Tania Bubela
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(Suggest an Edit or Addition)According to Wikipedia, Tania Marjorie Bubela is a professor and dean in the Faculty of Health Sciences at Simon Fraser University. Education Born and raised in Australia, Bubela earned her bachelor's degree in 1988 from the Australian National University and her PhD from the University of Sydney.
Tania Bubela's Published Works
Published Works
- Science communication reconsidered (2009) (363)
- Do the print media “hype” genetic research? A comparison of newspaper stories and peer-reviewed research papers (2004) (292)
- Post-publication sharing of data and tools (2009) (166)
- The global landscape of stem cell clinical trials. (2014) (138)
- ISSCR Guidelines for Stem Cell Research and Clinical Translation: The 2021 update (2021) (82)
- Reproducibility and Reuse of Adaptive Immune Receptor Repertoire Data (2017) (75)
- Reflections on the Cost of "Low-Cost" Whole Genome Sequencing: Framing the Health Policy Debate (2013) (73)
- Role and reality: technology transfer at Canadian universities. (2010) (62)
- “If they tell me to get it, I’ll get it. If they don’t....”: Immunization decision-making processes of immigrant mothers (2015) (61)
- Responsible Translation of Stem Cell Research: An Assessment of Clinical Trial Registration and Publications (2017) (60)
- Is belief larger than fact: expectations, optimism and reality for translational stem cell research (2012) (59)
- Myriad and the mass media: the covering of a gene patent controversy (2007) (59)
- Bringing regenerative medicines to the clinic: the future for regulation and reimbursement. (2015) (49)
- Patent landscaping for life sciences innovation: toward consistent and transparent practices (2013) (49)
- Toward a New Era of Intellectual Property: From Confrontation to Negotiation - A Report by the International Expert Group on Biotechnology, Innovation and Intellectual Property (2008) (46)
- The Stem Cell Research Environment: A Patchwork of Patchworks (2009) (43)
- Author name disambiguation for collaboration network analysis and visualization (2009) (41)
- Prospects for scaling-up supervised injection facilities in Canada: the role of evidence in legal and political decision-making. (2013) (40)
- Why a Criminal Ban? Analyzing the Arguments Against Somatic Cell Nuclear Transfer in the Canadian Parliamentary Debate (2007) (37)
- Science communication in transition: genomics hype, public engagement, education and commercialization pressures (2006) (37)
- Diet of 2 Sympatric Australian Sub-Alpine Rodents, Mastacomys-Fuscus and Rattus-Fuscipes (1990) (36)
- Use and Misuse of Material Transfer Agreements: Lessons in Proportionality from Research, Repositories, and Litigation (2015) (32)
- Creating a data resource: what will it take to build a medical information commons? (2017) (32)
- Recalibrating Intellectual Property Rights to Enhance Translational Research Collaborations (2012) (31)
- Commercialization and collaboration: competing policies in publicly funded stem cell research? (2010) (30)
- Home Range and Activity of the Broad-toothed Rat, Mastacomys fuscus, in Subalpine Heathland (1991) (30)
- Herbal remedy clinical trials in the media: a comparison with the coverage of conventional pharmaceuticals (2008) (29)
- Diet of two sympatric Australian subalpine rodents, Mastacomys fuscus and Rattusfuscipes (1990) (26)
- Factors affecting the trappability of red foxes in Kosciusko National Park (1998) (26)
- Paving the road to personalized medicine: recommendations on regulatory, intellectual property and reimbursement challenges (2017) (25)
- The social organisation and mating system of an Australian subalpine rodent, the broad-toothed rat, Mastacomys fuscus Thomas (1993) (23)
- Synthetic biology confronts publics and policy makers: challenges for communication, regulation and commercialization. (2012) (22)
- Drugs: Regulate 'home-brew' opiates (2015) (22)
- When Pictures Waste a Thousand Words: Analysis of the 2009 H1N1 Pandemic on Television News (2013) (21)
- “Is a cure in my sight?” Multi-stakeholder perspectives on phase I choroideremia gene transfer clinical trials (2013) (20)
- Precision Medicine: Drowning in Regulatory Soup? (2016) (20)
