) information contained in death registry data for children and young people (CYP) (2014) (0)
OP29 A measure to improve assessment and management of symptoms and concerns of people with dementia in care homes: development and mixed methods evaluation (2018) (0)
Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries (2022) (0)
Resuscitation preferences of terminally ill patients: influencing factors and stability over time: a systematic review (2004) (0)
Gaps and pitfalls in collating the evidence for policy on service delivery in supportive and palliative care (2004) (0)
PS43 What is Important to the Quality of Life of People with Multiple Myeloma? Implications for the Design Of Quality of Life Questionnaires (2012) (0)
141 What makes patients prefer hospital based breathlessness support services compared to GP based services? Qualitative analysis of free text questions within a discrete choice experiment (2019) (0)
145 What outcomes are important in a drug trial for chronic breathlessness and are we capturing change? (2019) (0)
TRENDS IN PLACE OF DEATH, AND THE EFFECT OF DEATH CERTIFICATE CLASSIFICATION AND CODING CHANGES, IN PARKINSONS DISEASE, MOTOR NEURONE DISEASE, AND MULTIPLE SCLEROSIS IN ENGLAND: 1993–2010 (2012) (0)
Myeloma Patient Outcome Scale (2019) (0)
Projections for End of Life Care (2009) (0)
and end-of-life care research MORECare research methods guidance development: Recommendations for ethical issues in palliative (2014) (0)
Can we really consider quality of life as an outcome of palliative care? Author's response (2003) (0)
Facing up to breathlessness (2016) (0)
6 The age of the carer has an impact on the burden of care experienced by the carer (2019) (0)
Chapter 9 Cancer neuropathic pain (2010) (0)
G511(P) The trends and geographical variations in place of deaths in children and young people with cancer: Population-based study in England 1993–2013 (2016) (0)
Conducting theory with an eye to practice (2001) (0)
P47 Impact of the mental capacity act on place of death in heart failure patients with or without comorbid dementia (2019) (0)
Developing a palliative care and neurological service for people severely affected by multiple sclerosis (2004) (0)
OP22 Projections of Healthcare Costs in the Last Year of life for Older Cancer Patients in European Union Member States (2008-2030) (2012) (0)
Implementation of the Mental Capacity Act: a national observational study of changes in place of death for older heart failure patients with or without comorbid dementia (2021) (0)
Proceedings of the 6th International Conference on home and community care for people with HIV (2003) (0)
PWE-119 Complex symptom burden and unmet need in end-stage liver disease (2015) (0)
38 From theory to clinical practice: lessons learned from the delivery of a breathlessness support service (2018) (0)
OP94 Causes of death in long-term neurological conditions: a population-based study in England, 2012–2014 (2016) (0)
considerations . dementia services : some practical Outcome measures for routine use in (0)
Palliative care needs of people severely affected by multiple sclerosis (MS): views of healthcare professionals (2004) (0)
IMPROVING THE DELIVERY OF HIV OUTPATIENT SERVICES IN SUB-SAHARAN AFRICA (2013) (0)
Oral presentations Setting standards for symptom control in the dying patient by using an integrated care pathway (1998) (0)
Dying at home: Making it an achievable goal (2006) (0)
Correction: Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall) (2022) (0)
Assessment and Screening of Older People: Needs Assessment for Older People (1994) (0)
Preferences of Older People with a Life-Limiting Illness: Evidence from a Discrete Choice Experiment. (2022) (0)
Drivers of care costs and quality in the last three months of life among older people receiving palliative care: a multinational mortality follow-back survey across England, Ireland and the USA. (2020) (0)
Making palliative care matter. (2014) (0)
Modified Integrated Palliative Care Outcome Scale--German Version (2019) (0)
Book reviews : Warfield CA ed 1993: Principles and practice of pain management. New York: McGraw-Hill. 552pp. £56 (HB). ISBN 0 07 0682917 (1993) (0)
Short-term integrated rehabilitation: a focus group study (2018) (0)
The Danish Palliative Care Trial (DanPaCT) protocol: preliminary results and subsequent protocol revision (2012) (0)
Determining the prevalence of palliative needs and exploring screening accuracy of depression and anxiety items of a patient reported outcome measure – a multi-centre study (2019) (0)
Palliative care must encompass health, social and educational services (2017) (0)
