Jeremy Sugarman
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American bioethicist
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Jeremy Sugarman's Degrees
- Doctorate Medicine University of California, San Francisco
- PhD Philosophy University of California, Berkeley
Why Is Jeremy Sugarman Influential?
(Suggest an Edit or Addition)According to Wikipedia, Jeremy Sugarman is an American bioethicist and physician. He is the Harvey M. Meyerhoff Professor of Bioethics and Medicine at the Johns Hopkins Berman Institute of Bioethics. He is a fellow of the American Association for the Advancement of Science, the American College of Physicians, the National Academy of Medicine, and the Hastings Center.
Jeremy Sugarman's Published Works
Published Works
- Ethics and Best Practice Guidelines for Training Experiences in Global Health (2010) (415)
- Ethics in human subjects research: do incentives matter? (2004) (281)
- The Limitations of “Vulnerability” as a Protection for Human Research Participants (2004) (261)
- Research Ethics Recommendations for Whole-Genome Research: Consensus Statement (2008) (254)
- Ethical goals of community consultation in research. (2005) (243)
- Do Patients Treated With Dignity Report Higher Satisfaction, Adherence, and Receipt of Preventive Care? (2005) (242)
- Determining when quality improvement initiatives should be considered research: proposed criteria and potential implications. (2000) (234)
- New ISSCR guidelines underscore major principles for responsible translational stem cell research. (2008) (230)
- Ethical considerations for short-term experiences by trainees in global health. (2008) (222)
- Getting Meaningful Informed Consent from Older Adults: A Structured Literature Review of Empirical Research (1998) (208)
- Variability among institutional review boards’ decisions within the context of a multicenter trial (2001) (190)
- Teaching professional development in medical schools (2001) (185)
- Empirical research on informed consent. An annotated bibliography. (1999) (184)
- Oversight of Human Participants Research: Identifying Problems To Evaluate Reform Proposals (2004) (182)
- Direct-Acting Antiviral Prophylaxis in Kidney Transplantation From Hepatitis C VirusInfected Donors to Noninfected Recipients (2018) (179)
- Setting Global Standards for Stem Cell Research and Clinical Translation: The 2016 ISSCR Guidelines (2016) (174)
- A national survey of provisions in clinical-trial agreements between medical schools and industry sponsors. (2002) (172)
- Cabotegravir for HIV Prevention in Cisgender Men and Transgender Women. (2021) (163)
- Moral standards for research in developing countries: from "reasonable availability" to "fair benefits". (2004) (156)
- Methods in Medical Ethics (2010) (148)
- Exploring the ethical and regulatory issues in pragmatic clinical trials (2015) (143)
- Marketing of unproven stem cell–based interventions: A call to action (2017) (142)
- HIV prevention in clinical care settings: 2014 recommendations of the International Antiviral Society-USA Panel. (2014) (125)
- Evaluating the quality of informed consent (2005) (123)
- Fertility patients' views about frozen embryo disposition: results of a multi-institutional U.S. survey. (2010) (122)
- Ethics and regulatory complexities for pragmatic clinical trials. (2014) (122)
- Recommendations for analytical antiretroviral treatment interruptions in HIV research trials-report of a consensus meeting. (2019) (120)
- Ethics: Fair benefits for research in developing countries: Participants in the 2001 conference on ethical aspects of research in developing countries (2002) (120)
- Measuring Trust in Medical Researchers (2006) (117)
- Evaluating community engagement in global health research: the need for metrics (2015) (114)
- Safety, tolerability, and pharmacokinetics of long-acting injectable cabotegravir in low-risk HIV-uninfected individuals: HPTN 077, a phase 2a randomized controlled trial (2018) (110)
- Pragmatic clinical trials embedded in healthcare systems: generalizable lessons from the NIH Collaboratory (2017) (107)
- Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research (2008) (105)
- What patients say about medical research. (1998) (102)
- Factors that affect infertility patients' decisions about disposition of frozen embryos. (2006) (100)
- Guidelines for Reporting Trial Protocols and Completed Trials Modified Due to the COVID-19 Pandemic and Other Extenuating Circumstances: The CONSERVE 2021 Statement. (2021) (100)
- Improving informed consent in clinical trials: a duty to experiment. (1999) (92)
- Impact of percutaneous coronary intervention performance reporting on cardiac resuscitation centers: a scientific statement from the American Heart Association. (2013) (90)
- Seeking assent and respecting dissent in dementia research. (2010) (87)
- Monitoring and ensuring safety during clinical research. (2001) (85)
- Ethical Issues in Umbilical Cord Blood Banking (1997) (84)
- ISSCR Guidelines for Stem Cell Research and Clinical Translation: The 2021 update (2021) (82)
- A Response to Commentators on “The Limitations of ‘Vulnerability’ as a Protection for Human Research Participants” (2004) (81)
- Untying the Gordian knot: policies, practices, and ethical issues related to banking of umbilical cord blood. (2005) (78)
- Research priorities for an HIV cure: International AIDS Society Global Scientific Strategy 2021 (2021) (78)
- How Proxies Make Decisions about Research for Patients with Alzheimer's Disease (2001) (77)
- Improving informed consent: the medium is not the message. (2003) (75)
- Ethical aspects of banking placental blood for transplantation. (1995) (72)
- Pre-counseling education materials for BRCA testing: does tailoring make a difference? (2002) (71)