- Let’s do better: public representations of COVID-19 science (2021) (19)
- Key challenges in bringing CRISPR-mediated somatic cell therapy into the clinic (2017) (19)
- Value-engineered translation for regenerative medicine: meeting the needs of health systems. (2013) (18)
- Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons (2019) (17)
- Communicating the promise for ocular gene therapies: challenges and recommendations. (2015) (17)
- Current practices and reform proposals for the regulation of advanced medicinal products in Canada. (2015) (16)
- Choroideremia research: Report and perspectives on the second international scientific symposium for choroideremia (2016) (16)
- The New Age of the Nagoya Protocol (2015) (15)
- Implementing Socially Responsible Licensing for Global Health: Beyond Neglected Diseases (2014) (14)
- Non-invasive Prenatal Testing and the Unveiling of an Impaired Translation Process. (2017) (13)
- Genetic Resources and Traditional Knowledge (2012) (13)
- International stem cell environments: a world of difference (2009) (13)
- Legal agreements and the governance of research commons: lessons from materials sharing in mouse genomics. (2014) (13)
- Media Representations of Genetic Discoveries: Hype in the Headlines? (2014) (12)
- Provenance and risk in transfer of biological materials (2018) (12)
- Diet and winter foraging behaviour of the red fox (Vulpes vulpes) in alpine and subalpine New South Wales (1998) (12)
- Genetic Resources and Traditional Knowledge: Case Studies and Conflicting Interests (2012) (11)
- AMP v. Myriad: A Surgical Strike on Blockbuster Business Models (2013) (11)
- Patents and misplaced angst: lessons for translational stem cell research from genomics. (2013) (11)
- The mouse that trolled: the long and tortuous history of a gene mutation patent that became an expensive impediment to Alzheimer's research (2015) (10)
- Media portrayal of herbal remedies versus pharmaceutical clinical trials: impacts on decision. (2007) (10)
- Access and benefits sharing of genetic resources and associated traditional knowledge in northern Canada: understanding the legal environment and creating effective research agreements (2013) (10)
- Trends in Evidence-Based Medicine for Herbal Remedies and Media Coverage (2006) (10)
- Gene patents—more evidence needed, but policymakers must act (2007) (10)
- Sustaining large-scale infrastructure to promote pre-competitive biomedical research: lessons from mouse genomics. (2016) (10)
- Managing Intellectual Property to Promote Pre-Competitive Research: The Mouse as a Model for Constructing a Robust Research Commons (2012) (9)
- Application of protection motivation theory to clinical trial enrolment for pediatric chronic conditions (2020) (9)
- DNA barcoding in the media: does coverage of cool science reflect its social context? (2016) (9)
- Drafting effective collaborative research agreements and related contracts. (2007) (8)
- More Haste, Less Speed: Could Public–Private Partnerships Advance Cellular Immunotherapies? (2017) (8)
- Opportunities and challenges for the cellular immunotherapy sector: a global landscape of clinical trials. (2017) (8)
- Ocular gene transfer in the spotlight: implications of newspaper content for clinical communications (2014) (8)
- Non-invasive Prenatal Testing and the Unveiling of an Impaired Translation Process (2017) (8)
- Canada's Assisted Human Reproduction Act: Pragmatic Reforms in Support of Research (2019) (8)
- Experiences in Broker-Facilitated Participatory Cross-Cultural Research (2017) (7)
- Lost in translation: the Canadian access to medicines regime from transnational activism to domestic implementation. (2010) (6)
- Policies and Practices to Enhance Multi-sectorial Collaborations and Commercialization of Regenerative Medicine (2014) (5)
- Participant perspectives on a phase I/II ocular gene therapy trial (NCT02077361) (2019) (5)
- Nutrigenomics and the Promise of Prevention: Representations and Realities (2014) (5)
- Media portrayal of conflicts of interest in herbal remedy clinical trials. (2006) (5)
- Molecular Typing Technology: a Legal Perspective (2012) (5)
- Enabling advanced cell therapies (EnACT): invitation to an online forum on resolving barriers to clinical translation. (2012) (5)
