John Wilbanks
#173,299
Most Influential Person Now
American entrepreneur; runs the Consent to Research Project
Why Is John Wilbanks Influential?
(Suggest an Edit or Addition)According to Wikipedia, John Wilbanks is a Senior Fellow at the Datasphere Initiative, and formerly the Head of Data at Biogen Digital Health, the co-founder and Chief Commons Officer at Sage Bionetworks, Executive Director at Science Commons. He served as a Senior Fellow at the Ewing Marion Kauffman Foundation and at FasterCures. He is known for his work on informed consent, open science and research networks. Wilbanks led a We the People petition supporting the free access of taxpayer-funded research data, which gained over 65,000 signatures. In February 2013, the White House responded, detailing a plan to freely publicize taxpayer-funded research data.
John Wilbanks's Published Works
Number of citations in a given year to any of this author's works
Total number of citations to an author for the works they published in a given year. This highlights publication of the most important work(s) by the author
Published Works
- The mPower study, Parkinson disease mobile data collected using ResearchKit (2016) (432)
- The National COVID Cohort Collaborative (N3C): Rationale, design, infrastructure, and deployment (2020) (228)
- Pulmonary barotrauma in mechanical ventilation. Patterns and risk factors. (1992) (211)
- 'Omics Data Sharing (2009) (148)
- The Rise of Citizen Science in Health and Biomedical Research (2019) (141)
- Clinical risk factors for pulmonary barotrauma: a multivariate analysis. (1995) (126)
- Indicators of retention in remote digital health studies: a cross-study evaluation of 100,000 participants (2019) (100)
- Indicators of retention in remote digital health studies: a cross-study evaluation of 100,000 participants. (2020) (59)
- Pulmonary Barotrauma in Mechanical Ventilation (1993) (58)
- Formative Evaluation of Participant Experience With Mobile eConsent in the App-Mediated Parkinson mPower Study: A Mixed Methods Study (2017) (58)
- First, design for data sharing (2016) (57)
- Epidemiological comparison of three Mycoplasma pneumoniae pneumonia epidemics in a single hospital over 10 years (2015) (57)
- Stop the privatization of health data (2016) (50)
- Early Additional Immune-Modulators for Mycoplasma pneumoniae Pneumonia in Children: An Observation Study (2014) (48)
- Design Issues in E-Consent (2018) (48)
- Citizen Science on Your Smartphone: An ELSI Research Agenda (2015) (48)
- Esophageal pH and Combined Impedance-pH Monitoring in Children (2014) (42)
- Responsible sharing of biomedical data and biospecimens via the “Automatable Discovery and Access Matrix” (ADA-M) (2018) (41)
- What the semantic web could do for the life sciences (2004) (41)
- Optimal Duration of Medical Treatment in Superior Mesenteric Artery Syndrome in Children (2013) (37)
- The All of Us Research Program: Data quality, utility, and diversity (2020) (34)
- Remote smartphone monitoring of Parkinson’s disease and individual response to therapy (2021) (33)
- Creating a data resource: what will it take to build a medical information commons? (2017) (32)
- Collaborating to Compete: Blood Profiling Atlas in Cancer (BloodPAC) Consortium (2017) (31)
- An open source pharma roadmap (2017) (28)
- Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations (2020) (25)
- Developing a Transparent, Participant-Navigated Electronic Informed Consent for Mobile-Mediated Research (2016) (23)
- Another reason for opening access to research (2006) (21)
- Why Open Drug Discovery Needs Four Simple Rules for Licensing Data and Models (2012) (18)
- Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons (2019) (17)
- Science, Open Communication and Sustainable Development (2010) (15)
- Impedance-pH monitoring and conventional pH monitoring are complementary methods to detect association between gastroesophageal reflux and apnea-related symptoms in preterm infants and neonates (2012) (14)
- Implementing a universal informed consent process for the All of Us Research Program (2018) (11)
- Cyberinfrastructure For Knowledge Sharing (2008) (11)
- The Role of Government in Precision Medicine, Precision Public Health and the Intersection With Healthy Living. (2019) (10)
- Assessment of the All of Us research program’s informed consent process (2020) (10)
- Empirical validation of an automated approach to data use oversight (2021) (10)
- Bringing Code to Data: Do Not Forget Governance (2020) (9)
- Open Data Sharing in the 21st Century: Sage Bionetworks’ Qualified Research Program and Its Application in mHealth Data Release (2019) (9)
- Public domain, copyright licenses and the freedom to integrate science (2008) (8)
- Electronic Informed Consent in Mobile Applications Research (2020) (8)
- Pulmonary consolidation associated with infusion of a glucose-insulin-potassium solution in acute myocardial infarction. (1978) (8)
- Openness as infrastructure (2011) (6)
- Valuing Health Care: Improving Productivity and Quality (2012) (6)
- Licence restrictions: A fool's errand (2013) (6)
