Julie Panepinto
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American pediatric hematologist
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Julie Panepinto's Degrees
- Doctorate Medicine University of California, San Francisco
- PhD Biomedical Sciences University of California, San Francisco
Why Is Julie Panepinto Influential?
(Suggest an Edit or Addition)According to Wikipedia, Julie Ann Panepinto is an American pediatric hematologist-oncologist and physician-scientist. She specializes in health outcomes research and sickle cell disease. Panepinto became the acting director of the division of blood diseases and resources at the National Heart, Lung, and Blood Institute in 2022. She was a professor of pediatrics and hematology at the Medical College of Wisconsin.
Julie Panepinto's Published Works
Number of citations in a given year to any of this author's works
Total number of citations to an author for the works they published in a given year. This highlights publication of the most important work(s) by the author
Published Works
- Acute care utilization and rehospitalizations for sickle cell disease. (2010) (502)
- Sickle cell disease (2018) (475)
- Human neutrophil immunodeficiency syndrome is associated with an inhibitory Rac2 mutation. (2000) (466)
- Controlled trial of transfusions for silent cerebral infarcts in sickle cell anemia. (2014) (409)
- Silent cerebral infarcts occur despite regular blood transfusion therapy after first strokes in children with sickle cell disease. (2011) (220)
- Health‐related quality of life in children with sickle cell disease: child and parent perception (2005) (190)
- Unrelated donor cord blood transplantation for children with severe sickle cell disease: results of one cohort from the phase II study from the Blood and Marrow Transplant Clinical Trials Network (BMT CTN). (2012) (180)
- Associated risk factors for silent cerebral infarcts in sickle cell anemia: low baseline hemoglobin, sex, and relative high systolic blood pressure. (2012) (176)
- Matched‐related donor transplantation for sickle cell disease: report from the Center for International Blood and Transplant Research (2007) (166)
- A trial of unrelated donor marrow transplantation for children with severe sickle cell disease. (2016) (149)
- Health‐related quality of life in sickle cell disease: Past, present, and future (2012) (132)
- Patients with sickle cell disease have increased sensitivity to cold and heat (2013) (119)
- Attitudes Regarding Fertility Preservation in Female Adolescent Cancer Patients (2006) (115)
- Exchange blood transfusion compared with simple transfusion for first overt stroke is associated with a lower risk of subsequent stroke: a retrospective cohort study of 137 children with sickle cell anemia. (2006) (114)
- Variation in hospitalizations and hospital length of stay in children with vaso‐occlusive crises in sickle cell disease (2005) (114)
- PedsQL™ sickle cell disease module: Feasibility, reliability, and validity (2013) (108)
- Impact of family income and sickle cell disease on the health-related quality of life of children (2008) (98)
- PedsQL™ multidimensional fatigue scale in sickle cell disease: Feasibility, reliability, and validity (2014) (95)
- Vaso‐occlusive painful events in sickle cell disease: Impact on child well‐being (2010) (94)
- Coronavirus Disease among Persons with Sickle Cell Disease, United States, March 20–May 21, 2020 (2020) (90)
- Differences in Health-Related Quality of Life in Children With Sickle Cell Disease Receiving Hydroxyurea (2011) (84)
- Effect of donor type and conditioning regimen intensity on allogeneic transplantation outcomes in patients with sickle cell disease: a retrospective multicentre, cohort study. (2019) (82)
- Hydroxyurea in children with sickle cell disease: Practice patterns and barriers to utilization (2010) (81)
- Neuropathic pain in patients with sickle cell disease (2014) (79)
- Hydroxyurea use in sickle cell disease: the battle with low prescription rates, poor patient compliance and fears of toxicities (2010) (79)
- A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease (2009) (77)
- The Performance of the PedsQL Generic Core Scales in Children With Sickle Cell Disease (2008) (77)
- Pathophysiology of Stroke in Sickle Cell Disease (2004) (76)
- When children with sickle‐cell disease become adults: Lack of outpatient care leads to increased use of the emergency department (2011) (73)
- Silent cerebral infarction, income, and grade retention among students with sickle cell anemia (2014) (67)