- Value-engineered translation: developing biotherapeutics that align with health-system needs. (2014) (5)
- Conditional Drug Approval as a Path to Market for Oncology Drugs in Canada: Challenges and Recommendations for Assessing Eligibility and Regulatory Responsiveness (2022) (4)
- Recommendations for Regulating the Environmental Risk of Shedding for Gene Therapy and Oncolytic Viruses in Canada (2019) (4)
- Expert Evidence: The Ethical Responsibility of the Legal Profession (1969) (4)
- Governance of a global genetic resource commons for non-commercial research: A case-study of the DNA barcode commons (2019) (4)
- Keeping score, strengthening policy and fighting bad actors over access to research tools (2015) (4)
- Medical Information Commons to Support Learning Healthcare Systems: Examples From Canada (2019) (4)
- Circumpolar stakeholder perspectives on Geographic Information Systems for communicating the health impacts of development (2015) (4)
- The Perils of Taking Property Too Far. (2009) (4)
- Governance of Biomedical Research Commons to Advance Clinical Translation: Lessons from the Mouse Model Community (2017) (4)
- Stem Cell Research in the News: More than a Moral Status Debate? (2014) (3)
- Automated content analysis as a tool for research and practice: a case illustration from the Prairie Creek and Nico environmental assessments in the Northwest Territories, Canada (2017) (3)
- The Impact of Heterogeneity in a Global Knowledge Commons: Implications for Governance of the DNA Barcode Commons (2019) (3)
- Knowledge Management and the Contextualisation of Intellectual Property Rights in Innovation Systems (2010) (3)
- Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical Evidence (2021) (3)
- Stepping Into and Out of the Void: Funding Dynamics of Human Embryonic Stem Cell Research in California, Sweden, and South Korea (2015) (3)
- Introduction: Indigenous Rights and Traditional Knowledge (2012) (2)
- Developing research agreements between communities and academic researchers: A case-study from northern Canada (2011) (2)
- Social values for health technology assessment in Canada: a scoping review of hepatitis C screening, diagnosis and treatment (2020) (2)
- Challenges for intellectual property management of HIV vaccine-related research and development: part 2, the Canadian context. (2008) (2)
- Respecting and Aligning Knowledge Systems in Northern Canada: Beyond the International Polar Year (2012) (2)
- Monitoring progress toward United Nations commitments: characteristics of Canadian legislation to promote tobacco control, physical activity and healthy eating. A descriptive study. (2019) (2)
- Iconographies supplémentaires de l'article : Communicating the Promise for Ocular Gene Therapies: Challenges and Recommendations (2015) (2)
- Nutrigenomics, Mass Media and Commercialization Pressures (2014) (2)
- The ethics of genome editing in the clinic: A dose of realism for healthcare leaders (2017) (2)
- Open drug discovery of anti-virals critical for Canada’s pandemic strategy (2020) (2)
- Covid-19 threat and coping: application of protection motivation theory to the pandemic experiences of people affected by amyotrophic lateral sclerosis (2022) (2)
- Identifying and understanding factors that affect the translation of therapies from the laboratory to patients: a study protocol. (2020) (2)
- Challenges for intellectual property management of HIV vaccine-related research and development: part 1, the global context. (2008) (2)
- The mouse that trolled (again) (2016) (2)
- Framing Nutrigenomics for Individual and Public Health: Public Representations of an Emerging Field (2009) (1)
- A perspective on life-cycle health technology assessment and real-world evidence for precision oncology in Canada (2022) (1)
- Identifying and understanding factors that affect the translation of therapies from the laboratory to patients: a study protocol (2020) (1)
- A Multi-Database Approach to Field Delineation (2009) (1)
- The Health Economics for Regenerative Medicine: How Payers Think and What That Means for Developers (2017) (1)
- Amici Curiae Brief for Academics in Law, Medicine, Health Policy, and Clinical Genetics in Support of Neither Party (2012) (1)
- CAPTURE ALS: the comprehensive analysis platform to understand, remedy and eliminate ALS (2022) (1)