- Protecting research subjects under the waiver of informed consent for emergency research: experiences with efforts to inform the community. (2003) (68)
- Empirical Research on Informed Consent (1999) (66)
- Study of the media's potential influence on prospective research participants' understanding of and motivations for participation in a high-profile phase I trial. (2002) (65)
- Physicians' ethical obligations regarding alternative medicine. (1998) (65)
- Disclosure of cancer diagnosis and prognosis in Northern Tanzania. (2003) (64)
- A scalable, integrated intervention to engage people who inject drugs in HIV care and medication-assisted treatment (HPTN 074): a randomised, controlled phase 3 feasibility and efficacy study (2018) (63)
- The Ancillary-Care Obligations of Medical Researchers Working in Developing Countries (2008) (62)
- An ethics curriculum for short-term global health trainees (2013) (61)
- Ethical issues in umbilical cord blood banking. Working Group on Ethical Issues in Umbilical Cord Blood Banking. (1997) (61)
- Ethical issues in identifying and recruiting participants for familial genetic research (2004) (61)
- The OHRP and SUPPORT. (2013) (61)
- Ethics in the use of extracorporeal cardiopulmonary resuscitation in adults. (2015) (60)
- Ethical issues in human organoid and gastruloid research (2017) (60)
- Are withholding and withdrawing therapy always morally equivalent? (1994) (60)
- Toward protecting the safety of participants in clinical trials. (2003) (59)
- An intervention to improve cancer patients' understanding of early-phase clinical trials. (2009) (56)
- New ISSCR guidelines: clinical translation of stem cell research (2016) (56)
- The Future of Empirical Research in Bioethics (2004) (56)
- Medical and Nursing Students' Television Viewing Habits: Potential Implications for Bioethics (2008) (56)
- Toward the ethical evaluation and use of maternal-fetal surgery. (2001) (55)
- Talking about cases in bioethics: the effect of an intensive course on health care professionals (2000) (54)
- Human stem cell ethics: beyond the embryo. (2008) (52)
- Challenges to Effective Research in Acute Trauma Resuscitation: Consent and Endpoints (2011) (52)
- Realizing Shared Decision-making in Practice. (2019) (51)
- Field Notes (2000) (50)
- The inescapable relevance of bioethics for the practicing clinician. (2006) (49)
- Conducting empirical research on informed consent: challenges and questions. (2003) (48)
- The cost of institutional review boards in academic medical centers. (2005) (47)
- Principles, organization, and operation of a DNA bank for clinical trials: a Department of Veterans Affairs cooperative study. (2002) (47)
- Oversight on the borderline: Quality improvement and pragmatic research (2015) (47)
- Realizing HOPE: The Ethics of Organ Transplantation From HIV-Positive Donors (2016) (47)
- Bioethics and professionalism in popular television medical dramas (2010) (46)
- Policy: Global standards for stem-cell research (2016) (46)
- Informed consent in a clinical trial of a novel treatment for rheumatoid arthritis. (2003) (45)
- Cell-based interventions for neurologic conditions (2008) (45)
- Ethics and germline gene editing (2015) (44)
- Disclosing Conflicts of Interest in Clinical Research: Views of Institutional Review Boards, Conflict of Interest Committees, and Investigators (2006) (44)
- Bioethics consultation in the private sector. (2002) (43)
- Interrupting antiretroviral treatment in HIV cure research: scientific and ethical considerations (2017) (43)
- Fair Benefits for Research in Developing Countries (2002) (42)
- Purpose and Benefits of Early Phase Cancer Trials: What Do Oncologists Say? What Do Patients Hear? (2008) (42)
- Policies of Academic Medical Centers for Disclosing Financial Conflicts of Interest to Potential Research Participants (2006) (42)
- Ethical and regulatory issues of pragmatic cluster randomized trials in contemporary health systems (2015) (42)
- Who refuses enrollment in cardiac clinical trials? (2007) (41)
- Effects of Disclosing Financial Interests on Attitudes Toward Clinical Research (2008) (41)
- Beyond “Compliance”: The Role of Institutional Culture in Promoting Research Integrity (2010) (41)
- Preventive misconception: its nature, presence, and ethical implications for research. (2007) (39)
- Anticipated Ethics and Regulatory Challenges in PCORnet: The National Patient-Centered Clinical Research Network (2016) (38)
- The Role of Animal Models in Evaluating Reasonable Safety and Efficacy for Human Trials of Cell-Based Interventions for Neurologic Conditions (2009) (38)
- Disclosure of financial relationships to participants in clinical research. (2009) (38)
- Placebo-Controls in Short-Term Clinical Trials of Hypertension (2001) (37)
- Regulatory Challenges for the Resuscitation Outcomes Consortium (2008) (36)
- Proxies and Consent Discussions for Dementia Research (2007) (35)
- Controversy and quality improvement: lingering questions about ethics, oversight, and patient safety research. (2008) (35)
- So much for keeping secrets: The importance of considering patients' perspectives on maintaining confidentiality (2001) (35)
- Establishing HIV treatment as prevention in the HIV Prevention Trials Network 052 randomized trial: an ethical odyssey (2012) (35)
- Universal antiretroviral therapy for HIV infection: should US treatment guidelines be applied to resource-limited settings? (2013) (34)
- Views of potential research participants on financial conflicts of interest: barriers and opportunities for effective disclosure. (2006) (32)
- Perceptions of a short-term medical programme in the Dominican Republic: Voices of care recipients (2014) (32)
- Perceptions of HIV cure research among people living with HIV in Australia (2018) (32)
- HIV Cure Research: Expanding the Ethical Considerations (2013) (32)