- Five hematologic tests and treatments to question. (2014) (64)
- Development of the PedsQL™ sickle cell disease module items: qualitative methods (2012) (64)
- Health‐related quality of life in children with sickle cell anemia: Impact of blood transfusion therapy (2015) (63)
- Validity of the Child Health Questionnaire for Use In Children With Sickle Cell Disease (2004) (61)
- Patient-reported outcomes in clinical practice. (2015) (60)
- A multicenter randomized controlled trial of intravenous magnesium for sickle cell pain crisis in children. (2014) (55)
- Clinical features of a human Rac2 mutation: a complex neutrophil dysfunction disease. (2001) (53)
- The effect of CYP2D6 polymorphisms on the response to pain treatment for pediatric sickle cell pain crisis. (2007) (53)
- Early insights into the neurobiology of pain in sickle cell disease: A systematic review of the literature (2015) (52)
- Outpatient follow‐up and rehospitalizations for sickle cell disease patients (2012) (48)
- Clinically Meaningful Interpretation of Pediatric Health-related Quality of Life in Sickle Cell Disease (2015) (46)
- Health-related quality of life in patients with hemoglobinopathies. (2012) (45)
- Health‐related quality of life in sickle cell disease (2008) (45)
- Postdischarge pain, functional limitations and impact on caregivers of children with sickle cell disease treated for painful events (2009) (45)
- Mental health disorders influence admission rates for pain in children with sickle cell disease (2013) (41)
- End points for sickle cell disease clinical trials: patient-reported outcomes, pain, and the brain. (2019) (40)
- Laparoscopic versus open abdominal surgery in children with sickle cell disease is associated with a shorter hospital stay (2008) (39)
- The effect of parental mental health on proxy reports of health‐related quality of life in children with sickle cell disease (2010) (39)
- Monitoring toxicity, impact, and adherence of hydroxyurea in children with sickle cell disease (2011) (39)
- COVID-19 in individuals with sickle cell disease/trait compared with other Black individuals (2021) (39)
- Ambulatory quality indicators to prevent infection in sickle cell disease (2014) (37)
- Clinically meaningful measurement of pain in children with sickle cell disease (2013) (36)
- The impact of a multidisciplinary pain management model on sickle cell disease pain hospitalizations (2011) (34)
- Comorbidities are risk factors for hospitalization and serious COVID-19 illness in children and adults with sickle cell disease (2021) (33)
- Academic attainment findings in children with sickle cell disease. (2013) (33)
- Increased prevalence of potential right‐to‐left shunting in children with sickle cell anaemia and stroke (2015) (32)
- Dissatisfaction with hospital care for children with sickle cell disease not due only to race and chronic disease (2009) (30)
- Impact of pediatric cancer on family relationships (2018) (30)
- Substance P is increased in patients with sickle cell disease and associated with haemolysis and hydroxycarbamide use (2016) (29)
- The effect of magnesium on length of stay for pediatric sickle cell pain crisis. (2004) (29)
- The impact on quality of life on families of children on an elimination diet for Non-immunoglobulin E mediated gastrointestinal food allergies (2017) (29)
- Clinical Interpretation of Quantitative Sensory Testing as a Measure of Pain Sensitivity in Patients With Sickle Cell Disease (2016) (28)
- The Use of Neuropathic Pain Drugs in Children With Sickle Cell Disease Is Associated With Older Age, Female Sex, and Longer Length of Hospital Stay (2015) (28)
- Identification and Validation of a Sickle Cell Disease Cohort Within Electronic Health Records. (2017) (24)
- Improving communication between doctors and parents after newborn screening. (2011) (23)
- Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module (2017) (23)
- A Comparison of Pain Assessment Measures in Pediatric Sickle Cell Disease: Visual Analog Scale Versus Numeric Rating Scale (2015) (23)
- Impact of emergency department care on outcomes of acute pain events in children with sickle cell disease (2016) (23)
- Perioperative Management of Sickle Cell Disease Children Undergoing Adenotonsillectomy (2005) (23)
- Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease (2019) (22)
- Intravenous magnesium for pediatric sickle cell vaso‐occlusive crisis: Methodological issues of a randomized controlled trial (2014) (22)