- Key challenges in bringing CRISPR-mediated somatic cell therapy into the clinic (2017) (1)
- Interview guides for DNA barcode commons case study (2010) (1)
- Ocular gene transfer in the spotlight: implications of newspaper content for clinical communications (2014) (1)
- The Importance of and Challenges with Adopting Life-Cycle Regulation and Reimbursement in Canada (2022) (1)
- Aboriginal Rights and Traditional Ecological Knowledge in Northern Canada (2012) (1)
- Canada's Orphan Drug Framework: Lessons from the United States, Europe and Japan (2015) (0)
- Lessons from Canada’s notice of compliance with conditions policy for the life-cycle regulation of drugs (2023) (0)
- Intellectual Property and Biotechnology (2010) (0)
- Stem cells, politics and the progress paradigm. (2006) (0)
- Identifying and understanding factors that affect the translation of therapies from the laboratory to patients: a study protocol [version 1; peer review: 1 approved, 1 approved with reservations] (2021) (0)
- THE ETHICAL RESPONSIBILITY OF THE LEGAL PROFESSION (2017) (0)
- Managing intellectual property for health research and delivery (2017) (0)
- Amici Brief of Certain Academics in Law, Medicine, Health Policy, and Clinical Genetics in Support of Petitioners (2012) (0)
- Legal and Regulatory Enablers and Barriers to Conditional Regulatory and Reimbursement Alternatives in Canadian Health Systems (2022) (0)
- Can Managed Access Agreements Mitigate Evidentiary, Economic and Ethical Issues with Access to Expensive Drugs for Rare Diseases in the Canadian Context? (2023) (0)
- Brief of Amici Curiae E. Richard Gold, James P. Evans, and Tania Bubela in Support of Appellees and Affirmance (2010) (0)
- Shifting the Boundaries of Patent Discourse: NGO Influence on International Patent Governance (2008) (0)
- Legal Issues in Public Health (2017) (0)
- Optimizing an Orphan Drug Framework for Canada Canada ’ s Orphan Drug Framework : Lessons from the United States , Europe and Japan (2015) (0)
- Implementing Socially Responsible Licensing for Global Health: Beyond Diseases (2016) (0)
- hematopoietic stem cell n industry n mesenchymal stem cell n neurological n stem cell mobilization n stem cell therapy (2013) (0)
- Public Trust and Regulatory Governance as represented through the Media (2014) (0)
- Cell therapy licensing: a web for the unwary in Kimble v. Marvel Entertainment? (2016) (0)
- LITIGATING THE HUMAN RIGHT TO HEALTH AND THE AIDS PANDEMIC: LESSONS FROM SOUTH AFRICA AND CANADA (2003) (0)
- As new media proliferate and the public's trust and engagement in science are influenced by industry involvement in academic research, an interdisciplinary workshop provides some recommendations to enhance science communication. (2009) (0)
- Hope and hype in sight: Sensationalism in choroideremia gene therapy (2012) (0)
- Conducting Ethically Robust Pediatric Diabetes Clinical Trials: Lessons from a Scoping Review (2016) (0)
- Field Delineation or Field Delimitation for Mapping Sciences (2013) (0)
- Creating a data resource: what will it take to build a medical information commons? (2017) (0)
- Parental Decision-Making Processes in Pediatric Trial Enrollment: Recommendations for Informed Consent in Juvenile Type 1 Diabetes Research (2017) (0)
- Open Data: Legal and Conceptual Issues (2012) (0)
- Stepping Into and Out of the Void: Funding Dynamics of Human Embryonic Stem Cell Research in California, Sweden, and South Korea (2015) (0)
- Media Portrayal of Conflicts of Interest in Biomedical Research (2014) (0)
- Parental Decision-Making Processes in Pediatric Trial Enrollment: Recommendations for Informed Consent in Genetic Eye Disease Research for Cell Therapies (2018) (0)
- Amyotrophic lateral sclerosis (ALS) health charities are central to ALS care: perspectives of Canadians affected by ALS (2022) (0)
- From darkness to the limelight: Media representations of ocular gene therapy (2011) (0)
- Wicked Issues for Canada at the Intersection of Intellectual Property and Public Health: Mechanisms for Policy Coherence (2014) (0)
- Do-it-yourself and Commercial Automated Insulin Delivery Systems in Type 1 Diabetes: An Uncertain Area for Canadian Healthcare Providers. (2022) (0)
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