- Developing ethics guidance for HIV prevention research: the HIV Prevention Trials Network approach (2010) (31)
- Ethical and Practical Issues Associated with Aggregating Databases (2008) (31)
- Ethical considerations in determining standard of prevention packages for HIV prevention trials: examining PrEP. (2013) (31)
- Consulting Communities When Patients Cannot Consent: A Multicenter Study of Community Consultation for Research in Emergency Settings* (2014) (30)
- Permission and Assent for Clinical Research in Pediatric Anesthesia (2002) (30)
- Ethical Challenges in International HIV Prevention Research (2004) (30)
- Informed Consent, Shared Decision-Making, and Complementary and Alternative Medicine (2003) (30)
- Patients' attitudes toward the donation of biological materials for the derivation of induced pluripotent stem cells. (2014) (29)
- Expanding Substance Use Treatment Options for HIV Prevention With Buprenorphine–Naloxone: HIV Prevention Trials Network 058 (2015) (29)
- Effects of disclosing financial interests on participation in medical research: a randomized vignette trial. (2008) (29)
- The Role of Institutional Support in Protecting Human Research Subjects (2000) (28)
- Ethics in primary care (2000) (28)
- Patient and Family Perspectives on Respect and Dignity in the Intensive Care Unit (2015) (28)
- The ethical review of health care quality improvement initiatives: findings from the field. (2010) (27)
- Special Scrutiny: A Targeted Form of Research Protocol Review (2004) (27)
- Optimization of informed consent for umbilical cord blood banking. (2002) (27)
- Addressing ethical challenges in US-based HIV phylogenetic research. (2020) (27)
- Hematopoietic growth factors—use in normal blood and stem cell donors: clinical and ethical issues (2008) (27)
- The Bio-PIN: a concept to improve biobanking (2011) (27)
- Ethical issues in evidence-based surgery. (2006) (27)
- Attitudes of maternal-fetal specialists concerning maternal-fetal surgery. (2001) (26)
- Revisiting Blood Safety Practices Given Emerging Data about Zika Virus. (2018) (26)
- Views of potential research participants on financial conflicts of interest barriers and opportunities for effective disclosure (2007) (26)
- Worst case bioethics: Death, disaster, and public health (2010) (26)
- The importance of cultural considerations in the promotion of ethical research with human biologic material. (2005) (25)
- Protecting Patients, Preserving Integrity, Advancing Health : Accelerating the Implimentation of COI Policies in Human Subjects Research (2008) (25)
- Examining Provisions Related to Consent in the Revised Common Rule (2017) (25)
- Ethical ramifications of alternative means of recruiting research participants from cancer registries (1999) (24)
- Linguistic and Cultural Challenges in Communication and Translation in US-Sponsored HIV Prevention Research in Emerging Economies (2015) (24)
- Evidence-Based Strategies for Shortening Informed Consent Forms in Clinical Research (2017) (24)
- Empirical research on informed consent with the cognitively impaired. (2003) (24)
- Community Consultation: Not the Problem—an Important Part of the Solution (2006) (24)
- Variability in the Costs of Institutional Review Board Oversight (2006) (24)
- Ethics and Pre-exposure Prophylaxis for HIV Infection (2013) (24)
- Severe cutaneous hypersensitivity reactions during treatment of tuberculosis in patients with HIV infection in Tanzania. (1992) (23)
- Experimental Philosophical Bioethics (2020) (23)
- Pulmonary embolism and splenic infarction in a patient with sickle cell trait (1990) (23)
- Dealing With the Long-Term Social Implications of Research (2011) (23)
- Ethical Considerations Concerning Amnioinfusions for Treating Fetal Bilateral Renal Agenesis. (2017) (23)
- Pregnant women's perspectives on umbilical cord blood banking. (1998) (22)
- Forecast for the Physician Payment Sunshine Act: Partly to Mostly Cloudy? (2014) (22)
- Understanding Treatment with Respect and Dignity in the Intensive Care Unit (2015) (21)
- Ethics, oversight and quality improvement initiatives (2010) (21)
- Patients' views concerning research on medical practices: Implications for consent (2016) (21)
- Ethics and the Business of Bioscience (2004) (21)
- Confirming comprehension of informed consent as a protection of human subjects (2006) (20)
- Unintended Changes in Cognition, Mood, and Behavior Arising from Cell-Based Interventions for Neurological Conditions: Ethical Challenges (2009) (20)
- How to determine whether existing human embryonic stem cell lines can be used ethically. (2008) (19)
- Toward a more comprehensive approach to protecting human subjects: the interface of data safety monitoring boards and institutional review boards in randomized clinical trials. (1998) (19)
- Risk in drug trials (2006) (18)
- Live case demonstrations: attitudes and ethical implications for practice. (2011) (18)
- Ethics in Population-Based Genetic Research (2004) (18)
- Ethics of ART interruption after stem-cell transplantation. (2016) (18)
- Willingness to Donate Organs Among People Living With HIV (2018) (18)
- The Cost of Ethics Legislation: A Look at the Patient Self-Determination Act (1993) (17)
- Ethical Hurdles for Translational Research (2003) (17)
- Health Care Professionals’ Perceptions and Experiences of Respect and Dignity in the Intensive Care Unit (2015) (17)
- Ethical issues in cord blood banking: summary of a workshop (1998) (17)
- Is the enrollment of racial and ethnic minorities in research in the emergency setting equitable? (2009) (17)
- Ethical issues in HIV prevention research with people who inject drugs (2014) (17)
- Ethical Considerations in Leaping from Bench to Bedside (1999) (16)
- Determining the appropriateness of including children in clinical research: how thick is the ice? (2004) (16)