Outcome Measures in Palliative Care : Sharing the POS Family of Measures (2018) (0)
International Measurement of Cost Avoidance Through Specialist Palliative Care: A Universally Applicable Approach (TH316-C) (2013) (0)
Sociodemographic determinants of place of death in dementia: whole population cross-sectional analysis in England, 2001–10 (2013) (0)
Effect of listening to breathing recordings on self-reported breathlessness: a public experiment. (2023) (0)
Response to Zhou (2021) "Comment on Evans et al. (2021) 'Community-based short-term integrated palliative and supportive care reduces symptom distress for older people with chronic noncancer conditions compared with usual care'". (2021) (0)
Developing quality end-of-life HIV care in Africa: findings from a continent-wide provider survey. (2004) (0)
The impact of disease-related symptoms and palliative care concerns on health-related quality of life in multiple myeloma: a multi-centre study (2016) (0)
‘Burden to others’ as a public concern in advanced cancer: a comparative survey in seven European countries (2013) (0)
Translation and cross-cultural adaptation of the Integrated Palliative Care Outcome Scale in Hindi: Toward capturing palliative needs and concerns in Hindi speaking patients (2023) (0)
Open downloaded from King’s Research Portal (2008) (0)
Oxford Textbook of Palliative Medicene - 3rd Edition (2004) (0)
Experiences and characteristics of episodic breathlessness (EB) in patients with advanced disease - a systematic review (2012) (0)
38 Growing need, growing complexity: projections of palliative care need and multi-mortality in scotland (2019) (0)
Implementation of the Mental Capacity Act: a national observational study comparing resultant trends in place of death for older heart failure decedents with or without comorbid dementia (2022) (0)
Book reviews : Round up (1994) (0)
O-2 ‘Going against the grain of all we do’: hospice staff experiences of moral distress during COVID-19 (2021) (0)
Observational generation of robust outcome evidence (2017) (0)
PALLIATIVE CARE NEEDS AMONG PERSONS WITH NON-CANCER CHRONIC ILLNESSES AND THEIR CARERS (2017) (0)
Improving the assessment of quality of life in the clinical care of myeloma patients: the development and validation of the Myeloma Patient Outcome Scale (MyPOS) (2015) (0)
Applying person-centred care to support trial recruitment and retention in a randomised trial for patients with refractory breathlessness and advanced disease: a qualitative study. (2019) (0)
Symptom management in people dying with COVID-19: multinational observational study (2022) (0)
Palliative care delivery models (2021) (0)
Deaths at home, area-based deprivation and the effect of the Covid-19 pandemic: An analysis of mortality data across four nations (2023) (0)
Improving communication between service users and professionals via the internet (2004) (0)
Response to: Buchan J.E.F., Corner J. & Bond S. (2003) JAN Forum. Journal of Advanced Nursing 43, 531-534. (2003) (0)
What influenced people with chronic breathlessness and advanced disease to take part and remain in a drug trial? A qualitative study. (2019) (0)
Cancer pain: assessment, diagnosis, and management (2011) (0)
Palliative care research: catch 22 (2017) (0)
P-198 Care home staff experiences of palliative and end-of-life care in care homes during COVID-19 (2021) (0)
integrated care pathways for end of life care perceptions of the benefits and harms of study of health care professionals ' ' It doesn ' t do the care for you ' : a qualitative (2017) (0)
Report of the british psychosocial oncology group annual conference 1992 (1993) (0)
List of research outputs (2014) (0)
Alternative to improve palliative care for all patients and families in critical care units: development and preliminary evaluation following MRC guidance of the King's Psychosocial, Assessment and Care tool (2013) (0)
Epidemiology of Pain.IK Crombie, PR Croft, SJ Linton, L LeResche, M Von Korff (eds). Seattle, WA: IAS Press, 1999, pp.332. ISBN 0-931092-25-6. (2002) (0)
Inclusion of palliative and end of life care in health strategies aimed at integrated care: a documentary analysis [version 2; peer review: 2 approved] (2022) (0)
Health Services Research (2009) (0)
COMPREHENDING THE INEXPLICABLE: QUALITATIVE ACCOUNTS OF BLACK CARIBBEAN AND WHITE BRITISH PEOPLE SEVERELY AFFECTED BY MULTIPLE SCLEROSIS (2014) (0)
Systematic Review and Meta-Analyses Factors associated with older people’s emergency department attendance towards the end of life: a systematic review (2018) (0)
Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV) (2023) (0)