- Vitamin B12 deficiency: The great masquerader (2014) (22)
- Children and adolescents with sickle cell disease have worse cold and mechanical hypersensitivity during acute painful events (2018) (21)
- A Prospective Study of Parent Health-Related Quality of Life before and after Discharge from the Neonatal Intensive Care Unit. (2019) (20)
- Risk score to predict event-free survival after hematopoietic cell transplant for sickle cell disease. (2020) (20)
- Patient‐reported health status during pediatric cancer treatment (2017) (18)
- Standard measures for sickle cell disease research: the PhenX Toolkit sickle cell disease collections. (2017) (18)
- End points for sickle cell disease clinical trials: renal and cardiopulmonary, cure, and low-resource settings. (2019) (16)
- Population pharmacokinetics of hydroxyurea for children and adolescents with sickle cell disease (2014) (16)
- Hydroxyurea in Children with Sickle Cell Disease: Practice Patterns and Barriers to Utilization. (2009) (14)
- American Society of Hematology 2021 guidelines for sickle cell disease: stem cell transplantation. (2021) (13)
- A user guide to the American Society of Hematology clinical practice guidelines. (2020) (13)
- Translating sickle cell guidelines into practice for primary care providers with Project ECHO. (2016) (12)
- Parental perception of quality of hospital care for children with sickle cell disease. (2008) (12)
- Parent Preferences Regarding Home Oxygen Use for Infants with Bronchopulmonary Dysplasia. (2019) (12)
- What is the evidence that hydroxyurea improves health-related quality of life in patients with sickle cell disease? (2012) (11)
- The Proportion of Potentially Preventable Emergency Department Visits by Patients With Sickle Cell Disease (2015) (11)
- Tissue Factor Deficiency Decreases Sickle Cell-Induced Vascular Stasis in a Hematopoietic Stem Cell Transplant Model of Murine Sickle Cell Disease. (2004) (10)
- Acute Idiopathic Thrombocytopenic Purpura of Childhood-Diagnosis and Therapy (2005) (10)
- Clinical meaning of PROMIS pain domains for children with sickle cell disease. (2019) (10)
- Family Engagement in Pediatric Sickle Cell Disease Visits (2017) (10)
- Longitudinal Trend in Emergency Department Reliance for Pain Among Sickle Cell Disease Patients in Wisconsin (2017) (10)
- Translating sickle cell guidelines into practice for primary care providers with Project ECHO (2016) (10)
- Identifying existing Choosing Wisely recommendations of high relevance and importance to hematology (2016) (8)
- Identification of patients with hemoglobin SS/Sβ0 thalassemia disease and pain crises within electronic health records. (2018) (8)
- Parents’ pain medication underdosing is associated with more emergency department visits in sickle cell disease (2018) (8)
- The effect of acute pain crisis on exhaled nitric oxide levels in children with sickle cell disease (2008) (7)
- Patient-Reported Outcome Measures Identify Impairment Better Than Clinician Documentation during Pediatric Cancer Treatment (2015) (7)
- Elevated Systolic Blood Pressure and Low Fetal Hemoglobin Are Risk Factors for Silent Cerebral Infarcts in Children with Sickle Cell Anemia (2009) (7)
- Neuropathic pain is associated with poor health‐related quality of life in adolescents with sickle cell disease: A preliminary report (2020) (7)
- Health-related Quality of Life in Infants With Sickle Cell Disease (2015) (6)
- Hydroxycarbamide in children with sickle cell anaemia after first‐dose vs. chronic therapy: pharmacokinetics and predictive models for drug exposure (2018) (6)
- Improvement in quality of life among violently injured youth after a brief intervention (2016) (6)
- Pharmacotherapy of Sickle Cell Disease in Children. (2015) (6)
- Integration of electronic patient-reported outcomes (ePROs) into pediatric clinic settings across hematology/oncology/bone marrow transplant. (2014) (6)
- Child and parent preferences for graphical display of patient‐reported outcome data (2017) (6)
- Anxiety and Depressive Symptoms in Juvenile Idiopathic Arthritis Correlate With Pain and Stress Using PROMIS Measures (2021) (5)
- Cognitive functioning, patient health communication, and worry mediate pain predictive effects on health‐related quality of life in youth with sickle cell disease (2020) (5)
- The ASH‐ASPHO Choosing Wisely Campaign: 5 hematologic tests and treatments to question (2021) (5)
- Can PROMIS domains of pain and physical functioning detect changes in health over time for children with sickle cell disease? (2020) (4)