- Biometrics and public health surveillance in criminalised and key populations: policy, ethics, and human rights considerations. (2019) (16)
- Getting the Ethics Right Regarding Research in the Emergency Setting: Lessons from the PolyHeme Study (2007) (16)
- HIV viral load monitoring among key populations in low‐ and middle‐income countries: challenges and opportunities (2017) (16)
- Determining the costs of Institutional Review Boards. (2007) (16)
- Ethics in the design and conduct of clinical trials. (2002) (16)
- The Baltimore Criteria for an ethical approach to penile transplantation: a clinical guideline (2020) (15)
- Applying justice in clinical trials for diverse populations (2007) (15)
- Commentary: Per capita payments in clinical trials: reasonable costs versus bounty hunting. (2010) (15)
- Participant Perspectives in an HIV Cure-Related Trial Conducted Exclusively in Women in the United States: Results from AIDS Clinical Trials Group (ACTG) 5366. (2020) (15)
- Investigator Disclosure and Advanced Cancer Patient Understanding of Informed Consent and Prognosis in Phase I Clinical Trials. (2018) (15)
- When Embryonic Stem Cell Lines Fail to Meet Consent Standards (2008) (15)
- Are Research Subjects Adequately Protected? A Review and Discussion of Studies Conducted by the Advisory Committee on Human Radiation Experiments (1996) (15)
- Ethics and hepatitis B cure research (2016) (15)
- Ethical considerations regarding oral preexposure prophylaxis in HIV prevention trials (2016) (15)
- Observations of Respect and Dignity in the Intensive Care Unit (2015) (15)
- Ethical and policy issues in the clinical translation of stem cells: report of a focus session at the ISSCR Tenth Annual Meeting. (2012) (15)
- Categorizing Empirical Research in Bioethics: Why Count the Ways? (2009) (15)
- The significance and expectations of HIV cure research among people living with HIV in Australia (2020) (14)
- Guidelines for global health training. (2011) (14)
- Toward Treatment With Respect and Dignity in the Intensive Care Unit (2015) (14)
- Enhancing communication among data monitoring committees and institutional review boards (2008) (14)
- India’s new policy to protect research participants (2013) (14)
- Comparison of Conflict of Interest Policies and Reported Practices in Academic Medical Centers in the United States (2006) (14)
- Medical and nursing students' television viewing habits: potential implications for bioethics. (2008) (14)
- Are there adverse consequences of quizzing during informed consent for HIV research? (2011) (14)
- Regional differences between people who inject drugs in an HIV prevention trial integrating treatment and prevention (HPTN 074): a baseline analysis (2018) (13)
- Questions concerning the Clinical Translation of Cell-Based Interventions under an Innovation Pathway (2012) (13)
- Developing model language for disclosing financial interests to potential clinical research participants. (2007) (13)
- The Cambridge Textbook of Bioethics: Primary care ethics (2008) (13)
- Ethics and Collateral Findings in Pragmatic Clinical Trials (2020) (12)
- Blood Transfusion Safety in Low-Resourced Countries: Aspiring to a Higher Standard (2020) (12)
- Is the emperor really wearing new clothes? Informed consent for acute coronary syndromes. (2000) (12)
- Catalysts for Conversations about Advance Directives: The Influence of Physician and Patient Characteristics (1994) (12)
- Addressing ethical challenges in HIV prevention research with people who inject drugs (2016) (12)
- Oversight of Financial Conflicts of Interest in Commercially Sponsored Research in Academic and Nonacademic Settings (2010) (12)
- Informed consent for BRCA1 and BRCA2 testing. (1998) (12)
- Banking for the future. (2000) (12)
- Community Consultation for Prehospital Research: Experiences of Study Coordinators and Principal Investigators (2014) (12)
- ICU-RESPECT: An index to assess patient and family experiences of respect in the intensive care unit. (2016) (12)
- Policy recommendations for addressing privacy challenges associated with cell-based research and interventions (2014) (12)
- Patients' perspectives on the derivation and use of organoids (2021) (12)
- Bioethical challenges with HIV treatment as prevention. (2014) (12)
- An ethics framework for consolidating and prioritizing COVID-19 clinical trials (2021) (12)
- Ethics and policy issues for stem cell research and pulmonary medicine. (2015) (12)
- Implementing post-trial access plans for HIV prevention research (2018) (11)
- Real‐time ethics engagement in biomedical research (2020) (11)
- Global health and orthopaedic surgery—A call for international morbidity and mortality conferences (2014) (11)
- The feasibility of recruiting and retaining men who have sex with men and transgender women in a multinational prospective HIV prevention research cohort study in sub‐Saharan Africa (HPTN 075) (2020) (11)
- Discussing Advance Directives under the Patient Self-Determination Act: A Unique Opportunity for Speech-Language Pathologists to Help Persons with Aphasia (1996) (11)
- Ethics guidance for HIV prevention trials (2003) (11)
- Physicians' perspectives regarding pragmatic clinical trials. (2016) (11)
- Navigating the Ethical Boundaries of Grateful Patient Fundraising. (2018) (10)
- Shared savings in accountable care organizations: how to determine fair distributions. (2014) (10)
- Measuring Patients’ Experiences of Respect and Dignity in the Intensive Care Unit: A Pilot Study (2015) (10)
- Educational Approaches to the Responsible Conduct of Clinical Research: An Exploratory Study (2007) (10)
- A Professional Standard for Informed Consent for Stem Cell Therapies. (2019) (10)
- Quality assurance questionnaire for professionals fails to improve the quality of informed consent (2007) (10)
- Balancing digital information-sharing and patient privacy when engaging families in the intensive care unit (2016) (10)
- Comparison of Approaches for Notification and Authorization in Pragmatic Clinical Research Evaluating Commonly Used Medical Practices (2017) (10)
- Social justice and HIV vaccine research in the age of pre-exposure prophylaxis and treatment as prevention. (2013) (9)
- Position statement on the provision and procurement of human eggs for stem cell research. (2013) (9)
- Ethical and practical considerations for mitigating risks to sexual partners during analytical treatment interruptions in HIV cure-related research (2021) (9)
- Reflections on Governance Models for the Clinical Translation of Stem Cells (2010) (9)
- Addressing guideline and policy changes during pragmatic clinical trials (2019) (9)
- Tackling Ethical Challenges of Premature Delivery of Stem Cell-Based Therapies: ISSCR 2018 Annual Meeting Focus Session Report. (2018) (9)
- Narrative Matters (2001) (9)
- Ethical Oversight of Multinational Collaborative Research: Lessons from Africa for Building Capacity and for Policy (2007) (9)
- Ethical Issues and Recommendations in Grateful Patient Fundraising and Philanthropy (2018) (9)
- Perspectives of clinical research coordinators on disclosing financial conflicts of interest to potential research participants (2007) (9)
- Perceptions, motivations, and concerns about living organ donation among people living with HIV (2018) (9)
- Toward achieving meaningful informed consent in AIDS vaccine trials with injection-drug users. (1994) (9)
- Ethics and stem cell therapeutics for cardiovascular disease. (2007) (9)
- Ethics in Behavioral Genetics Research (2004) (9)
- Blood money: ethical and legal implications of treating cord blood as property. (2001) (9)
- Trainees in Global Health Ethical Considerations for Short-term Experiences by (2008) (9)
- How the doctor got gagged. The disintegrating right of privacy in the physician-patient relationship. (1991) (8)
- Ethical considerations for new HIV prevention trials. (2019) (8)
- Using empirical data to inform the ethical evaluation of placebo controlled trials (2004) (8)
- Ethical issues in rheumatology clinical trials (2008) (8)
- Research oversight through new lenses: the consortium to examine clinical research ethics. (2003) (8)
- The Task Force Responds (2002) (8)
- A study of physician investigator (PI) disclosure of alternatives of care and prognostic information to advanced cancer patients (ACP) enrolling in phase I trials. (2009) (8)
- Structural and functional differences between decay-accelerating factor and red cell acetylcholinesterase. (1986) (8)
- Building early childhood systems : a resource handbook (1991) (8)
- Willingness to Accept HIV-infected and Increased Infectious Risk Donor Organs among Transplant Candidates Living with HIV. (2020) (8)
- ACMT Position Statement: Off-Label Prescribing during COVID-19 Pandemic (2020) (7)
- State Policies Affecting School-Linked Integrated Services (1996) (7)
- Article Commentary: Dolutegravir Monotherapy: When Should Clinical Practice be Clinical Research? (2016) (7)
- Community hospital oversight of clinical investigators' financial relationships. (2009) (7)
- Why ethics guidance needs to be updated for contemporary HIV prevention research (2020) (7)
- Ethical Considerations Related to Impaired Driving After Orthopaedic Injuries. (2016) (7)
- Ethical Implications of Modifying Lethal Injection Protocols (2008) (7)
- Response to Open Peer Commentaries on “Medical and Nursing Students' Television Viewing Habits: Potential Implications for Bioethics” (2008) (7)
- A Direct Observation Checklist to Measure Respect and Dignity in the ICU (2017) (7)
- Umbilical Cord Blood Collection, Storage and Transplantation: Issues and Recommendations for Expectant Parents and Patients (1999) (7)
- Ethics and Regulatory Barriers to Research in Emergency Settings. (2018) (7)
- Patient’s Perspectives of Experimental HCV-Positive to HCV-Negative Renal Transplantation: Report from a Single Site (2020) (7)
- Formative research in clinical trial development: attitudes of patients with arthritis in enhancing prevention trials (2006) (7)
- Empirical Approaches to Health Care Ethics (2007) (7)
- Beyond Consent: Seeking Justice in Research (2018) (6)
- Toward Definitive Trials and Improved Outcomes of Cardiac Arrest (2010) (6)
- Meaningfully Engaging Patients in ACO Decision Making. (2015) (6)
- Is Shared Decision Making an Appropriate Analytic Frame for Research on Medical Practices? (2015) (6)
- Ethics and the standards of prevention in HIV prevention trials. (2010) (5)
- Public views regarding the responsibility of patients, clinicians, and institutions to participate in research in the United States (2019) (5)
- Ethical Aspects of Stem Cell-Based Clinical Translation: Research, Innovation,and Delivering Unproven Interventions (2011) (5)
- Back to the rough ground: working in international HIV prevention as ethical debates continue. (2003) (5)
- Patients’ Views About the Disclosure of Collateral Findings in Pragmatic Clinical Trials: a Focus Group Study (2020) (5)
- Moral maladaptation? Reflections on a report of research involving the correction of endemic hypothyroidism in Africa. (1999) (5)
- Ethical issues in stem cell research and treatment (2008) (5)
- Ethical and Regulatory Concerns in Pragmatic Clinical Trial Monitoring and Oversight. (2020) (5)
- Ethics of HIV cure research: an unfinished agenda (2021) (5)
- Bioethical considerations in developing a biorepository for the Pneumonia Etiology Research for Child Health project. (2012) (5)
- Ethical and policy issues relating to progenitor-cell-based strategies for prevention of atherosclerosis (2007) (5)
- Ethics and Regulatory Challenges and Opportunities in Patient-Centered Comparative Effectiveness Research. (2016) (5)