- Assessing the consequences of decentralizing biomedical research (2019) (6)
- Privacy, Big Data, and the Public Good: Portable Approaches to Informed Consent and Open Data (2014) (6)
- Pedunculated pericardial coelomic cyst manifesting as a rolling intrapleural mass. (1973) (6)
- Mechanisms to Govern Responsible Sharing of Open Data: A Progress Report (2020) (5)
- A technology-enhanced learning environment for a graduate/undergraduate course on optical fiber communications (2000) (5)
- Pulmonary atelectasis and dysphagia in a 69-year-old cachectic man. (1993) (5)
- The Long Term Results of Ossicular Chain Reconstruction UsingIONOS(R) in Chronic Otitis Media Patients (2002) (4)
- A New Market Access Path for Repurposed Drugs (2014) (3)
- Knowledge Governance: An Interoperability Principle for Knowledge Creation and Governance: The Role of Emerging Institutions (2009) (3)
- Ethical Issues in Consumer Informatics and Online Content (2019) (3)
- New Metaphors in Scientific Communication: Libraries and the Commons (2007) (2)
- Endoscopic features for early decision to evaluate superior mesenteric artery syndrome in children (2021) (2)
- Acute Torsion of a Wandering Spleen Managed by Splenopexy (2005) (2)
- A Case of Adenoid Cystic Carcinoma of the Nasal Septum Misdiagnosed as Pleomorphic Adenoma (2007) (1)
- THERAPY DEVELOPMENT IN A NETWORKED WORLD INTRODUCTION AND OVERVIEW MARTY TENENBAUM AND JOHN WILBANKS May 2008 (2008) (1)
- We need a Web for data (2010) (1)
- The Control Fallacy: Why OA Out-Innovates the Alternative (2008) (1)
- DEVELOPMENT AND VALIDATION OF A RISK SCORING MODEL FOR EARLY PREDICTION OF SEVERE ISCHEMIC COLITIS (2020) (1)
- Introduction: Unregulated Health Research Using Mobile Devices (2020) (1)
- A Technology‐Enhanced Learning Environment for an Optical Fiber Communications Course * (2001) (1)
- Roentgenogram of the month. Multiple bilateral rib fractures with extrapleural masses. (1978) (1)
- Microstructure-Sensitive, History-Dependent Internal State Variable Plasticity-Damage Model for a Sequential Tubing Process (2018) (1)
- Pulmonary cavitary lesion with productive cough. (1973) (1)
- Open Access versus "Open Viewing" for a Web of Science: The Neurocommons Example (2010) (1)
- Responsible sharing of biomedical data and biospecimens via the “Automatable Discovery and Access Matrix” (ADA-M) (2018) (1)
- Implementing a universal informed consent process for the All of Us Research Program (2018) (1)
- Infusion of a Glucose-Insulin-Potassium Solution in Acute Myocardial .lnfarction* (2017) (0)
- The Science Commons Data Project (2006) (0)
- US-EU Scientific Research Collaborations: Sage Bionetworks’ Experience Navigating the Complex Regulatory Landscape (2013) (0)
- Correction of Saddle Nose Deformity using Autogenous Cartilage Graft (2007) (0)
- Sandwich Graft Technique Repair of Nasal Septal Perforation (2012) (0)
- Multiple Bilateral Rib Fractures with Extrapleural Masses (1978) (0)
- DEVELOPING AN ELECTRONIC CONSENT FOR ADRC (2019) (0)
- Panel Discussion. Mass and Matter 2006. (2006) (0)
- Intellectual Merit (2009) (0)
- Open letter to the Society for Neuroscience (2014) (0)
- Open Access, Public Access: Policies, Implementation, Developments, and the Future of U.S.-Published Research (2014) (0)
- Bringing Code to Data: Do Not Forget Governance (Preprint) (2020) (0)
- Systems, methods and computer program products for processing genomic data in an object-oriented environment (2001) (0)
- Unreasonable effectiveness of open data, The (2007) (0)
- Creating a data resource: what will it take to build a medical information commons? (2017) (0)
- Introduction (2020) (0)
- Navigating ethical quandaries with the privacy dilemma of biomedical datasets (2019) (0)
- Processing handwritten and hand-drawn input and speech input (2003) (0)
- Correction of Saddle Nose Deformity with Autogenous Ear Cartilage. (2006) (0)
- Mass and Matter 2006: Public Access to Scientific Discovery (2006) (0)
- Freeing data through The Polar Information Commons (2009) (0)
- Open Data and the Future of Funded Research (2009) (0)
- Intellectual Property Aspects of Collaboration (2011) (0)
- DEVELOPING AN ELECTRONIC CONSENT FOR ADRC HIGH COMPLIANCE, CONTINUOUS LONG-TERM HOME MONITORING OF SLEEP ACTIVITY IN DIVERSE POPULATIONS DIFFERENTIATES LOWER COGNITIVE FUNCTIONING OLDER ADULTS (2019) (0)
- Open Biology's Quest to Explode Data (2010) (0)
- Pulmonary Barotrauma in Mechanical Ventilation* and Risk Factors (2017) (0)
- Progressive dyspnea complicated by fever and massive hemoptysis in a 61-year-old man with extremity chondrosarcoma. (2013) (0)
- The diagnostic significance of serum bile acid on total parenteral nutrition induced cholestasis in premature infants (2006) (0)
- Right apical lesion with respiratory symptoms. (1970) (0)
- Sandwich Graft using Ear Cartilage and Inferior Turbinate Mucoperiosteal Free Graft Via Open Rhinoplasty Approach for Repair of Nasal Septal Perforation (2012) (0)
- Endoscopic features for early detection of superior mesenteric artery syndrome in children (2021) (0)
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