- Impact of Poverty and Sickle Cell Disease on the Health-Related Quality of Life of Children. (2007) (4)
- Health Care Utilization Patterns and Emergency Department Reliance During Transition of Care From Pediatric to Adult Providers In Sickle Cell Disease (2010) (4)
- Changes in patient-reported outcomes in light chain amyloidosis in the first year after diagnosis and relationship to NT-proBNP change (2021) (4)
- Comparative effectiveness and practice variation in neonatal care. (2014) (4)
- COVID-19 Outcomes in Individuals with Sickle Cell Disease and Sickle Cell Trait Compared to Blacks without Sickle Cell Disease or Trait (2020) (4)
- Recommendation to reality: Closing the transcranial Doppler screening gap for children with sickle cell anemia (2020) (4)
- Red blood cell transfusions during sickle cell anemia vaso‐occlusive crises: a report from the magnesium in crisis (MAGiC) study (2017) (3)
- Youth Victims of Violence Report Worse Quality of Life Than Youth With Chronic Diseases. (2018) (3)
- Hospitalization and Case Fatality in Individuals with Sickle Cell Disease and COVID-19 Infection (2020) (3)
- Severe Thrombocytopenia in a Child Secondary to Passive Platelet Antibody Transfer from a Plasma Transfusion (2013) (3)
- Development of a conceptual model of patient-reported outcomes in light chain amyloidosis: a qualitative study (2021) (3)
- Impact of Sickle Cell Disease on Parents. (2006) (3)
- Unrelated Donor Cord Blood Transplantation for Children with Severe Sickle Cell Disease: Results of a Phase II Study from the Blood and Marrow Transplant Clinical Trials Network (2012) (2)
- The Impact of an Acute Vaso-Occlusive Crisis on Patient Reported Outcomes: The Magic Study (2014) (2)
- Higher Dose of Opioids in the Emergency Department and Earlier Initiation of Oral Opioids after Hospitalization Are Associated with Shorter Length of Stay in Children with Sickle Cell Disease Treated for Acute Pain (2015) (2)
- Health-Related Quality of Life in Children with Sickle Cell Disease: Impact of Blood Transfusion Therapy (2014) (2)
- The ASH-ASPHO Choosing Wisely Campaign: 5 hematologic tests and treatments to question (2022) (2)
- Clinically Meaningful Interpretation of Quantitative Sensory Testing As a Measure of Pain Sensitivity in Patients with Sickle Cell Disease (2015) (2)
- Assessment of communication modes in patients and families with sickle cell disease (2013) (2)
- Continuity of Care for Acute Visits In Sickle Cell Disease: Do Patients Go to More Than One Site? (2010) (2)
- Acute Care Visits in Sickle Cell Disease: a Population-Based Multi- State Study (2008) (2)
- A Multiyear Cross-sectional Study of Guideline Adherence for the Timeliness of Opioid Administration in Children With Sickle Cell Pain Crisis. (2020) (2)
- Five hematologic tests and treatments to question. (2014) (2)
- Testing the feasibility of eliciting preferences for health states from adolescents using direct methods (2018) (2)
- Cold and Mechanical Hypersensitivity Is Exacerbated during Acute Pain in Children and Adolescents with Sickle Cell Disease (2017) (1)
- Pharmacokinetics in Children with Sickle Cell Anemia Following Single Dose Versus Chronic Treatment with Hydroxyurea (2016) (1)
- Health-related quality of life in sickle cell disease (2019) (1)
- Disease Severity in Sickle Cell Disease: Understanding Impairment in Health-Related Quality of Life. (2007) (1)
- Neuropathic Pain Is Associated with Poor Health-Related Quality of Life in Adolescents with Sickle Cell Disease (2019) (1)
- Pediatric Leukemia/Lymphoma Patients Have Worse Patient-Reported Health Status Than Pediatric Solid Tumor and CNS Tumor Patients during Intensive Treatment (2015) (1)
- Assessment of pediatric asthma exacerbation with the use of new PROMIS measures (2020) (1)
- Health Following Recovery from Immune Thrombotic Thrombocytopenic Purpura: The Patient's Perspective. (2022) (1)
- Patients with Sickle Cell Disease Have Increased Sensitivity to Cold and Heat Stimuli, 2 (2011) (1)
- Transition From Pediatric to Adult Care for Patients With Sickle Cell Disease—Reply (2010) (1)
- Emergency Department Treat-and-Release Visits for Sickle Cell Disease: A sIgn of acute events to come (2011) (1)
- Real-Time Electronic Health Registry Improves Care for Children with Sickle Cell Disease (2019) (1)
- A Prospective Study of Parent Health-Related Quality of Life before and after NICU Discharge (2019) (1)
- Measurement properties of Patient Reported Outcomes Measurement Information System domains for children with type 1 diabetes (2020) (1)