- Rethinking Human Embryo Research Policies (2021) (5)
- Optimizing the Protection of Research Participants and Personnel in HIV-Related Research Where TB Is Prevalent: Practical Solutions for Improving Infection Control (2014) (5)
- Hawkeye Pierce and the Questionable Relevance of Medical Etiquette to Contemporary Medical Ethics and Practice (1994) (5)
- Missing the informed in consent. (2003) (5)
- Examining the Provisions for Research without Consent in the Emergency Setting (2007) (5)
- Barriers experienced by organ procurement organizations in implementing the HOPE act and HIV-positive organ donation (2021) (5)
- Emerging stem cell ethics (2018) (5)
- Should Hospital Ethics Committees Do Research? (1994) (5)
- Recognizing good decisionmaking for incapacitated patients. (1994) (4)
- Patient Reactions to Confidentiality, Liability, and Financial Aspects of Informed Consent in Cardiology Research (2010) (4)
- Ethical issues in gamete preservation for children undergoing treatment for cancer. (2001) (4)
- HIV Prevention and Hip Hop: What’s the Spin? (2015) (4)
- Ethics of research in usual care settings: Data on point (2016) (4)
- Certificates of confidentiality and unexpected complications for pragmatic clinical trials (2020) (4)
- Ethics and regulatory considerations for the clinical translation of somatic cell human epigenetic editing (2021) (4)
- Evolving ethics, policy and reimbursement issues of vascularized composite allotransplantation: Symposium summary (2019) (4)
- Medical education quartet (2001) (4)
- Using cognitive interviews to enhance measurement in empirical bioethics: Developing a measure of the preventive misconception in biomedical HIV prevention trials (2016) (4)
- Oral abstracts of the 21st International AIDS Conference 18–22 July 2016, Durban, South Africa (2016) (4)
- Positive Social Impacts Related to Participation in an HIV Prevention Trial Involving People Who Inject Drugs. (2015) (4)
- Climate of Respect Evaluation in ICUs: Development of an Instrument (ICU-CORE) (2018) (4)
- Goals of Medicine in the Course of History and Today: A Study in the History and Philosophy of Medicine (review) (2007) (4)
- 545 A randomized trial of a cd-rom educational intervention for advanced cancer patients (acp) enrolling in early phase trials (2003) (4)
- Relationships, Relationships, Relationships … (1997) (4)
- Ethical and Practical Issues Associated with the Possibility of Using Controlled Human Infection Trials in Developing a Hepatitis C Virus Vaccine. (2020) (3)
- Implications of universal screening for HIV infection (2013) (3)
- Reframing Recruitment: Evaluating Framing in Authorization for Research Contact Programs (2021) (3)
- Implementing Ethics Policies in Developing Countries: Ploughing on Parched Ground?. (2007) (3)
- Ethical issues in establishing the efficacy and safety of long-acting injectable pre-exposure prophylaxis for HIV prevention: the HPTN 083 trial. (2021) (3)
- Ethics and Research Assessing the Relative Roles of Genes and the Environment* (2004) (3)
- Toward Responsible Public Engagement in Neuroethics (2022) (3)
- Stakeholder perspectives regarding pragmatic clinical trial collateral findings (2020) (3)
- HIV cure research: print and online media reporting in Australia (2017) (3)
- Preventive Misconception and Risk Behaviors in a Multinational HIV Prevention Trial (2019) (3)
- Developing a competency framework for health research ethics education and training (2021) (3)
- Ethical and Practical Concerns about IRB Restrictions on the Use of Research Data. (2020) (3)
- Ethics of HIV and hepatitis B cure research. (2020) (3)
- Reported Participation Benefits in International HIV Prevention Research with People Who Inject Drugs. (2019) (3)
- Early experiences of independent advocates for potential HIV+ recipients of HIV+ donor organ transplants (2019) (3)
- Organizing for child advocacy: The children's lobby (1973) (3)
- A Text Filter for the Automatic Identification of Empirical Articles (1996) (3)
- Professional Healthcare Workers’ Attitudes Toward Treating Patients with Multidrug-Resistant Tuberculosis (1996) (3)
- Effects of a CD-ROM educational intervention (CD) on prognosis (prog) understanding among advanced cancer patients (acp) enrolling in early phase clinical trials. (2004) (3)
- Ethical issues on informed consent and recruitment for clinical trials. (2000) (3)
- VARIATION IN TIME TO NOTIFICATION OF ENROLLMENT AND RATES OF WITHDRAWAL IN RESUSCITATION TRIALS CONDUCTED UNDER EXCEPTION FROM INFORMED CONSENT. (2021) (3)
- Lying, cheating and stealing in clinical research (2004) (3)
- Ethical Considerations Regarding the Use of Race in Pulmonary Function Testing. (2022) (3)
- Public attitudes toward an authorization for contact program for clinical research (2020) (2)
- Physician-investigator (PI) and patient communication regarding altruism and non-therapeutic benefits in phase I trials. (2011) (2)
- Tb in a Global Health Exchange Program (2011) (2)
- Commentary: A call for preventive ethics (2009) (2)
- Development and implementation of participant safety plans for international research with stigmatised populations. (2018) (2)
- A Clinician’s Guide to Privacy and Communication in the ICU (2017) (2)
- Outcomes Research and Advance Directives (1994) (2)
- Talking about cases in bioethics: the eVect of an intensive course on health care (2000) (2)
- Leave me out: Patients’ characteristics and reasons for opting out of a pragmatic clinical trial involving medication adherence (2021) (2)
- Research, Evaluation, and Public Policy: An Invited Editorial. (1970) (2)
- Ethics and Medical Toxicology Research (2017) (2)
- 20 common problems ethics in primary care (2013) (2)
- The impact of COVID-19 on pragmatic clinical trials: lessons learned from the NIH Health Care Systems Research Collaboratory (2022) (2)
- Placebo revisited (2000) (2)
- Editors' Introduction to the Special Section on Ethics, Policy, and Autologous Cellular Therapies (2018) (2)
- Reviewing HIV-Related Research in Emerging Economies: The Role of Government Reviewing Agencies. (2016) (2)
- Of mice and men: skin cells, stem cells and ethical uncertainties. (2009) (2)
- Translating Professional Obligations to Care for Patients With Ebola Virus Disease Into Practice in Nonepidemic Settings (2015) (2)
- HIV prevention research and COVID-19: putting ethics guidance to the test (2021) (2)
- Examining the scale and outcomes of global health fellowship programs in the United States. (2012) (2)
- Pausing to Consider Recommendations for Recasting the Professionalism Movement in Academic Medicine (2004) (2)
- Guidelines for international service learning programs. (2011) (2)
- Positive Social Impacts Related to Participation in an HIV Prevention Trial Involving Medication Assisted Treatment of People Who Inject Drugs (2013) (2)
- Empirical research on informed consent. Special supplement (1999) (2)
- Participant Perspectives and Experiences Entering an Intensively Monitored Antiretroviral Pause (IMAP): Results from the AIDS Clinical Trials Group (ACTG) A5345 Biomarker Study. (2021) (2)
- More attention to the problem of research misconduct. (2001) (2)
- Should the Gold Rule? Assessing "Equivalent Protections" for Research Participants across International Borders (2005) (2)
- Abstract 149: The Method Matters: Community Consultation Methods Influence Attitudes and Understanding of Proposed Trial Using Exception from Informed Consent for Research in Emergency Settings (2012) (1)
- Human brain research and ethics (2015) (1)
- Policy recommendations for addressing privacy challenges associated with cell-based research and interventions (2014) (1)
- Patients’ Reactions to Letters Communicating Collateral Findings of Pragmatic Clinical Trials: a National Web-Based Survey (2021) (1)
- Ethical Issues in HSCT and Regenerative Medicine (2012) (1)
- Shared Savings in Accountable Care Organizations (2014) (1)
- Incentives and payments in pragmatic clinical trials: Scientific, ethical, and policy considerations (2021) (1)
- Monitoring Protocol Adherence (2017) (1)
- THE HISTORY OF ETHICAL ISSUES IN TRANSPLANTATION (2003) (1)
- Which PCTs Should Have a DMC (2017) (1)
- Unscientific Ethics: Science and Selective Ethics (2007) (1)
- Ethical Considerations in the Manufacture, Sale, and Distribution of Genome Editing Technologies (2018) (1)
- Evaluating community engagement in global health research: the need for metrics (2015) (1)
- Ethical Issues Involved in Grateful Patient Fundraising-Reply. (2019) (1)
- Taking a Hard Look at Advocacy in Research (2001) (1)
- Toward Meeting the Obligation of Respect for Persons in Pragmatic Clinical Trials. (2022) (1)
- Meeting the ethical promises of a policy regarding the disposal of autologous hematopoietic progenitor cells (2014) (1)
- Bringing science and advocacy together to address health needs of people who inject drugs (2017) (1)
- Screening for sickle-cell trait (1995) (1)
- Ethics challenges in sharing data from pragmatic clinical trials (2022) (1)
- Identification and management of pragmatic clinical trial collateral findings: A current understanding and directions for future research. (2021) (1)
- Potential donor characteristics and decisions made by organ procurement organization staff: Results of a discrete choice experiment (2021) (1)
- Ethical criteria for messages used in recruitment for cord blood banking (1999) (1)
- Developing ethics guidance for HIV prevention research: the HPTN approach (2011) (1)
- The influence of HIV serostatus on physicians' clinical decisions. (1994) (1)
- Reducing Consent Form Length: Stakeholder Support, Evidence-Based Strategies, and Regulatory Requirements. (2017) (1)
- Patients’ Experiences With HIV-positive to HIV-positive Organ Transplantation (2021) (1)
- Data, Policies and Conflicts of Interest in Research (2013) (1)
- Who should go first in trials with scarce agents? The views of potential participants. (2007) (1)
- Roles of Moral Philosophy in Appropriated Bioethics: A Response to Baker and McCullough (2007) (1)
- Challenges in the Ethical Review of Research Involving Complementary and Integrative Medicine (2016) (1)
- Medical Devices Policy and the Humanities: Examining Implantable Cardiac Devices (2008) (1)
- Ethics and Medical Toxicology Research (2017) (0)
- Ethical challenges in stem cell research and treatment (2013) (0)
- Defining Malaysia's health research ethics system through a stakeholder driven approach. (2023) (0)
- Existing and emerging ethical standards in global health education (2017) (0)
- In reply. (2019) (0)
- SocialWork 2-2014 Consulting Communities When Patients Cannot Consent : A Multi-Center Study of Community Consultation for Research in Emergency Settings (2019) (0)
- Reality Strikes: Thinking About the Ethics of Inclusion in Clinical Research (2003) (0)
- Informed Consent for Stem Cell-Based Interventions-Reply. (2020) (0)
- Authors' response to J Kahn (2007) (0)
- Talking About Futility (1996) (0)
- AJOB Empirical Bioethics: A Home for Empirical Bioethics Scholarship (2014) (0)
- Do Clinicians Have a Duty to Participate in Pragmatic Clinical Trials? (2022) (0)
- Challenges in Obtaining the Informed Perspectives of Stakeholders regarding HIV Molecular Epidemiology. (2023) (0)
- A call for preventive ethics (2009) (0)
- Umbilical cord blood collection, storage and transplantation (2000) (0)
- Accessible Genetics Research Ethics Education (AGREE): A Web-Based Program for IRBS and Investigators (2004) (0)
- Umbilical Cord Blood for Transplantation-Reply (1996) (0)
- Monitoring for Serious Adverse Events (2017) (0)
- Scientific, logistical, and ethical issues related to creation of a stem cell repository for use in experimental trials of gene therapy for AIDS. (1997) (0)
- Participant Perspectives and Experiences Following an Intensively Monitored Antiretroviral Pause (IMAP) in the United States: Results from the AIDS Clinical Trials Group (ACTG) A5345 Biomarker Study. (2022) (0)
- Development of a Patient Reported Measure of Experimental Transplants with HIV and Ethics in the United States (PROMETHEUS) (2021) (0)
- HIV prevention research and COVID-19: putting ethics guidance to the test (2021) (0)
- Critical considerations for public engagement in stem cell-related research. (2023) (0)
- Book Review The Body Hunters: Testing New Drugs on the World's Poorest Patients By Sonia Shah. 242 pp. New York, New Press, 2006. $24.95. 1-56584-912-4 (2006) (0)
- Responding to signals of mental and behavioral health risk in pragmatic clinical trials: Ethical obligations in a healthcare ecosystem (2022) (0)
- A Reference in Research Ethics (2004) (0)
- Ethics, evidence and HIV prevention (2013) (0)
- How the Doctor Got Gagged-Reply (1992) (0)
- Reflecting on short-term international service-learning trips. (2013) (0)
- Including Stakeholder Perspectives (2017) (0)
- Investigator Financial Disclosure Policy (Federal Register 60(132)35820) (1996) (0)
- In Response (2011) (0)
- Federal Support Revisited (1989) (0)
- Resonant misconception? (1985) (0)
- Research and Public Policy for Children: Perspectives From Planners and Participants (1999) (0)
- Advocacy Groups Must Find Common Cause. (1997) (0)
- Research Relating to Children. (1969) (0)
- The A B Cs of Welfare Reform: A Guide to the Personal Responsibility and Work Opportunity Reconciliation Act of 1996. (1996) (0)
- Pediatrician combats abuse. (1996) (0)
- Social Services for Children and Families in your State. (1969) (0)
- The Decennial-Sabbatical Plan. (1977) (0)
- Allocation of Opportunities to Participate in Clinical Trials during the Covid-19 Pandemic and Other Public Health Emergencies. (2021) (0)
- Appendix: Institutional Regulatory Oversight (2017) (0)
- Monitoring research with human subjects (2012) (0)
- The Presidential Bioethics Commission's database of human subjects research. (2013) (0)
- The flexibility of biobanking with the Bio-PIN system (2011) (0)
- Research access: The views of prospective research participants: (523652012-024) (2013) (0)
- Abstract 391: Variation in Time to Notification After Enrollment in Trials Conducted Under Exception From Informed Consent for Emergency Research (2019) (0)
- Pre-departure trainingApproaches and best practices (2017) (0)
- Professional guidelines and approaches to the ethical oversight of stem cell research (2012) (0)
- Erratum: Ethical and policy issues relating to progenitor-cell-based strategies for prevention of atherosclerosis (Journal of Medical Ethics (2007) vol. 33 (643-646)) (2008) (0)
- Case Study: Planning for Monitoring PCTs (2017) (0)
- Differences in Preferences for Sharing Personal Health Information During an ICU Admission by Race and Ethnicity (2023) (0)
- Research Monitoring and Ensuring Safety During Clinical (2010) (0)
- Ethical Challenges in Research with Human Biological Materials (2006) (0)
- Ethics of HIV cure research: an unfinished agenda (2021) (0)
- Potential Implications Should Be Considered Research : Proposed Criteria and Determining When Quality Improvement Initiatives (2010) (0)
- Cell Stem Cell ISSCR : Committee Forum Position Statement on the Provision and Procurement of Human Eggs for Stem Cell Research (2013) (0)
- Developing ethical and privacy sensitivity towards geocoded data (2014) (0)
- Towards achieving transnational research partnership equity: lessons from implementing adaptive platform trials in low- and middle-income countries (2023) (0)
- An Online Ethics Curriculum for Short-Term Global Health Experiences: Evaluating a Decade of Use (2022) (0)
- Stakeholder perspectives on data sharing from pragmatic clinical trials: Unanticipated challenges for meeting emerging requirements (2023) (0)
- Appendix: Regulatory Frameworks (2017) (0)
- Reflections from the Silver Screen (2009) (0)
- Alternative Approaches to Disclosure and Authorization (2017) (0)
- Maximizing safety in clinical and translational research. (2013) (0)
- Data Issues With Monitoring PCTs (2017) (0)
- Ethical and epistemic issues in the design and conduct of pragmatic stepped-wedge cluster randomized clinical trials. (2022) (0)
- Communication of the essential elements of informed consent (IC) for research: A RIAS analysis of phase I clinical trial encounters. (2010) (0)
- Clarification, continued. (2013) (0)
- Response to Open Peer Commentaries on “Ethics and Collateral Findings in Pragmatic Clinical Trials” (2020) (0)
- Non-disclosure of Research Activities (2017) (0)
- Evaluating the Balance Between Privacy and Access in Digital Information Sharing (2021) (0)
- Screening for sickle cell trait. (1995) (0)
- Assessing the Ethics of Ethics Research: A Case Study (2004) (0)
- Teaching medical ethics Talking about cases in bioethics : the e V ect of an intensive course on health care professionals (2000) (0)
- Why study informed consent? Reply (1999) (0)
- Informed consent. (2005) (0)
- Data on Different Approaches to Disclosure (2017) (0)
- REVIEW Ethical Hurdles for Translational Research (2003) (0)
- Appendix: US Regulatory Agencies (2017) (0)
- Appendix: Emerging Regulatory Issues (2017) (0)
- Workshop on Ethical Issues in Cord Blood Banking, Crystal City, Virginia, 22-23 September 1997: Unraveling the ethical issues in umbilical cord blood banking and use (1999) (0)
- Decentralised clinical trials: ethical opportunities and challenges (2023) (0)
- Short-Cycle Therapy is Short on Ethics. (2021) (0)
- Special Training and Resources for DMCs of Pragmatic Trials (2017) (0)
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