(2017). A Systematic Review of End-of-Life Care Communication Skills Training for Generalist Palliative Care Providers: Research Quality and Reporting Guidance. Journal Pain and Symptom (0)
Oxford Textbook of Primary Medical Care. Volume 1 (2004) (0)
Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers (2023) (0)
Specific conditions and situations (2009) (0)
13th International Symposium on ALS/MND (2002) (0)
End-of-life home and community care: models, challenges and current priorities (2003) (0)
Repository ) ‘ Peace ’ and ‘ life worthwhile ’ as measures of spiritual well-being in African palliative care : a mixed-methods study (2013) (0)
Proceedings of the Patient Reported Outcome Measures (PROMs) Research Conference, Sheffield 2021 (2022) (0)
Proceedings of the Patient Reported Outcome Measures (PROMs) Research Conference, Sheffield 2021 (2022) (0)
A Multi-method Approach to Questionnaire Development for a Cross-national Survey of Public Views on End of Life Care (2010) (0)
A randomised, controlled, feasibility trial of an online, self-guided breathlessness supportive intervention (SELF-BREATHE) for individuals with chronic breathlessness due to advanced disease (2023) (0)
Effectiveness ofcareforolder people: areview (1994) (0)
Meeting the Palliative Care Needs of Stroke Patients (2010) (0)
Developing a decision support tool for responding to patients' reported levels of information needs, family anxiety, depression, and breathlessness. (2014) (0)
Quality criteria valuable with slight modification. Auther's reply (2007) (0)
The effectiveness and cost-effectiveness of hospital palliative care for adults affected by advanced illness and breathlessness: a systematic review and meta-analysis (2019) (0)
Symptom dimensions in people affected by long-term neurological conditions: a factor analysis of a patient-centred palliative care outcome symptom scale (2019) (0)
Dying at Home (2021) (0)
Provision of palliative and end-of-life care in UK care homes during the COVID-19 pandemic: A mixed methods observational study with implications for policy (2023) (0)
Fostering hope and enhancing end of life experiences: two Phase II RCTs of dignity therapy (2011) (0)
Challenges of Research in Palliative and Supportive Medicine (2021) (0)
COMPASS collaborative research Strand 1: assessment (2011) (0)
Matters of Life and Death (2000) (0)
Research and audit (2009) (0)
How to analyse palliative care outcome data for patients in sub-Saharan Africa : an international multicentred factor analytic examination of the APCA African (2017) (0)
The use of high doses of adrenaline in paediatric cardiac resuscitation (1996) (0)
The King's brief interstitial lung disease quality of life questionnaire (K-BILD) for patients with IPF and other ILDs (2011) (0)
343 INVITED The Efficacy of Benzodiazepines for Palliating Dyspnoea: a Systematic Review (2011) (0)
Multi-centre evaluation of palliative day care (2000) (0)
147 What are the main concerns of participants in a drug trial for chronic breathlessness? (2019) (0)
Primary care service use by end-of-life cancer patients: a nationwide retrospective cohort study in the United Kingdom (2019) (0)
Book reviews : Waller A, Caroline NL 1996. Handbook of palliative care in cancer. Oxford: Butterworth/Heinemann. xxxi + 485pp. £25.00 (PB). ISBN 0 7506 9744 (1997) (0)
Meeting existential needs. A systematic review of interventions at the end of life. (2005) (0)
MORECare research methods guidance development: recommendations for presenting results to stakeholders from palliative and end of life care research (2012) (0)
RF1-A How Empowering Is Hospital Care for Older Adults, and What Difference Does Palliative Care Make? A Cross-National Ethnography in England, Ireland and the USA (2016) (0)
A NEW MODEL OF IMPROVED END OF LIFE SUPPORT FOR FAMILIES OF DYING PATIENTS LEADS TO BETTER PROVISION FOR ALL PATIENTS AND RELATIVES (2010) (0)
Symptom severity and control of advanced cancer: After-death interviews with bereaved family members/surrogates of first generation black Caribbeans and white patients (2003) (0)
Where and by whom do patients want to be cared for: Preferences for the Breathlessness Support Service in England? (2019) (0)
Making outcome measures work in the context of deteriorating health - lessons for implementation : a multi-method qualitative study (2018) (0)
Multi-professional palliative care education: does it make a difference? (2004) (0)
part 1: Mapping Complexity of Needs in Palliative Care: A Qualitative Study of Stakeholder Perspectives : abstract number: Fc57 (2016) (0)
Involving motor neurone disease users in practice and policy development (2002) (0)
Bivariate graphs by causes of deaths (2014) (0)
The roles of interactive multimedia technology and videotape for health promotion and patient education (2003) (0)
Building a virtual community in MND (2002) (0)
Outcome evaluation of a short-term group intervention for informal caregivers in home palliative care (2003) (0)
Co-ordination of generalist end of life care in the UK: a multi-site ethnographic study (2011) (0)
Palliative care in the age of HIV / AIDS. Conclusions from the meeting. (2001) (0)
How Many People Need Palliative Care? A Refined Method to Estimate the Size of a Palliative Care Population Nationally (S745) (2013) (0)
Time to go beyond observing the problem. Response to: Dying in hospital: socioeconomic inequality trends in England, DOI: 10.1177/1355819616686807. (2018) (0)
Integrated Palliative care Outcome Scale--Italian Version (2019) (0)
Managing bereaved children in primary and secondary schools (2004) (0)
Primary palliative care services must be resourced better by both day and night (2017) (0)
Book reviews : Shaw C 1992: Specialty medical audit. London: King's Fund Centre. 206pp. £7.50 (PB). ISBN 1 85 717 0202 (1993) (0)
Study of white coat effect on the prognosis of women with breast cancer. (2004) (0)
Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic Review and Meta-analysis. Journal of Pain and Symptom Management, 54(3), 404-416.e5 (0)
33 What are the best settings and methods for recruitment into a randomised trial in severe breathlessness? (2019) (0)
Comprar Crib Death: The Sudden Infant Death Syndrome | Alison Carr | 9780879936181 | Wiley (2009) (0)
Health professionals' views on translating clinical tools: an exploratory study with special reference to the Palliative care Outcome Scale (2002) (0)
' s response to reviews Title : General Practitioners ' use and experiences of palliative care services : a survey in South East England (2008) (0)
Living without principles (2001) (0)
Emergencies in palliative medicine (2009) (0)
Integrating Preferences for End of Life Care in the Continuum of Cancer Care (2014) (0)
Accreditation of specialist palliative care: minimum standards or improved care? (1998) (0)
Is There Evidence That Palliat ive Care Teams Alter End-of-Life Experiences of Pat ients and Their Caregivers ? (2018) (0)
Change in multidimensional problems and quality of life over three months after HIV diagnosis: a multicentre longitudinal study in Kenya and Uganda (2019) (0)
Development and Validation of the Myeloma Patient Outcome Scale (MyPOS): A Questionnaire to Assess Physical, Psychological and Health Care Palliative Care Needs for Use in the Clinical Care of People with Multiple Myeloma (2014) (0)
13th International Sysmposium on ALS/ MND (2002) (0)
Chronic cough: health status assessment with EQ-5D-5L questionnaire (2017) (0)
The measurement of the impact of breathlessness in advanced COPD (2011) (0)
British Psychosocial Oncology Group: Seventh AnnualConference (1992) (0)
Advancing palliative care by learning. (2013) (0)
UvA-DARE ( Digital Academic Repository ) Understanding breathlessness : cross-sectional comparison of symptom burden and palliative care needs in chronic obstructive pulmonary disease and cancer (2010) (0)
Total no. of procedures Total no. of complications Admission rate for complications Total bed days per biopsy Projected bed days if ambulatory care for complications implemented (2012) (0)
Care in the last year of life: a comparison of first generation black Caribbean and white patients with progressive disease in south London. Final Report. (2001) (0)
Psychosocial The Patient, Process and Issues in Palliative Care: the Family, and the Outcome of Care (1995) (0)
Outcomes of bereavement among relatives or close friends of deceased first generation Carribean and native-born white patients with advanced disease: does ethnicity matter? (2004) (0)
Reversal in trend towards hospital death for patients dying with dementia: a 10 year population-based study of associated clinical and service provision factors (2013) (0)
184 Cost-effectiveness of pulmonary rehabilitation: a systematic review (2020) (0)
Rehabilitation goals towards the end of life: what matters to people with advanced disease in hospice care? (2018) (0)
European Palliative Care Academy – Leadership Course: Bedarfsanalyse, Kursstruktur und Evaluation der ersten Kurswoche (2014) (0)
Population-Based Needs Assessment for Patients and those Important to them, Such as Families (2021) (0)
Hospice and Palliative Care (2008) (0)
US and UK horizons in palliative care (2001) (0)
Epidemiology of Pain. (2002) (0)
Towards Improving the Coordination of Care for People with Advanced Life-Threatening Diseases: A UK Mixed-Method Study (2012) (0)

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