- Impact of Cancer on Family Relationships (2016) (1)
- Comparison of Health Outcomes in Adolescent and Young Adults (AYA) Oncology Patients Treated at a Pediatric Versus Adult Institute (2019) (0)
- Effects of Adenotonsillectomy on Vaso-Occlusive Events in Sickle Cell Disease Patients (2004) (0)
- Outpatient Follow-up and Rehospitalization for Sickle Cell Disease in Wisconsin Medicaid. (2009) (0)
- Detection of changes of functioning over time after asthma exacerbation in children with the use of PROMIS domains (2021) (0)
- Author response for "Measurement properties of PROMIS domains for children with Type 1 diabetes" (2020) (0)
- NEWBORN WITH RENAL ARTERY THROMBOSIS PRESENTING AS RESPIRATORY FAILURE (2006) (0)
- Using Project Echo Telementoring to Improve Sickle Cell Disease Care in the Midwest (2016) (0)
- Existence of Neuropathic Pain in Patients with Sickle Cell Disease (2012) (0)
- The value of clinical practice guidelines in hematology. (2018) (0)
- PedsQL™ Sickle Cell Disease Module: Feasibility, Reliability and Validity (2012) (0)
- Functional Outcomes of Children with Sickle Cell Disease Treated for Vaso-Occlusive Painful Events. (2007) (0)
- Matched Related Donor Transplants for Sickle Cell Disease: Report from the Center for International Blood and Transplant Research. (2005) (0)
- A Novel Neutrophil (PMN) Dysfunction Syndrome: Infections and Poor Wound Healing Associated with Defective Motility but Normal Expression and Function of CD11b (1999) (0)
- Changes in patient-reported outcomes in light chain amyloidosis in the first year after diagnosis and relationship to NT-proBNP change (2021) (0)
- Increased Red Cell Adhesion Is Associated with Overt Stroke in Sickle Cell Disease. (2005) (0)
- History of Pain is Associated with Hospitalization and Severe Course of COVID-19 in Children with Sickle Cell Disease (2021) (0)
- Identification of Biological Processes Associated with Pain in Individuals with Sickle Cell Disease (2022) (0)
- Abstract T P369: Increased Prevalence of Potential Right-to-Left Shunting in Children with Sickle Cell Anemia and Stroke (2015) (0)
- Sickle Cell Pain Crisis: The Effect of CYP2D6 Polymorphisms. (2005) (0)
- 3245 Comparison of Health Outcomes in Adolescent and Young Adult (AYA) Oncology Patients Treated at a Pediatric versus Adult Institute (2019) (0)
- Prevalence and Trajectory of Symptoms in Pediatric Leukemia and Lymphoma Patients (2014) (0)
- Plasma-Based Inflammatory Signatures in Patients with Sickle Cell Disease during Baseline Health and Acute Pain (2020) (0)
- Impact of Residual Effects and Complications of Thrombotic Thrombocytopenic Purpura (TTP) on Daily Living: A Qualitative Study (2019) (0)
- The Number of People with Sickle Cell Disease in the United States: National and Individual State Estimates. (2009) (0)
- Transcriptional Inflammatory Signatures Differentiate Baseline Health from Acute Pain in Sickle Cell Disease Patients (2021) (0)
- Desmopressin and Epsilon Amino-Caproic Acid (EACA) in Adenotonsillectomy (T & A): Are We Under-Treating Patients with Mild Type 1 von Willebrand Disease (VWD) and Mild Platelet Function Defects (PFD)?. (2004) (0)
- Clinical Meaning of Promis Pain Interference and Pain Behavior Measures for Children with Sickle Cell Disease (2018) (0)
- The Neuropeptide Substance P Is Elevated in Patients with Sickle Cell Disease (2015) (0)
- Measurement properties of PROMIS domains for children with Type 1 diabetes. (2020) (0)
- The Use Of Neuropathic Pain Drugs In Patients With Sickle Cell Disease Is Associated With Older Age and Female Gender (2013) (0)
- Fever or acute illness in a child with sickle cell disease (2011) (0)
- Population Pharmacokinetic (PK) Modeling of Hydroxyurea for Therapeutic Drug Monitoring Applications in Children and Adolescents with Sickle Cell Disease (2011) (0)
- Increased Red Blood Cell Adhesion Is Associated with Priapism in Sickle Cell Disease. (2006) (0)
- Identification Of Hub Genes Associated With Acute Pain Episodes In Individuals With Sickle Cell Disease (2023) (0)
- Development of a Conceptual Framework of Patient-reported Outcomes in Light Chain Amyloidosis: A Qualitative Study (2021) (0)
- Electronic Support to Improve ADHD Evidence-Based Care (2015) (0)
- Coping Styles and Health-Related Quality of Life in Children with Sickle Cell Disease. (2005) (0)
- Sickle Cell Disease Measures in the Phenx Toolkit (2015) (0)
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Julie Panepinto is affiliated with the following schools:
